Overview
What is National Tay-Sachs And Allied Diseases Association Of Delaware Va?
The National Tay-Sachs And Allied Diseases Association Of Delaware Va is a small-scale, nonprofit organization, primarily situated in Jenkintown, Pennsylvania. Its primary focus is to raise awareness and educate the public about Tay-Sachs and allied diseases. They accomplish this through various means such as advertisements, newsletters, educational seminars, and an extensive online presence. In the past year, they have reached out to 75 students, distributed 500 brochures, and attracted over 10,000 visitors to their educational website. Additionally, they have provided 100 free screening certificates. The organization is also actively involved in supporting research, education, outreach, and awareness programs related to Tay-Sachs, Canavan, and allied diseases. They also fund carrier detection programs through fundraising efforts.
Official website here: www.tay-sachs.org
Is National Tay-Sachs And Allied Diseases Association Of Delaware Va legitimate?
National Tay-Sachs And Allied Diseases Association Of Delaware Va is a legitimate nonprofit organization registered as a 501(c)(3) entity. National Tay-Sachs And Allied Diseases Association Of Delaware Va submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $28,000
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.tay-sachs.org
What is the mission statement of National Tay-Sachs And Allied Diseases Association Of Delaware Va?
The National Tay-Sachs And Allied Diseases Association of Delaware Va is dedicated to supporting research, education, outreach, and awareness programs related to Tay-Sachs, Canavan, and allied diseases. A significant part of their mission involves fundraising for carrier detection programs. They actively engage in raising awareness and educating the public about these diseases through various means such as advertisements, newsletters, educational seminars, and their website. They have reached out to several communities, including speaking to 75 students and distributing educational materials.
Official website here: www.tay-sachs.org
Who is the CEO of National Tay-Sachs And Allied Diseases Association Of Delaware Va?
Rebecca Hunt Tantala is the Executive Di of National Tay-Sachs And Allied Diseases Association Of Delaware Va.
Official website here: www.tay-sachs.org
What is the revenue of National Tay-Sachs And Allied Diseases Association Of Delaware Va?
National Tay-Sachs And Allied Diseases Association Of Delaware Va's revenue in 2022 was $81,904.
Official website here: www.tay-sachs.org
Who are the executives of National Tay-Sachs And Allied Diseases Association Of Delaware Va and what are their salaries?
The average compensation at National Tay-Sachs And Allied Diseases Association Of Delaware Va during 2022 was $28,000. There is 1 employee and 6 volunteers at National Tay-Sachs And Allied Diseases Association Of Delaware Va.
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Official website here: www.tay-sachs.org
Where can I find the form 990 for National Tay-Sachs And Allied Diseases Association Of Delaware Va?
National Tay-Sachs And Allied Diseases Association Of Delaware Va's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.tay-sachs.org
Learn more at the official website: www.tay-sachs.org
Mission Statement of National Tay-Sachs And Allied Diseases Association Of Delaware Va
The National Tay-Sachs And Allied Diseases Association of Delaware Va is committed to supporting research, education, outreach, and awareness programs related to Tay-Sachs, Canavan, and the associated diseases. Their mission is twofold: firstly, they aim to fund carrier detection programs, and secondly, they strive to raise awareness about these diseases within the public. They achieve this through various means, such as advertising, newsletters, and educational seminars. The association spoke to 75 students, distributed 500 brochures, and had over 10,000 visits to their educational website. Additionally, they provided 100 free screening certificates to individuals interested in learning more about these diseases.
In a nutshell, the National Tay-Sachs And Allied Diseases Association of Delaware Va is an organization dedicated to fighting against these debilitating diseases. They achieve this by raising awareness, providing educational resources, and funding carrier detection programs. Their ultimate goal is to make a significant impact in the lives of those affected by Tay-Sachs, Canavan, and the associated diseases, and to support research that may lead to a cure. Their efforts are crucial in raising awareness and providing support to those affected by these diseases, ensuring that they are not forgotten and that progress is made towards a brighter future.
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Impact
October, 2024
The National Tay-Sachs and Allied Diseases Association of Delaware, VA plays a significant role in advancing awareness, education, and research related to Tay-Sachs disease, Canavan disease, and other allied diseases. Through their efforts, they have successfully reached out to the community, educating individuals about the importance of carrier detection and the impact of these genetic disorders.
Their initiatives include organizing educational seminars and distributing informative brochures, which have collectively engaged a broad audience—speaking to 75 students, for instance, and distributing 500 brochures enhances public understanding. Their educational website has garnered over 10,000 visits, indicating a strong interest in learning more about these conditions.
Additionally, by providing 100 free screening certificates, they have facilitated direct access to carrier testing, promoting early detection and potential preventive measures for families at risk. The organization’s comprehensive outreach and support programs not only foster a better understanding of Tay-Sachs and related diseases but also contribute to ongoing research, ensuring that advancements in treatment and prevention continue to develop.
This information is meant to be a general summary of National Tay-Sachs And Allied Diseases Association Of Delaware Va. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $42,989
- Gross Receipts: $209,474
Assets and Liabilities:
- Total Assets: $1,107,155
- Total Liabilities: $0
- Net Assets: $1,107,155
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Organization Details
Founding Year
1972
Phone
(215) 887-0877Principal Officer
Rebecca Hunt Tantala
Main Address
PO BOX 441, JENKINTOWN, PA, 19046
Website
www.tay-sachs.orgNTEE Category
Code: G80 - Disease
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