Overview
What is Congenital Adrenal Hyperplasia Research Education And Support Foundation?
The Congenital Adrenal Hyperplasia Research Education And Support Foundation is a nonprofit organization based in Union, New Jersey, dedicated to supporting individuals and families affected by Congenital Adrenal Hyperplasia (CAH). Their primary mission is to advance research for a better understanding of CAH, improve treatments, and strive for a cure. They accomplish this by educating the public and healthcare professionals about CAH, advocating for universal newborn screening, promoting immediate and appropriate emergency medical treatment, and ensuring comprehensive lifelong care. Additionally, they offer vital support services and resources to the global CAH community. Their activities include hosting conferences with top experts in the field, providing educational materials, and advocating for policies that benefit those affected by CAH. The organization operates with a team of 7 dedicated individuals.
Official website here: www.caresfoundation.org
What are the reviews and ratings of this charity?
Charity Navigator rating: 98% (Four-Star out of Four Star rating)
The Congenital Adrenal Hyperplasia Research Education And Support Foundation has received an impressive Four-Star rating from Charity Navigator, reflecting its strong commitment to accountability and financial health. With a perfect score of 100 in Accountability & Finance, the foundation demonstrates robust governance practices, including 100% independent board members and effective oversight mechanisms for financial statements. Its program expense ratio of nearly 85% indicates that the majority of funds are directed towards its mission-focused activities.
User feedback highlights the foundation's dedication to raising awareness about congenital adrenal hyperplasia (CAH), particularly during CAH Awareness Month. Donors appreciate the foundation's efforts in providing education and advocacy, as well as its commitment to supporting research aimed at finding better treatments and potential cures. The organization is recognized not just for its financial transparency but also for actively engaging with the community it serves.
While the foundation's strengths are well documented, its equity strategies score of 75 suggests there may be room for improvement in addressing equity issues within its practices. Overall, the foundation is highly regarded for its mission, financial stewardship, and community engagement, making it a reliable choice for donors interested in supporting CAH-related initiatives.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
What do the Facebook reviews say about Congenital Adrenal Hyperplasia Research Education And Support Foundation?
94% of 37 reviewers on Facebook recommend the Congenital Adrenal Hyperplasia Research Education And Support Foundation. Here is a summary of their reviews:
Many individuals express strong appreciation for the support provided by the organization, highlighting its reliability and the commitment of the team. Reviewers have praised the foundation's responsiveness and the sense of community it fosters among those affected by congenital adrenal hyperplasia.
Overall, the sentiment reflects a high level of satisfaction, with users feeling supported and valued by the organization. The foundation is recognized for its dedication to serving its members, showing that it truly makes a difference in the lives of those dealing with this condition.
This AI summary has been generated from reviews found on Facebook.
Is Congenital Adrenal Hyperplasia Research Education And Support Foundation legitimate?
Congenital Adrenal Hyperplasia Research Education And Support Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Congenital Adrenal Hyperplasia Research Education And Support Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $339,882
For more financial information, click here
Official website here: www.caresfoundation.org
What is the mission statement of Congenital Adrenal Hyperplasia Research Education And Support Foundation?
The Congenital Adrenal Hyperplasia Research Education and Support Foundation is a nonprofit organization dedicated to improving the lives of families and individuals affected by Congenital Adrenal Hyperplasia (CAH). They proactively advance research to gain a better understanding of CAH, develop improved treatments, and strive for a cure. The foundation educates both the public and healthcare professionals about all forms of CAH, advocates for universal newborn screening, promotes immediate and appropriate emergency medical treatment, and advocates for comprehensive lifelong care. Furthermore, they provide vital support services and resources to the global CAH community.
Official website here: www.caresfoundation.org
Who is the CEO of Congenital Adrenal Hyperplasia Research Education And Support Foundation?
Brian Stair is the Treasurer of Congenital Adrenal Hyperplasia Research Education And Support Foundation.
Official website here: www.caresfoundation.org
What is the revenue of Congenital Adrenal Hyperplasia Research Education And Support Foundation?
