Overview
What is The Myelodysplastic Syndromes Foundation?
The Myelodysplastic Syndromes Foundation, identified as MDS Foundation Inc, is an international organization based in Yardville, New Jersey. Established by a group of physicians and researchers, its primary mission is to serve as a hub for sharing information related to Myelodysplastic Syndromes (MDS) and related myeloid neoplasms. The foundation focuses on supporting patients and healthcare providers through various means, such as patient information initiatives, newsletters, and digital platforms. The team communicates daily with patients and caregivers, providing guidance and education on MDS, treatment options, and clinical trials. On-site patient liaison support is also available, including referrals to MDS Centers of Excellence and responses to emails and social media inquiries. The foundation's workforce comprises 9 dedicated individuals, committed to accelerating progress in the control and cure of MDS diseases.
Official website here: www.mds-foundation.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 97% (Four-Star out of Four Star rating)
The Myelodysplastic Syndromes Foundation has achieved an impressive 97% score from Charity Navigator, reflecting its strong accountability and financial practices. The organization boasts a fully independent board and excels in various metrics, including an excellent program expense ratio and fundraising efficiency. This high rating illustrates the foundation's commitment to transparency and effective use of its resources.
User reviews from Great Nonprofits highlight the foundation's significant contributions to both scientific research and patient advocacy. Board members have noted its successful financial turnaround and expansion of programs aimed at fostering global patient support groups. The foundation has also played a crucial role in developing important prognostic tools for medical professionals, showcasing its dedication to advancing understanding of Myelodysplastic Syndromes.
While the organization has faced financial challenges in the past, it has successfully navigated these issues through leadership changes and strategic improvements. Reviewers appreciate the foundation's strong focus on education and support for patients and healthcare professionals, confirming its unique position as the only foundation solely dedicated to Myelodysplastic Syndromes.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is The Myelodysplastic Syndromes Foundation legitimate?
The Myelodysplastic Syndromes Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Myelodysplastic Syndromes Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $147,110
Professional Fundraising Fees: $0
Other Salaries and Wages: $373,122
For more financial information, click here
Official website here: www.mds-foundation.org
What is the mission statement of The Myelodysplastic Syndromes Foundation?
The Myelodysplastic Syndromes Foundation, established by a group of international physicians and researchers, is dedicated to providing continuous information exchange related to MDS. Its mission, as an international organization, is to support and educate patients and healthcare providers, while also driving innovative research in the fields of MDS and related myeloid neoplasms. The goal is to accelerate progress towards controlling and curing these diseases. In 2022, the foundation continued its extensive patient advocacy outreach initiatives, communicating daily with patients and caregivers through various platforms, including patient information via the "Building Blocks of Hope" initiative, newsletters, and social media campaigns. On-site patient liaison support is also provided, offering referrals to MDS Centers of Excellence, information on current treatment options and clinical trials, and responding to emails and social media inquiries.
In summary, The Myelodysplastic Syndromes Foundation focuses on providing information, support, and education to patients and healthcare providers, while driving research to control and cure MDS and related myeloid neoplasms. The organization's outreach initiatives aim to support and empower patients and their caregivers through various means of communication.
Official website here: www.mds-foundation.org
Who is the CEO of The Myelodysplastic Syndromes Foundation?
Tracey A Iraca is the Executive Di of The Myelodysplastic Syndromes Foundation.
Official website here: www.mds-foundation.org
What is the revenue of The Myelodysplastic Syndromes Foundation?
The Myelodysplastic Syndromes Foundation's revenue in 2022 was $2,521,375.
Official website here: www.mds-foundation.org
Who are the executives of The Myelodysplastic Syndromes Foundation and what are their salaries?
The average compensation at The Myelodysplastic Syndromes Foundation during 2022 was $57,804. There are 9 employees and 30 volunteers at The Myelodysplastic Syndromes Foundation.
Here are 8 key members and their salaries:
- Compensation: $93,661
- Related: $0
- Other: $0
- Compensation: $48,741
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.mds-foundation.org
Where can I find the form 990 for The Myelodysplastic Syndromes Foundation?
The Myelodysplastic Syndromes Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.mds-foundation.org
Learn more at the official website: www.mds-foundation.org
Mission Statement of The Myelodysplastic Syndromes Foundation
The Myelodysplastic Syndromes Foundation, established by a group of international physicians and researchers, is committed to advancing the understanding and treatment of Myelodysplastic Syndromes (MDS) and related myeloid neoplasms. This nonprofit organization's primary mission is to support and educate patients and healthcare providers, with a focus on promoting innovative research in the field. The Myelodysplastic Syndromes Foundation aims to accelerate progress towards controlling and curing these diseases, ultimately leading to improved outcomes for affected individuals.
In pursuit of its mission, The Myelodysplastic Syndromes Foundation engaged in extensive patient advocacy outreach initiatives in 2022. The organization's staff communicates daily with patients and their caregivers, providing support and education through various formats. These include patient information through the Foundation's "Building Blocks of Hope" initiative, MDS Foundation newsletters, and social media campaigns. On-site patient liaison support is also provided, including referrals to MDS Centers of Excellence, information on current treatment options and available clinical trials, responses to email and social media inquiries, and facilitating connections between MDS patients upon request. By leveraging these outreach efforts, The Myelodysplastic Syndromes Foundation continues to make a significant impact in the lives of those affected by MDS.
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Impact
October, 2024
The Myelodysplastic Syndromes Foundation plays a critical role in advancing the understanding and treatment of myelodysplastic syndromes (MDS). By fostering continuous dialogue among an international network of physicians and researchers, the foundation provides an essential platform for sharing the latest research and clinical insights related to MDS.
In 2022, the foundation amplified its patient advocacy efforts, actively engaging with patients and caregivers to offer support, education, and resources. Through their "Building Blocks of Hope" initiative, newsletters, and online platforms, they disseminate vital information that helps demystify MDS. Personalized support is also a cornerstone of their impact, as they connect patients with MDS Centers of Excellence, inform them about current treatment options, and highlight available clinical trials.
By responding to inquiries through email and social media, the foundation fosters a sense of community among MDS patients, facilitating connections that are crucial for emotional support. Overall, their commitment to education, research, and patient advocacy significantly enhances the lives of those affected by MDS and contributes to the ongoing quest for improved treatments and potential cures for these complex disorders.
This information is meant to be a general summary of The Myelodysplastic Syndromes Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $8,487
- Program Service Revenue: $405,541
- Gross Receipts: $3,072,749
Assets and Liabilities:
- Total Assets: $5,422,226
- Total Liabilities: $281,335
- Net Assets: $5,140,891
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
PROGRAM INCOME
Revenue
$405,541
Organization Details
Founding Year
1999
Phone
(800) 637-0839Principal Officer
Tracey A Iraca
Main Address
4573 S BROAD STREET SUITE 150, YARDVILLE, NJ, 08620
Website
www.mds-foundation.orgNTEE Category
Code: G30 - Disease
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