Overview
What is The Epilepsy Association Of Central Florida Inc?
The Epilepsy Association of Central Florida Inc, operating under the name Epilepsy Association, is a dedicated nonprofit organization based in Orlando, Florida. Their primary mission is to enhance the lives of individuals affected by epilepsy and seizure disorders. They accomplish this by providing prevention and education programs globally through the utilization of online technology. Reaching over four million people in over 150 countries, they offer accurate and timely information on epilepsy to various audiences, including public groups, schools, medical professionals, and families. Their initiatives include an educational website, EpilepsyU.com, and social media platforms, which collectively reach over four million people worldwide monthly. Additionally, the organization has launched a social enterprise, EpilepsyStore.com, to expand epilepsy awareness nationwide and raise funds for direct program services. The Epilepsy Association is also renowned for its education and prevention efforts against Shaken Baby Impact Syndrome (SBIS), a traumatic brain injury that may result in seizures or even death. Their award-winning video and teaching curriculum on SBIS is widely used across the globe.
Official website here: www.epilepsyassociation.com
What are the reviews and ratings of this charity?
Charity Navigator Rating: 82% (Three-Star out of Four Star rating)
The Epilepsy Association of Central Florida holds a respectable Three-Star rating from Charity Navigator, reflecting its strong performance in accountability and finance, as well as its commitment to community engagement. The organization boasts an impressive 81% score in accountability and finance and an 87% score for culture and community. With a program expense ratio of over 80%, it demonstrates a strong focus on programmatic activities, ensuring that the majority of its funds are directed towards serving individuals with epilepsy.
User feedback highlights the exceptional services provided by the Epilepsy Association, with numerous clients praising the organization's responsiveness and compassionate care. Many individuals report significant improvements in their quality of life due to the support received, including access to medication, educational resources, and tailored patient services. The staff's professionalism and dedication, particularly highlighted in reviews for team members like Pachi, contribute positively to the organization's reputation within the community.
However, while the feedback is overwhelmingly positive, it is important to note that the organization operates in a challenging area, addressing the complex needs of individuals with epilepsy. Some reviews indicate that while services are highly valued, the demand for assistance can sometimes strain resources. Nevertheless, the overall sentiment remains highly favorable, with many clients and professionals alike recommending the Epilepsy Association as a vital resource for those affected by epilepsy.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
What do the Facebook reviews say about The Epilepsy Association Of Central Florida Inc?
98% of 38 reviewers on Facebook recommend The Epilepsy Association of Central Florida Inc. Here's a summary of their insights:
Many supporters express strong endorsement for the organization, emphasizing the importance of raising awareness about epilepsy and its varying impacts on individuals. Reviewers appreciate the association's efforts to educate the public about this neurological disorder, highlighting the necessity of understanding its complexities, as well as the need for more research and information dissemination. One user, who has a background in teaching children with seizure disorders, passionately advocates for increased awareness and support for those affected.
Overall, it’s clear that there’s a dedicated community rallying behind The Epilepsy Association of Central Florida Inc., recognizing its vital role in advocacy and education for epilepsy. Reviewers value the organization's commitment to improving the lives of those impacted by the disorder, reinforcing its significance in the fight for greater understanding and treatment options.
This AI summary has been generated from reviews found on Facebook.
Is The Epilepsy Association Of Central Florida Inc legitimate?
The Epilepsy Association Of Central Florida Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Epilepsy Association Of Central Florida Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $336,811
For more financial information, click here
Official website here: www.epilepsyassociation.com
What is the mission statement of The Epilepsy Association Of Central Florida Inc?
The Epilepsy Association of Central Florida Inc., commonly known as the Epilepsy Association, is dedicated to improving the quality of life for individuals affected by epilepsy and seizure disorders. Their mission is to identify, define, and advocate for the needs of these individuals, planning and implementing strategies to meet those needs. The organization has expanded its prevention and education programs globally through online technology, reaching over four million people monthly with epilepsy news, education, and support. They offer accurate and timely information on epilepsy to various groups, employ a full-time health educator, and maintain an online educational platform, EpilepsyU.com, for support groups, courses, webinars, and more. The association also launched a social enterprise, EpilepsyStore.com, to raise funds and expand epilepsy awareness nationwide. Additionally, the Epilepsy Association is a leader in the education and prevention of Shaken Baby Impact Syndrome (SBIS), a traumatic brain injury that may result in seizures or death.
