Overview
What is Platelet Disorder Support Association?
The Platelet Disorder Support Association (PDSA) is a nonprofit organization committed to improving the lives of individuals with immune thrombocytopenia (ITP) and other platelet disorders. In 2022, following two years of virtual events due to the pandemic, PDSA resumed hosting in-person activities, while still offering virtual support group meetings and events. Their efforts were marked by the first ITP conference since 2019, attended by over 160 people in Seattle, Washington, as well as virtual sessions accessible globally. PDSA also collaborated with international partners and hosted research-focused meetings at prominent scientific and medical conferences. They funded four innovative patient-centered ITP studies in 2022 and updated their educational booklets. Additionally, PDSA introduced a new program, "Membership Matters," featuring patient and caregiver testimonials. Their mission includes education, advocacy, research, and support, all aimed at enhancing the lives of people with platelet disorders.
Official website here: www.pdsa.org
What do the Facebook reviews say about Platelet Disorder Support Association?
94% of 325 reviewers on Facebook recommend the Platelet Disorder Support Association. Here is a summary of their reviews:
Many individuals express appreciation for the organization, especially highlighting its significance for those recently diagnosed with ITP (Immune Thrombocytopenic Purpura). Users feel that the support provided is invaluable, offering both practical advice for managing their condition and emotional validation for the unique symptoms encountered.
The general sentiment is overwhelmingly positive, with members finding comfort in the community and resources available through the association. Overall, the organization appears to effectively meet the needs of its users, providing valuable insights and support as they navigate their health journeys.
This AI summary has been generated from reviews found on Facebook.
Is Platelet Disorder Support Association legitimate?
Platelet Disorder Support Association is a legitimate nonprofit organization registered as a 501(c)(3) entity. Platelet Disorder Support Association submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $177,260
Professional Fundraising Fees: $0
Other Salaries and Wages: $402,722
For more financial information, click here
Official website here: www.pdsa.org
What is the mission statement of Platelet Disorder Support Association?
The Platelet Disorder Support Association (PDSA) is dedicated to improving the lives of individuals with immune thrombocytopenia (ITP) and other platelet disorders. This is achieved through various means, including education, advocacy, research, and support. The organization's mission is to enhance the quality of life for those affected by these conditions, aiming to provide them with the necessary resources and knowledge. In 2022, PDSA was active in hosting in-person events, webinars, and virtual support group meetings. They also funded innovative research studies and updated their educational resources. PDSA's activities include attending scientific/medical meetings, presenting educational programs, and organizing events like the ASH ITP Breakfast and ICON Annual Meeting. They also developed new programs, such as "Membership Matters," featuring patient and caregiver testimonials. PDSA's staff and medical advisors continue to provide support via their ITP Helpline.
Official website here: www.pdsa.org
Who is the CEO of Platelet Disorder Support Association?
Peter Pruitt is the Chair of Platelet Disorder Support Association.
Official website here: www.pdsa.org
What is the revenue of Platelet Disorder Support Association?
Platelet Disorder Support Association's revenue in 2022 was $1,850,328.
Official website here: www.pdsa.org
Who are the executives of Platelet Disorder Support Association and what are their salaries?
The average compensation at Platelet Disorder Support Association during 2022 was $72,498. There are 8 employees and 100 volunteers at Platelet Disorder Support Association.
Here are 9 key members and their salaries:
- Compensation: $174,760
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- Other: $20,419
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Official website here: www.pdsa.org
Where can I find the form 990 for Platelet Disorder Support Association?
Platelet Disorder Support Association's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.pdsa.org
Learn more at the official website: www.pdsa.org
Mission Statement of Platelet Disorder Support Association
The Platelet Disorder Support Association, or PDSA, is dedicated to enhancing the lives of individuals living with immune thrombocytopenia (ITP) and other platelet disorders. This nonprofit organization achieves its mission through a multifaceted approach, including education, advocacy, research, and support. The primary goal of PDSA is to empower and improve the quality of life for those affected by these disorders, offering them the resources and assistance they need to navigate their health journey.
PDSA's activities are centered around providing valuable information and support to patients and their families. In 2022, the organization hosted numerous in-person and virtual events, including patient connect support group meetings, walk/run events, and conferences. These events aimed to educate individuals about ITP and other platelet disorders, offering a platform for patients to connect and share their experiences. PDSA also collaborated with international organizations and experts during ITP Awareness Week, further expanding its reach and knowledge base.
Beyond education and support, PDSA is actively involved in advocacy and research. The organization attended and presented at various scientific/medical meetings, advocating for ITP patients and funding innovative research studies. PDSA's commitment to advancing the understanding and treatment of platelet disorders is evident in its ongoing efforts to raise awareness, educate the medical community, and support groundbreaking research. In addition, the organization updates and translates educational booklets, produces a newsletter, and offers resources such as the ITP Poke-R-Club for kids and a college scholarship program.
In summary, the Platelet Disorder Support Association is an invaluable resource for individuals living with ITP and other platelet disorders. Through education, advocacy, research, and support, PDSA empowers patients and their families, providing them with the tools and knowledge they need to navigate their health journey and improve their quality of life.
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Impact
October, 2024
The Platelet Disorder Support Association (PDSA) significantly enhances the lives of individuals with Immune Thrombocytopenia (ITP) and other platelet disorders through a multifaceted approach involving education, advocacy, research, and support. In 2022, PDSA marked a return to in-person events after the COVID-19 pandemic, successfully hosting its first ITP conference since 2019 in Seattle, attracting over 160 attendees. This event, alongside virtual programs available for ITP Awareness Month, reached more than 1,000 viewers.
PDSA's commitment to global awareness is evident through its collaborations, such as the webinar with the ITP Support Association in the UK and hosting the International ITP Alliance meeting with ambassadors from ten countries. The organization actively engages with the medical community by attending and presenting at esteemed scientific meetings, advocating for patient-centered research, and funding innovative studies focused on improving quality of life for those affected by ITP.
Additionally, PDSA provides valuable resources, including updated educational materials and treatment information available on its website. The "Membership Matters" program showcases personal stories from patients and caregivers, highlighting the positive impact of PDSA's support. The organization also maintains a helpline to assist patients and caregivers, ensuring that their needs are addressed comprehensively. Through regular initiatives like the ITP Poke-R-Club for kids, college scholarships, and informative newsletters, PDSA remains a vital resource and advocate for individuals facing platelet disorders.
This information is meant to be a general summary of Platelet Disorder Support Association. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $15,724
- Gross Receipts: $1,869,071
Assets and Liabilities:
- Total Assets: $5,188,299
- Total Liabilities: $372,657
- Net Assets: $4,815,642
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Organization Details
Founding Year
1998
Phone
(440) 746-9003Principal Officer
Peter Pruitt
Main Address
8751 BRECKSVILLE RD, BRECKSVILLE, OH, 44141
Website
www.pdsa.orgNTEE Category
Code: E61 - Health
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