Overview
What is Williams Syndrome Association Inc?
Williams Syndrome Association Inc, located at 243 BROADWAY, NEWARK, NJ, 07104, is a dedicated nonprofit organization. Their primary mission is to support individuals with Williams Syndrome, their families, and professionals working with them. They achieve this by developing programs and services, helping build strengths and overcome challenges from early childhood through adulthood. In addition, they raise public awareness and understanding of Williams Syndrome, and encourage and support research into various issues related to the condition. The association aims to advance the interests of individuals with Williams Syndrome throughout their lifespan, providing programming, resources, fostering partnerships and connections, and ensuring the organization's infrastructure has the capacity to meet its goals. With a staff of 16 individuals, the Williams Syndrome Association Inc is committed to making a significant impact in the lives of those affected by this syndrome.
Official website here: www.williams-syndrome.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 97% (Four-Star out of Four Star Rating)
The Williams Syndrome Association (WSA) has achieved a remarkable 97% score on Charity Navigator, reflecting its strong commitment to accountability and finance. The organization's entire score is based on its robust financial practices, including a 69.79% program expense ratio, meaning a significant portion of its funding goes directly towards its programs and services. Notably, WSA's board is composed entirely of independent members, enhancing its governance and accountability.
User feedback highlights the WSA as a vital resource for families affected by Williams syndrome, offering support, education, and community connections. Many families express gratitude for the organization's comprehensive information, educational resources, and annual conventions, which provide opportunities for networking and learning. Reviews consistently emphasize the organization's compassionate approach and its role in alleviating feelings of isolation among families navigating the challenges of this rare genetic disorder.
While the reviews are overwhelmingly positive, some feedback suggests that the WSA's current focus may lean more towards younger children with Williams syndrome, leaving a gap in resources for older individuals. Nonetheless, the overall sentiment indicates that the WSA is deeply valued by its community for its unwavering support and dedication to enhancing the lives of those affected by Williams syndrome.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Williams Syndrome Association Inc legitimate?
Williams Syndrome Association Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Williams Syndrome Association Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $220,607
Professional Fundraising Fees: $0
Other Salaries and Wages: $531,464
For more financial information, click here
Official website here: www.williams-syndrome.org
What is the mission statement of Williams Syndrome Association Inc?
The Williams Syndrome Association Inc's mission is centered around enhancing the lives of individuals with Williams Syndrome throughout their lifespan. They accomplish this by offering programming and resources, supporting research, fostering partnerships and connections, and ensuring their organizational infrastructure is equipped to guide the community towards its goals. This is achieved by providing information and emotional support to individuals with Williams Syndrome, their families, and professionals who work with them. The association also develops programs and services to help individuals build their strengths and overcome challenges. Additionally, they work towards increasing public awareness and understanding of Williams Syndrome, and encourage and support research into various issues related to the condition.
Official website here: www.williams-syndrome.org
Who is the CEO of Williams Syndrome Association Inc?
Mary Van Haneghan is the President of Williams Syndrome Association Inc.
Official website here: www.williams-syndrome.org
What is the revenue of Williams Syndrome Association Inc?
Williams Syndrome Association Inc's revenue in 2022 was $2,421,502.
Official website here: www.williams-syndrome.org
Who are the executives of Williams Syndrome Association Inc and what are their salaries?
The average compensation at Williams Syndrome Association Inc during 2022 was $47,004. There are 16 employees and 100 volunteers at Williams Syndrome Association Inc.
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- Compensation: $82,500
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Official website here: www.williams-syndrome.org
Where can I find the form 990 for Williams Syndrome Association Inc?
Williams Syndrome Association Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.williams-syndrome.org
Learn more at the official website: www.williams-syndrome.org
Mission Statement of Williams Syndrome Association Inc
The Williams Syndrome Association Inc is committed to enhancing the lives of individuals with Williams Syndrome throughout their lifespan. To achieve this, the organization provides programming and resources, supports research, fosters partnerships and connections, and ensures its infrastructure is capable of leading the community towards its goals.
In essence, the Williams Syndrome Association Inc serves as a vital support system for individuals with Williams Syndrome, their families, and professionals working with them. It offers emotional support and information, assisting them in navigating the unique challenges associated with this condition. The association also develops programs and services aimed at building strengths and addressing challenges from early childhood through adulthood.
Moreover, the Williams Syndrome Association Inc plays a significant role in raising public awareness and understanding of Williams Syndrome. By promoting understanding, the organization aims to foster an inclusive and supportive community for those affected by this condition. Additionally, the association encourages and supports research into various aspects related to Williams Syndrome, contributing to the advancement of knowledge and potential treatments.
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Impact
October, 2024
Williams Syndrome Association Inc significantly impacts the lives of individuals with Williams Syndrome and their families by fostering understanding and support throughout their lifespan. By providing essential information and emotional support, the organization connects families with resources that help navigate the challenges associated with the syndrome.
Programs developed by the association focus on building strengths in individuals from early childhood through adulthood, addressing unique educational and developmental needs. They encourage public awareness initiatives that enhance understanding of Williams Syndrome within the broader community, creating a more inclusive environment.
Moreover, the association is dedicated to advancing research on various aspects related to Williams Syndrome, ultimately aiming to improve outcomes and quality of life for affected individuals. Through their mission, they establish partnerships and connections that strengthen the community and embody a comprehensive approach to support and resource availability. This multifaceted impact is crucial for empowering individuals with Williams Syndrome and their families, ensuring they are well-informed and supported at every stage of life.
This information is meant to be a general summary of Williams Syndrome Association Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $57,546
- Program Service Revenue: $491,682
- Gross Receipts: $2,506,334
Assets and Liabilities:
- Total Assets: $2,892,153
- Total Liabilities: $268,814
- Net Assets: $2,623,339
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
CONVENTION
Revenue
$489,801
REGIONAL PROGRAMS AND
Revenue
$1,881
Organization Details
Founding Year
1993
Phone
(248) 509-0060Principal Officer
Mary Van Haneghan
Main Address
243 BROADWAY 9188, NEWARK, NJ, 07104
Website
www.williams-syndrome.orgNTEE Category
Code: G20Z - Disease
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