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Hht Foundation International Inc

Cure Hht

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 223115041 ✦ Monkton, MD ✦ Designated as a 501(c)(3)

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Overview

What is Hht Foundation International Inc?

Hht Foundation International Inc, operating under the name Cure HHT, is a nonprofit organization headquartered in Monkton, Maryland. Their primary mission is to discover a cure for Hereditary Hemorrhagic Telangiectasia (HHT), aiming to save lives and improve the quality of life for individuals and families affected by this condition. They fund research to better understand the disease mechanism, explore novel therapeutic approaches, and conduct translational research leading to multi-center trials. Every other year, they host the HHT International Scientific Conference. With a dedicated team of 13 employees, Hht Foundation International Inc is committed to making a significant impact in the field of HHT research.


Official website here: www.curehht.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 100% (Four-Star out of Four Star Rating)

Hht Foundation International Inc has achieved an impressive Four-Star rating from Charity Navigator, reflecting its strong accountability and financial health. The organization has demonstrated a commitment to transparency with 100% independent board members and strong oversight mechanisms in place, such as an audit and oversight committee. The foundation's financial metrics indicate a solid program expense ratio of 83.58%, showcasing its effective allocation of resources towards its mission.

User feedback highlights the significant impact of the foundation on individuals suffering from Hereditary Hemorrhagic Telangiectasia (HHT). One client noted that without the foundation, essential medical facilities known as Centers of Excellence would not exist, emphasizing its role in improving the quality of care and facilitating critical research. The foundation has been pivotal in raising awareness about HHT, which remains under-diagnosed despite its genetic prevalence.

There are no notable limitations mentioned in the user reviews or within the financial data, indicating that the Hht Foundation International Inc is well-regarded in its field and continues to serve a crucial role in supporting patients and advancing medical research related to HHT.


This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.

Is Hht Foundation International Inc legitimate?

Hht Foundation International Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Hht Foundation International Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $311,048
Professional Fundraising Fees: $0
Other Salaries and Wages: $346,491

For more financial information, click here


Official website here: www.curehht.org

What is the mission statement of Hht Foundation International Inc?

The Hht Foundation International Inc's mission is centered around finding a cure for Hereditary Hemorrhagic Telangiectasia (HHT), with the aim of saving lives and enhancing the well-being of those affected by this condition, along with their families. The organization's activities primarily focus on funding research to deepen the understanding of HHT's mechanism, develop novel therapeutic approaches, and translate these findings into multi-center trials for potential treatments. In addition, the Hht Foundation International Inc organizes the HHT International Scientific Conference every other year to facilitate discussions and advancements in the field.


Official website here: www.curehht.org

Who is the CEO of Hht Foundation International Inc?

Marianne Clancy is the Member of Hht Foundation International Inc.


Official website here: www.curehht.org

What is the revenue of Hht Foundation International Inc?

Hht Foundation International Inc's revenue in 2022 was $2,377,085.


Official website here: www.curehht.org

Who are the executives of Hht Foundation International Inc and what are their salaries?

The average compensation at Hht Foundation International Inc during 2022 was $50,580. There are 13 employees at Hht Foundation International Inc.


Here are 20 key members and their salaries:


Anthony Anzell Phd (Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Scott Boatwright (Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Gabriella Choi (Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Howard Lichtig (Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jim Lapides (Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Marijo Mccune (Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Brandon Probst (Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Scott Olitsky Md (Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dennis Sprecher (Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Karen Silber Weissel Phd (Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ann Trussell (Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Robert Berkman (Member Emeritus)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dennis Routledge (Member Emeritus)
  • Compensation: $0
  • Related: $0
  • Other: $0
John Dunn (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Benjamin Holt (Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Marc Topaz (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Savanah Schott (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sara Palmer Phd (Past- President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Marianne Clancy (Executive Director)
  • Compensation: $153,068
  • Related: $0
  • Other: $30,480
Nicole Schaefer (Chief Operating Officer)
  • Compensation: $89,583
  • Related: $0
  • Other: $22,967


Official website here: www.curehht.org

Where can I find the form 990 for Hht Foundation International Inc?

Hht Foundation International Inc's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.curehht.org

Learn more at the official website: www.curehht.org

Mission Statement of Hht Foundation International Inc

The Hht Foundation International Inc is dedicated to achieving a significant milestone in the medical field: finding a cure for Hereditary Hemorrhagic Telangiectasia (HHT). This nonprofit organization's mission goes beyond just finding a cure; it is also committed to saving lives and improving the well-being of individuals and families affected by this condition. By supporting research, the foundation aims to gain a better understanding of the disease's underlying mechanisms, develop novel therapeutic approaches, and translate these findings into multi-center trials. The Hht Foundation International Inc also organizes the HHT International Scientific Conference every other year, providing a platform for researchers and professionals to share their insights and collaborate on advancements in this field.

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Impact




October, 2024

HHT Foundation International Inc significantly impacts the lives of individuals and families affected by Hereditary Hemorrhagic Telangiectasia (HHT) through its dedicated mission to find a cure and enhance overall well-being. The organization prioritizes funding research aimed at understanding the complexities of HHT, paving the way for novel therapeutic approaches to treatment and management.

By supporting research initiatives, HHT Foundation plays a crucial role in advancing scientific knowledge and facilitating translational research that leads to multi-center clinical trials. The biannual HHT International Scientific Conference fosters collaboration among experts, promoting innovation and progress in HHT research. This commitment not only contributes to the scientific community but also brings hope to those impacted by HHT, ultimately saving lives and improving health outcomes.




This information is meant to be a general summary of Hht Foundation International Inc. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$2,377,085 (2022)
Expenses
$1,884,387 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $15,516
  • Program Service Revenue: $23,936
  • Gross Receipts: $2,629,278

Assets and Liabilities:

  • Total Assets: $3,323,287
  • Total Liabilities: $178,682
  • Net Assets: $3,144,605

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Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

CONFERENCE FEES

Revenue

$23,936

Organization Details

Founding Year

1990

Principal Officer

Marianne Clancy

Main Address

PO BOX 329, MONKTON, MD, 21111

NTEE Category

Code: S41Z - Community improvement

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