Overview
What is Cystic Fibrosis Family Connection Inc?
Cystic Fibrosis Family Connection Inc is a nonprofit organization situated in Rochester, New York, dedicated to assisting individuals and families affected by cystic fibrosis. They accomplish this by organizing events to facilitate information sharing and mutual support, helping individuals navigate the challenges associated with the disease. Furthermore, the organization extends financial aid for personal expenses during hospitalizations, which are distributed through hospital staff, ensuring discretion and confidentiality. The primary beneficiaries of their services are people diagnosed with cystic fibrosis, their families, and their caregivers. Due to HIPAA regulations, the organization does not disclose the names of the recipients of its financial assistance.
Official website here: www.cffamilyconnection.org
Is Cystic Fibrosis Family Connection Inc legitimate?
Cystic Fibrosis Family Connection Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Cystic Fibrosis Family Connection Inc submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Official website here: www.cffamilyconnection.org
What is the mission statement of Cystic Fibrosis Family Connection Inc?
Cystic Fibrosis Family Connection Inc's mission is centered around supporting individuals living with cystic fibrosis and their families. They accomplish this by organizing events to facilitate the exchange of information and provide a platform for coping with the disease's challenges. Additionally, the organization offers financial assistance to help cover personal expenses during hospitalizations. This aid is distributed through hospital staff, ensuring confidentiality in compliance with HIPAA regulations. Their outreach extends to those directly affected by cystic fibrosis, including patients, their families, and caregivers, regardless of their location.
Official website here: www.cffamilyconnection.org
Who is the CEO of Cystic Fibrosis Family Connection Inc?
Karly Schuhart is the President of Cystic Fibrosis Family Connection Inc.
Official website here: www.cffamilyconnection.org
What is the revenue of Cystic Fibrosis Family Connection Inc?
Cystic Fibrosis Family Connection Inc's revenue in 2023 was $10,513.
Official website here: www.cffamilyconnection.org
Who are the executives of Cystic Fibrosis Family Connection Inc and what are their salaries?
Here are 6 key members and their salaries:
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Official website here: www.cffamilyconnection.org
Where can I find the form 990EZ for Cystic Fibrosis Family Connection Inc?
Cystic Fibrosis Family Connection Inc's most recent form 990EZ was submitted in 2023 and can be accessed here.
Official website here: www.cffamilyconnection.org
Learn more at the official website: www.cffamilyconnection.org
Mission Statement of Cystic Fibrosis Family Connection Inc
Cystic Fibrosis Family Connection, a dedicated organization, focuses on supporting individuals living with cystic fibrosis and their families and caregivers. Their mission is twofold. Firstly, they organize events that facilitate the exchange of information and provide a platform for individuals to cope with the challenges associated with the disease. Secondly, they offer financial assistance to cover personal expenses during hospitalizations. This aid is distributed through hospital staff, ensuring confidentiality in adherence to HIPAA regulations. By catering to this specific audience, Cystic Fibrosis Family Connection aims to provide a supportive network and alleviate some of the financial burdens that often accompany the treatment of cystic fibrosis.
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Impact
August, 2024
Cystic Fibrosis Family Connection Inc's impact is significant as they provide crucial support to people living with cystic fibrosis and their families. By sponsoring events that facilitate information exchange and coping strategies for the challenges of the disease, they create a sense of community and understanding among those affected. Additionally, offering financial assistance for personal expenses during hospitalizations ensures that individuals can focus on their health without added stress. By targeting individuals living with cystic fibrosis, their families, and caregivers, this organization plays a vital role in improving the quality of life for those dealing with this condition.
This information is meant to be a general summary of Cystic Fibrosis Family Connection Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $79
- Gross Receipts: $11,619
Assets and Liabilities:
- Total Assets: $82,657
- Total Liabilities: $0
- Net Assets: $82,657
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Organization Details
Phone
(585) 764-1746Principal Officer
Karly Schuhart
Main Address
PO Box 93328, Rochester, NY, 14692
Website
www.cffamilyconnection.orgNTEE Category
Code: L20Z - Housing
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