Overview
What is Osteogenesis Imperfecta Foundation?
The Osteogenesis Imperfecta Foundation (OIF) is a nonprofit organization primarily dedicated to enhancing the lives of individuals affected by Osteogenesis Imperfecta (OI), a bone disorder. Established in 1970, the foundation is headquartered in Gaithersburg, Maryland, with a mission to improve their quality of life through research, education, awareness, and mutual support. To achieve this, OIF funds grants for OI-related research, awards fellowships to young investigators, collaborates with organizations such as the National Institutes of Health, and hosts virtual and in-person town hall meetings. They also provide medically verified information on OI through their website, respond to over 11,000 inquiries annually, and have launched an ECHO clinic to spread knowledge about rare bone conditions among healthcare professionals. The foundation's efforts extend to supporting cardiopulmonary research and organizing scientific meetings, aiming to develop better treatment options and a deeper understanding of OI.
Official website here: www.oif.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 97% (Four-Star out of Four Stars)
The Osteogenesis Imperfecta Foundation has received an impressive Four-Star rating from Charity Navigator, reflecting its high standards in accountability and finance. This score indicates a robust governance structure and transparent financial practices, with 100% of its board members being independent. The foundation excels in various areas, such as having no material diversion of assets and maintaining a clear conflict of interest policy.
Financially, the organization demonstrates strong management with a program expense ratio of 77.73%, indicating that a significant portion of its resources is directed toward its mission. Additionally, the fundraising efficiency of $0.062 shows that the foundation effectively raises funds without excessive costs. The working capital ratio of 0.84 years suggests that the organization is well-positioned to manage its operational needs.
Overall, the Osteogenesis Imperfecta Foundation exemplifies a well-run nonprofit with strong accountability and financial health. However, while no limitations were noted in the data, potential donors and supporters may still wish to explore the foundation's programs and impact further to understand how their contributions will be utilized.
This AI summary has been generated from information found on Charity Navigator.
Is Osteogenesis Imperfecta Foundation legitimate?
Osteogenesis Imperfecta Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Osteogenesis Imperfecta Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $246,343
Professional Fundraising Fees: $0
Other Salaries and Wages: $683,027
For more financial information, click here
Official website here: www.oif.org
What is the mission statement of Osteogenesis Imperfecta Foundation?
The Osteogenesis Imperfecta Foundation aims to enhance the quality of life for individuals affected by Osteogenesis Imperfecta (OI), a bone disorder, through research into treatments and a potential cure, education, awareness, and mutual support. The organization supports various research initiatives and provides funding for relevant projects, including the Michael Geisman Fellowship Program and the NIH Brittle Bone Disorders Consortium. The foundation also engages in patient-centered outcomes research to empower the OI community and improve healthcare for patients. Additionally, it hosts scientific meetings, provides medically verified information through its Information Center, and organizes OI Clinic and Bone Health Town Hall Meetings.
Official website here: www.oif.org
Who is the CEO of Osteogenesis Imperfecta Foundation?
Tracy Smith Hart is the President of Osteogenesis Imperfecta Foundation. The CEO's salary of Osteogenesis Imperfecta Foundation is $205,452 and their total compensation is $232,463.
Official website here: www.oif.org
What is the revenue of Osteogenesis Imperfecta Foundation?
Osteogenesis Imperfecta Foundation's revenue in 2022 was $2,112,061.
Official website here: www.oif.org
Who are the executives of Osteogenesis Imperfecta Foundation and what are their salaries?
The average compensation at Osteogenesis Imperfecta Foundation during 2022 was $84,488. There are 11 employees and 100 volunteers at Osteogenesis Imperfecta Foundation.
Here are 17 key members and their salaries (Osteogenesis Imperfecta Foundation's CEO's salary is $205,452 and their total compensation is $232,463):
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- Compensation: $205,452
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- Compensation: $117,319
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- Other: $5,976
Official website here: www.oif.org
Where can I find the form 990 for Osteogenesis Imperfecta Foundation?
Osteogenesis Imperfecta Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.oif.org
Learn more at the official website: www.oif.org
Mission Statement of Osteogenesis Imperfecta Foundation
The Osteogenesis Imperfecta Foundation, often referred to as OIF, is a non-profit organization dedicated to improving the quality of life for individuals affected by Osteogenesis Imperfecta (OI), a bone disorder. Their primary mission is to conduct research to find treatments and a potential cure for OI, provide education and awareness, and offer mutual support to those affected.
The OIF supports this mission by funding grants for research relevant to OI, awarding fellowships to post-doctoral trainees working on OI-related projects, and collaborating with initiatives such as the NIH Brittle Bone Disorders Consortium to better understand and expand treatment options. Through programs like the PCORI Engagement Awards, the OIF aims to provide doctors and care providers with information relevant to the OI community, empowering them to provide better care and allowing the OI community to advocate for themselves.
The OIF also hosts scientific meetings, virtual and in-person OI clinic and bone health town hall meetings, and collaborates with other organizations to bring together medical professionals treating patients with OI. They provide medically verified information related to OI through their website and respond to over 11,000 direct inquiries annually. The OIF's mission is to provide a comprehensive support system for individuals with OI, from research and treatment options to education and mutual support.
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Impact
October, 2024
The Osteogenesis Imperfecta Foundation significantly enhances the quality of life for individuals affected by Osteogenesis Imperfecta (OI) through comprehensive research, education, and support initiatives. By funding critical research programs such as the Michael Geisman Fellowship and engaging in partnerships with the Brittle Bone Disorders Consortium, the Foundation drives advancements in understanding and treating OI.
Education is a cornerstone of the Foundation's impact, providing medically-verified information through its Information Center, which addresses a wide array of topics from genetics to daily living strategies. This year alone, the Foundation responded to over 11,000 inquiries, demonstrating its role as a vital resource for patients, families, and healthcare providers.
The Foundation also plays a pivotal role in raising awareness and advocating for better healthcare practices. Through initiatives like the Rare Bone Disorder ECHO Clinic, it empowers healthcare providers with expert knowledge, leading to improved standards of care for rare bone conditions, including OI.
Moreover, its efforts in patient-centered outcomes research aim to fill gaps in previously overlooked areas of OI, such as associated health challenges beyond just bone fractures. This comprehensive approach not only enhances treatment options but also empowers the OI community to become advocates for their own health needs.
By facilitating scientific meetings and collaborative opportunities, the Foundation fosters a network of researchers and healthcare professionals focused on OI, ensuring that cutting-edge knowledge and treatment options remain accessible. Additionally, initiatives like the OI Registry encourage community engagement in research, further advancing the field’s understanding of this complex disorder.
Overall, the Osteogenesis Imperfecta Foundation's multifaceted approach—encompassing research, education, advocacy, and community engagement—significantly impacts the lives of those affected by OI, helping to create a more informed, supported, and empowered community.
This information is meant to be a general summary of Osteogenesis Imperfecta Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $234,313
- Gross Receipts: $2,422,065
Assets and Liabilities:
- Total Assets: $2,054,090
- Total Liabilities: $574,781
- Net Assets: $1,479,309
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Organization Details
Founding Year
1970
Phone
(301) 947-0083Principal Officer
Tracy Smith Hart
Main Address
656 QUINCE ORCHARD ROAD 650, GAITHERSBURG, MD, 20878
Website
www.oif.orgNTEE Category
Code: H50J - Medical research
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