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Epilepsy Association

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 237198807 ✦ Cleveland, OH ✦ Designated as a 501(c)(3)

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Overview

What is Epilepsy Association?

The Epilepsy Association is a compassionate, not-for-profit organization situated in Cleveland, Ohio. Their primary mission is to support individuals and families affected by epilepsy, offering specialized services to children, teens, adults, and their loved ones. Their activities encompass community case management and mental health assessment services for adult clients, aiming to establish personalized goals and assist in meeting their needs. An emphasis is placed on consumer choice, maintaining medical stability, and enhancing the overall quality of life for clients. In 2022, 413 adults benefited from these services. The Epilepsy Association is committed to empowering individuals with epilepsy to reach their full potential within their communities. They employ a dedicated workforce of nine individuals.


Official website here: www.epilepsyinfo.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 96%, Four-Star out of Four Stars

The Epilepsy Association has achieved a high rating of 96% from Charity Navigator, reflecting its strong commitment to accountability and finance. This impressive score is based solely on a single beacon score that emphasizes the organization's financial practices, with a perfect score indicating high standards in governance and transparency.

The organization boasts a fully independent board, consisting entirely of independent members, which enhances oversight and decision-making processes. Additionally, the financial management practices are robust, with no material diversion of assets and a solid program expense ratio of 82.31%, suggesting that a significant portion of its funds is directed towards its mission-driven programs.

While the rating highlights the financial health and operational transparency of the Epilepsy Association, it does not provide insights into the effectiveness of the programs themselves or the broader impact of their initiatives. Nevertheless, the strong governance and financial accountability positions the organization as a trustworthy entity within the nonprofit sector.


This AI summary has been generated from information found on Charity Navigator.

Is Epilepsy Association legitimate?

Epilepsy Association is a legitimate nonprofit organization registered as a 501(c)(3) entity. Epilepsy Association submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $188,331
Professional Fundraising Fees: $0
Other Salaries and Wages: $241,527

For more financial information, click here


Official website here: www.epilepsyinfo.org

What is the mission statement of Epilepsy Association?

The Epilepsy Association, as a not-for-profit corporation, is committed to aiding individuals and families impacted by seizure disorders. Their mission is to enhance the quality of life for these individuals, empowering them to reach their full potential within the community. The association offers specialized services, including community case management and mental health assessment services for adult clients with epilepsy. Through individualized goal-setting and plan establishment, they focus on consumer choice, maintaining medical stability, and improving the overall quality of life for their clients. In 2022, 413 adults received case management and other social services from the Epilepsy Association.


Official website here: www.epilepsyinfo.org

Who is the CEO of Epilepsy Association?

Kelley Needham is the CEO of Epilepsy Association The CEO's salary of Epilepsy Association is $121,104 and their total compensation is $161,655.


Official website here: www.epilepsyinfo.org

What is the revenue of Epilepsy Association?

Epilepsy Association's revenue in 2023 was $652,080.


Official website here: www.epilepsyinfo.org

Who are the executives of Epilepsy Association and what are their salaries?

The average compensation at Epilepsy Association during 2023 was $47,762. There are 9 employees and 110 volunteers at Epilepsy Association.

Here are 29 key members and their salaries (Epilepsy Association's CEO's salary is $121,104 and their total compensation is $161,655):


Kelley Needham (Ceo)
  • Compensation: $121,104
  • Related: $0
  • Other: $40,551
Patricia Varanese (Ed)
  • Compensation: $20,983
  • Related: $0
  • Other: $5,693
Ben Young (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Brittany Folino (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Joseph Murlin (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Louis Broussard (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mike Barrett (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Richard Bass (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Karen Johnson (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sean Medina (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jeffery Karlovec (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Susan Krantz (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Takiyah Durham (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Michael Blake (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Marquettes Robinson (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Adam Zuccaro (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
April Kingsbury Walsh (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Rocco Dipuccio (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Stephen Hantus Md (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Guadalupe Fernandez-Baca Vaca Md (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jun Park Md (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Courtney Schmidt (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Diane Spirnak (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Travis Okel (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Marvin Rossi (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sarah Salisbury (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Susan Stamberger (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Carole Barita (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mark Holcomb (Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.epilepsyinfo.org

Where can I find the form 990 for Epilepsy Association?

Epilepsy Association's most recent form 990 was submitted in 2023 and can be accessed here.


Official website here: www.epilepsyinfo.org

Learn more at the official website: www.epilepsyinfo.org

Mission Statement of Epilepsy Association

The Epilepsy Association, a non-profit corporation, is committed to aiding individuals and families grappling with seizure disorders. Their mission is to enhance the lives of those affected by epilepsy, enabling them to navigate their condition with greater ease while fostering their integration into the community. By providing specialized services, the Epilepsy Association strives to empower individuals to attain their full potential, improving their overall quality of life.

The Epilepsy Association offers a range of patient services, including community case management and mental health assessment services to adult clients. These services are tailored to meet the unique needs of each client, with individualized goals established and plans devised to assist them in their pursuit of these objectives. The Epilepsy Association places a strong emphasis on consumer choice, ensuring medical stability, and enhancing the quality of life for its clients. In 2022, 413 adults benefitted from these case management and other social services provided by the Epilepsy Association.

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Impact




October, 2024

The Epilepsy Association significantly impacts the lives of individuals affected by seizure disorders through specialized services tailored for children, teens, adults, and families. By offering community case management and mental health assessment services, the organization assists adult clients in establishing personalized goals and creating actionable plans aimed at improving their quality of life.

In 2022, the association aided 413 adults by connecting them with social workers who focus on consumer choice, medical stability, and life quality enhancement. This support empowers individuals not only to cope with their conditions but also to navigate daily challenges, fostering a sense of autonomy within the community. Through its dedicated efforts, the Epilepsy Association plays a crucial role in elevating the well-being and potential of those it serves.




This information is meant to be a general summary of Epilepsy Association. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$652,080 (2023)
Expenses
$705,180 (2023)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2023.

  • Investment Income: $26,203
  • Program Service Revenue: $168,257
  • Gross Receipts: $771,370

Assets and Liabilities:

  • Total Assets: $1,326,942
  • Total Liabilities: $144,782
  • Net Assets: $1,182,160

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Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

PROGRAM SERVICE REVENUE

Revenue

$168,257

Organization Details

Founding Year

1972

Principal Officer

Kelley S Needham

NTEE Category

Code: G54Z - Disease

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