Official website here: www.epilepsyassociation.com
Who is the CEO of The Epilepsy Association Of Central Florida Inc?
Ardit Bitincka is the Director of The Epilepsy Association Of Central Florida Inc.
Official website here: www.epilepsyassociation.com
What is the revenue of The Epilepsy Association Of Central Florida Inc?
The Epilepsy Association Of Central Florida Inc's revenue in 2022 was $813,501.
Official website here: www.epilepsyassociation.com
Who are the executives of The Epilepsy Association Of Central Florida Inc and what are their salaries?
Here are 14 key members and their salaries:
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- Compensation: $78,565
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Official website here: www.epilepsyassociation.com
Where can I find the form 990 for The Epilepsy Association Of Central Florida Inc?
The Epilepsy Association Of Central Florida Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.epilepsyassociation.com
Learn more at the official website: www.epilepsyassociation.com
Mission Statement of The Epilepsy Association Of Central Florida Inc
The Epilepsy Association, in its mission, is dedicated to enhancing the quality of life for individuals affected by epilepsy and seizure disorders. This nonprofit organization, known as The Epilepsy Association of Central Florida Inc D/B/A Epilepsy Association, aims to identify, define, and advocate for the needs of those living with epilepsy. To achieve this goal, they implement strategies to meet these needs.
The Epilepsy Association has expanded its reach through the use of online technology, reaching over four million people each month in over 150 countries. Their programs offer accurate and timely information on epilepsy to various audiences, including public groups, schools, medical professionals, and families. They employ a full-time health educator to facilitate these programs, and their online platform, EpilepsyU.com, extends their reach further, now reaching over four million people monthly.
The organization also launched a "social enterprise," EpilepsyStore.com, to raise funds and increase epilepsy awareness nationwide through the sale of epilepsy awareness merchandise. Additionally, The Epilepsy Association remains one of the leading educators and preventers of Shaken Baby Impact Syndrome (SBIS), a traumatic brain injury that may result in seizures or even death. Their award-winning video and teaching curriculum on SBIS is used worldwide, from school children and childcare workers to maternity hospitals and new father programs.
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Impact
October, 2024
The Epilepsy Association of Central Florida Inc. significantly enhances the quality of life for individuals affected by epilepsy and seizure disorders through extensive education, outreach, and support initiatives. With a mission centered on prevention and education, the organization employs a full-time health educator to ensure timely and accurate information reaches diverse audiences, including public groups, schools, medical professionals, and families.
In 2020 alone, the association conducted 156 in-person programs, further amplifying its impact through innovative online technology. It connects with over four million individuals every month across more than 150 countries through epilepsy news, resources, and support networks. The dedicated educational platform, EpilepsyU.com, provides a wealth of information, including support groups, courses, webinars, and current news articles, fostering a global community committed to epilepsy awareness.
Moreover, the organization excels in preventing Shaken Baby Impact Syndrome (SBIS), a serious condition that can lead to seizures or death. Its award-winning curriculum and video resources are utilized worldwide, enhancing education on this crucial issue among childcare workers, school children, maternity hospitals, and new father programs. By integrating merchandise sales through its epilepsy awareness store, the association not only raises funds for direct program services but also continues to expand recognition and understanding of epilepsy nationwide. Through these comprehensive efforts, the Epilepsy Association of Central Florida Inc. empowers individuals and communities to navigate and mitigate the challenges associated with epilepsy, ultimately fostering a more informed and supportive environment.
This information is meant to be a general summary of The Epilepsy Association Of Central Florida Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $46,103
- Program Service Revenue: $4,639
- Gross Receipts: $850,619
Assets and Liabilities:
- Total Assets: $1,178,510
- Total Liabilities: $206,410
- Net Assets: $972,100
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
CLIENT SERVICE FEES
Revenue
$4,639
Organization Details
Founding Year
1984
Phone
(407) 422-1416Principal Officer
Ardit Bitincka
Main Address
109 NORTH KIRKMAN ROAD, ORLANDO, FL, 32811
Website
www.epilepsyassociation.comNTEE Category
Code: G54Z - Disease
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