Overview
What is Histiocytosis Association Inc?
The Histiocytosis Association Inc, a nonprofit organization based in Pitman, New Jersey, is committed to raising awareness about Histiocytic disorders, offering education, and providing emotional support to patients and their families. They utilize their online platform, educational videos, printed materials, and e-communications to disseminate information. Their Circle of Friends program, social media activity, telephone helpline, and Histio Warriors Directory offer emotional support and connect patients and families privately. The organization also maintains a Physician Directory to help patients and doctors find experienced physicians in their area. Their primary mission is to fund research, aiming to develop better treatments and ultimately, a cure for Histiocytic disorders. With a dedicated team of 9 individuals, the Histiocytosis Association Inc strives to make a significant impact in patients' lives and the medical community.
Official website here: www.histio.org
What are the reviews and ratings of this charity?
98% rating from Charity Navigator.
The Histiocytosis Association Inc has earned a Four-Star out of Four Star rating from Charity Navigator, reflecting its strong accountability and financials, with a perfect score in this area. The organization maintains a fully independent board and has robust policies in place for governance and financial oversight. Its program expense ratio is also impressive, indicating a significant portion of resources is directed towards its mission.
User feedback highlights the organization’s essential role in providing support, education, and community for individuals affected by histiocytic disorders. Many reviewers express heartfelt gratitude for the connection and guidance offered by the association, with testimonials emphasizing its impact on families coping with challenging diagnoses. The positive community engagement and dedication to patient education are frequently praised.
Some limitations are noted in the areas of leadership and adaptability, where the organization scored lower compared to its other metrics. However, overall, it is viewed positively by both users and experts, indicating a strong commitment to its mission and the communities it serves. The Histiocytosis Association stands out for its effective outreach and support, making a meaningful difference in the lives of those impacted by histiocytosis.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Histiocytosis Association Inc legitimate?
Histiocytosis Association Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Histiocytosis Association Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $389,872
For more financial information, click here
Official website here: www.histio.org
What is the mission statement of Histiocytosis Association Inc?
The Histiocytosis Association Inc is committed to raising awareness about histiocytic disorders, offering education and emotional support, and funding research aimed at better treatments and a potential cure. They achieve this mission by providing educational resources through their online presence, educational videos, printed materials, and e-communications. Emotional support is offered through programs such as the Circle of Friends program, social media activities, a telephone helpline, and a private, secure patient directory known as Histio Warriors. They also maintain a physician directory, connecting patients with experienced doctors in their area. The Association advocates for patients with histiocytic disorders throughout the year, with a significant focus during September's Histiocytosis Awareness Month.
Official website here: www.histio.org
Who is the CEO of Histiocytosis Association Inc?
Deanna Fournier is the Chairwoman of Histiocytosis Association Inc.
Official website here: www.histio.org
What is the revenue of Histiocytosis Association Inc?
Histiocytosis Association Inc's revenue in 2022 was $987,719.
Official website here: www.histio.org
Who are the executives of Histiocytosis Association Inc and what are their salaries?
The average compensation at Histiocytosis Association Inc during 2022 was $43,319. There are 9 employees and 145 volunteers at Histiocytosis Association Inc.
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- Compensation: $88,440
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Official website here: www.histio.org
Where can I find the form 990 for Histiocytosis Association Inc?
Histiocytosis Association Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.histio.org
Learn more at the official website: www.histio.org
Mission Statement of Histiocytosis Association Inc
The Histiocytosis Association Inc is committed to raising awareness about histiocytic disorders, offering education, and providing emotional support to those affected. Their mission extends to funding research aimed at improving treatments and ultimately finding a cure for these rare conditions. Through their online presence at www.histio.org, educational videos, printed materials, and e-communications, they disseminate information to patients, their families, and the medical community. Emotional support is a key aspect of their mission, which they provide through their Circle of Friends program, social media activities, a telephone-based helpline, and the Histio Warriors Directory, a secure platform connecting patients and their families. Additionally, the Histiocytosis Association Inc advocates for patients with histiocytic disorders throughout the year, particularly during September's Histiocytosis Awareness Month, to raise funds and increase awareness about these conditions.
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Impact
October, 2024
Histiocytosis Association Inc significantly contributes to the understanding and management of histiocytic disorders. By raising awareness about these rare diseases, the organization enhances public and medical community knowledge, facilitating better recognition and treatment options for affected individuals.
Through comprehensive educational initiatives, including online resources, printed materials, and educational videos, the association empowers patients and families with crucial information. This outreach is complemented by emotional support programs, such as the Circle of Friends and a dedicated helpline, which foster connections in a secure and understanding environment.
The organization also plays a vital role in connecting patients with experienced healthcare professionals via its physician directory, ensuring that individuals can find appropriate care. Furthermore, Histiocytosis Association Inc advocates for patients, especially during Histiocytosis Awareness Month, mobilizing efforts to generate funds and increase visibility for these conditions. Overall, its work promotes ongoing research aimed at developing better treatments and ultimately finding a cure for histiocytic disorders.
This information is meant to be a general summary of Histiocytosis Association Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $14,518
- Gross Receipts: $987,719
Assets and Liabilities:
- Total Assets: $2,126,177
- Total Liabilities: $141,675
- Net Assets: $1,984,502
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Organization Details
Founding Year
1986
Phone
(856) 589-6606Principal Officer
Deanna Fournier
Main Address
332 NORTH BROADWAY, PITMAN, NJ, 08071
Website
www.histio.orgNTEE Category
Code: G80 - Disease
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