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Illinois Spina Bifida Association

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 237062317 ✦ Chicago, IL ✦ Designated as a 501(c)(3)

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Overview

What is Illinois Spina Bifida Association?

The Illinois Spina Bifida Association is a dedicated nonprofit organization situated in Chicago, Illinois. Their primary goal is to enhance the lives of individuals and families affected by spina bifida, a neurological condition that typically manifests at birth. To achieve this mission, they employ a three-pronged strategy. Firstly, they offer skills development and independence programs, such as executive functioning coaching, vocational rehabilitation, and annual GoBabyGo workshops, empowering over 100 children and 47 adults and teens with essential tools for academic, driving, and employment pursuits. Secondly, they operate the Community-Clinic Connection program, which has helped over 1,200 individuals since 2017. This initiative aids people in finding medical care, navigating benefits, accessing community resources, and maintaining basic needs. The Illinois Spina Bifida Association's workforce consists of 14 dedicated individuals, and their reach extends beyond the office, impacting numerous lives in the community.


Official website here: www.i-sba.org

Is Illinois Spina Bifida Association legitimate?

Illinois Spina Bifida Association is a legitimate nonprofit organization registered as a 501(c)(3) entity. Illinois Spina Bifida Association submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $73,449
Professional Fundraising Fees: $0
Other Salaries and Wages: $68,815

For more financial information, click here


Official website here: www.i-sba.org

What is the mission statement of Illinois Spina Bifida Association?

The Illinois Spina Bifida Association, a non-profit organization, is committed to enhancing the lives of individuals with spina bifida, a neurological condition that often manifests at birth. They accomplish this mission through a three-pronged strategy. Firstly, they promote skills development and independence by offering executive functioning coaching, vocational rehabilitation, and annual GoBabyGo workshops, which provide custom electric cars to empower mobility and independence for children. Secondly, they facilitate the Community-Clinic Connection program, which has assisted over 1,200 individuals in finding medical care, navigating benefits, accessing community resources, and maintaining basic needs since 2017.


Official website here: www.i-sba.org

Who is the CEO of Illinois Spina Bifida Association?

Rebecca Rupnick is the Board Chair of Illinois Spina Bifida Association.


Official website here: www.i-sba.org

What is the revenue of Illinois Spina Bifida Association?

Illinois Spina Bifida Association's revenue in 2022 was $282,397.


Official website here: www.i-sba.org

Who are the executives of Illinois Spina Bifida Association and what are their salaries?

The average compensation at Illinois Spina Bifida Association during 2022 was $10,162. There are 14 employees and 100 volunteers at Illinois Spina Bifida Association.


Here are 13 key members and their salaries:


Rebecca Rupnick (Board Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kevin Dam (Vice Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jeremy Meinhardt (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Paul Gerber (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Meredith Barnes (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Patrick Flood (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Erika Holliday (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Erik Munkvold (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Michael O'Keefe (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Nathan Parris (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Elliott Quigley (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
James Marks (Treasurer (Resigned 12/2022))
  • Compensation: $0
  • Related: $0
  • Other: $0
Matt Larsen (Executive Director)
  • Compensation: $68,433
  • Related: $0
  • Other: $5,016


Official website here: www.i-sba.org

Where can I find the form 990 for Illinois Spina Bifida Association?

Illinois Spina Bifida Association's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.i-sba.org

Learn more at the official website: www.i-sba.org

Mission Statement of Illinois Spina Bifida Association

The Illinois Spina Bifida Association, a dedicated organization, focuses on enhancing the lives of individuals and families affected by spina bifida. This neurological condition, typically present at birth, affects the spine and can impact an individual's mobility and overall quality of life. The association strives to achieve its mission through a three-pronged strategy.

Firstly, the Illinois Spina Bifida Association is committed to promoting skills development and independence. They have implemented various programs to achieve this goal. For instance, their executive functioning coaching program has assisted over 47 adults and teens, equipping them with necessary skills, strategies, and tools to pursue academic, driving, and employment goals. Additionally, annual GoBabyGo workshops have provided custom electric ride-on cars to over 100 children, empowering greater mobility and independence. The Community-Clinic Connection program has also been instrumental in providing individualized coaching and referral services, helping individuals navigate medical care, benefits, and community resources, ensuring they can maintain their basic needs.

In essence, the Illinois Spina Bifida Association is a beacon of hope and support for those living with spina bifida, working tirelessly to improve their quality of life by promoting skills development, independence, and access to essential resources.

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Impact




October, 2024

The Illinois Spina Bifida Association significantly improves the quality of life for individuals and families living with spina bifida through targeted programs and resources. Their executive functioning coaching and vocational rehabilitation initiatives have equipped 47 adults and teens with essential skills and strategies, enabling them to reach their academic, driving, and employment aspirations.

Through the annual GoBabyGo workshops, the association has provided over 100 children with custom electric ride-on cars, promoting greater mobility and independence. Additionally, the Community-Clinic Connection program has facilitated more than 1,200 individualized coaching and referral cases since 2017. This program has been instrumental in helping individuals connect with medical care, navigate benefits, access community resources, and meet basic needs.

By focusing on skills development, accessibility, and community support, the Illinois Spina Bifida Association fosters empowerment and enhances the overall well-being of those affected by this lifelong condition.




This information is meant to be a general summary of Illinois Spina Bifida Association. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$282,397 (2022)
201120122013201420152016201720182019202020212022$0$90,000$180k$270k$360k
Expenses
$255,260 (2022)
201120122013201420152016201720182019202020212022$0$95,000$190k$285k$380k
Efficiency
2011201220132014201520162017201820192020202120220%15%30%45%71%

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $8,889
  • Gross Receipts: $291,975

Assets and Liabilities:

  • Total Assets: $400,544
  • Total Liabilities: $16,485
  • Net Assets: $384,059

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Organization Details

Founding Year

1969

Principal Officer

Rebecca Rupnick

Main Address

2211 N Oak Park Ave, Chicago, IL, 60707

NTEE Category

Code: G55Z - Disease

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