Congenital Adrenal Hyperplasia Research Education And Support Foundation's revenue in 2022 was $894,090.
Official website here: www.caresfoundation.org
Who are the executives of Congenital Adrenal Hyperplasia Research Education And Support Foundation and what are their salaries?
The average compensation at Congenital Adrenal Hyperplasia Research Education And Support Foundation during 2022 was $48,555. There are 7 employees and 50 volunteers at Congenital Adrenal Hyperplasia Research Education And Support Foundation.
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Official website here: www.caresfoundation.org
Where can I find the form 990 for Congenital Adrenal Hyperplasia Research Education And Support Foundation?
Congenital Adrenal Hyperplasia Research Education And Support Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.caresfoundation.org
Learn more at the official website: www.caresfoundation.org
Mission Statement of Congenital Adrenal Hyperplasia Research Education And Support Foundation
The Congenital Adrenal Hyperplasia Research Education and Support Foundation is a nonprofit organization dedicated to enhancing the lives of families and individuals affected by Congenital Adrenal Hyperplasia (CAH). Their mission is multifaceted, encompassing proactive advancements in research to gain a deeper understanding of CAH, develop better treatments, and ultimately, find a cure. The foundation also aims to educate the public and healthcare professionals about all forms of CAH, advocating for universal newborn screening, immediate and appropriate emergency medical treatment, and comprehensive lifelong care.
Beyond research and medical advocacy, the Congenital Adrenal Hyperplasia Research Education and Support Foundation provides vital support services and resources to the global CAH community. Their efforts include advocating for better treatments and care, educating both the public and healthcare professionals about CAH, and advocating for universal newborn screening. This commitment extends to ensuring immediate, appropriate emergency medical treatment and providing comprehensive lifelong care for individuals and families affected by CAH.
In addition to their medical advocacy, the foundation offers essential support services and resources to the CAH community worldwide. These services are crucial in enhancing the lives of those affected by CAH, providing them with the necessary resources to navigate their journey. The Congenital Adrenal Hyperplasia Research Education and Support Foundation's mission is a testament to their dedication to improving the lives of individuals and families affected by CAH, making a significant impact in the global fight against this condition.
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Impact
October, 2024
The Congenital Adrenal Hyperplasia Research Education And Support Foundation significantly impacts the lives of families and individuals affected by Congenital Adrenal Hyperplasia (CAH). By promoting research aimed at a deeper understanding of CAH, the foundation fosters the development of improved treatments and ultimately a cure for the condition. It plays a crucial role in educating both the public and healthcare professionals on all forms of CAH, ensuring informed awareness and better health outcomes.
Advocacy efforts for universal newborn screening demonstrate the foundation’s commitment to early detection and intervention, which are vital for effective management of CAH. Additionally, it emphasizes the importance of immediate and appropriate emergency medical treatment and comprehensive lifelong care, ensuring that patients receive the necessary support throughout their lives.
The foundation also offers vital resources and support services tailored to the unique challenges faced by the CAH community. Through educational materials and facilitating connections at conferences, it empowers individuals and families to advocate for themselves, enhancing their ability to navigate daily life with CAH. By providing access to top experts and fostering community engagement, the foundation strengthens the support network for those affected by this condition, creating a more informed and connected community.
This information is meant to be a general summary of Congenital Adrenal Hyperplasia Research Education And Support Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $3,262
- Program Service Revenue: $393,288
- Gross Receipts: $899,777
Assets and Liabilities:
- Total Assets: $754,496
- Total Liabilities: $153,099
- Net Assets: $601,397
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
ANNUAL GALA
Revenue
$314,276
FAMILY FUNDRAISERS
Revenue
$30,954
GOLF TOURNAMENT
Revenue
$35,882
WALKS
Revenue
$12,176
Organization Details
Founding Year
2000
Phone
(908) 364-0272Principal Officer
Brian Stair
Main Address
2414 MORRIS AVENUE 110, UNION, NJ, 07083
Website
www.caresfoundation.orgNTEE Category
Code: G114 - Disease
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