Overview
What is Narcolepsy Network?
Narcolepsy Network is a nonprofit organization dedicated to enhancing the lives of individuals living with narcolepsy. Their primary objectives include raising public awareness to facilitate early diagnoses, advocating for people with narcolepsy (PWNS), promoting and supporting research related to narcolepsy, and providing education and resources to both the affected individuals and the general public. To achieve these goals, Narcolepsy Network offers weekly virtual support groups, funds financial assistance for in-person support groups, and organizes awareness programs such as virtual clinical update webinar series. The organization's mission is to educate, support, and promote efficient diagnosis, while encouraging and advancing scientific research for the cause, treatment, prevention, and potential cure of narcolepsy.
Official website here: www.narcoplepsynetwork.org
Is Narcolepsy Network legitimate?
Narcolepsy Network is a legitimate nonprofit organization registered as a 501(c)(3) entity. Narcolepsy Network submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $117,472
For more financial information, click here
Official website here: www.narcoplepsynetwork.org
What is the mission statement of Narcolepsy Network?
The Narcolepsy Network is committed to enhancing the lives of individuals affected by narcolepsy, encompassing both children and adults. Their objectives include boosting public awareness to facilitate early diagnoses, advocating for people with narcolepsy, promoting and supporting related research, and providing education and resources to both affected individuals and the general public. The network is organized to educate the public about narcolepsy, offer support to individuals with the condition, promote efficient diagnoses, encourage scientific research for causes, treatments, prevention, and cure, and establish support groups through the formation of chapters. They fund these endeavors through various solicitation and fundraising activities.
Official website here: www.narcoplepsynetwork.org
Who is the CEO of Narcolepsy Network?
Keith Harper is the President of Narcolepsy Network.
Official website here: www.narcoplepsynetwork.org
What is the revenue of Narcolepsy Network?
Narcolepsy Network's revenue in 2022 was $395,403.
Official website here: www.narcoplepsynetwork.org
Who are the executives of Narcolepsy Network and what are their salaries?
The average compensation at Narcolepsy Network during 2022 was $58,736. There are 2 employees and 20 volunteers at Narcolepsy Network.
Here are 6 key members and their salaries:
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Official website here: www.narcoplepsynetwork.org
Where can I find the form 990 for Narcolepsy Network?
Narcolepsy Network's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.narcoplepsynetwork.org
Learn more at the official website: www.narcoplepsynetwork.org
Mission Statement of Narcolepsy Network
Narcolepsy Network, a dedicated organization, is committed to enhancing the lives of individuals affected by narcolepsy. Their mission encompasses several key objectives. Firstly, they aim to increase public awareness about narcolepsy, fostering early diagnoses to help individuals receive necessary treatment. Secondly, Narcolepsy Network advocates for people living with narcolepsy (PWNS), ensuring their voices are heard and their needs are met.
The organization also promotes and supports research related to narcolepsy. Their goal is to encourage scientific advancements in the understanding of the condition's causes, treatments, prevention, and potential cures. To achieve this, Narcolepsy Network forms chapters and raises funds for these purposes.
In addition to these objectives, Narcolepsy Network provides education and resources to both PWNS and the general public. This is done through various means, such as weekly virtual support groups, financial assistance for in-person support groups, and awareness programs like virtual clinical update webinar series. By offering these resources, Narcolepsy Network seeks to empower individuals living with narcolepsy and increase understanding of the condition within the broader community.
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Impact
October, 2024
Narcolepsy Network significantly enhances the lives of individuals affected by narcolepsy through a multifaceted approach. By increasing public awareness, the organization plays a crucial role in fostering early diagnoses, ensuring that those with the condition receive timely medical intervention and support. Advocacy efforts represent the voices of all people with narcolepsy, creating a strong community that seeks to improve policies and access to care.
The Network promotes and supports research efforts, aiming to advance scientific understanding of narcolepsy, which is vital for the development of effective treatments and, ultimately, a cure. Educational initiatives target both individuals living with narcolepsy and the broader public, facilitating a deeper understanding of the disorder and reducing stigma.
Furthermore, Narcolepsy Network offers essential resources such as weekly virtual support groups and financial assistance for in-person gatherings, helping to foster community and connection among individuals facing similar challenges. Awareness programs, including a series of virtual clinical updates, provide valuable information and keep the community informed about the latest developments in research and treatment options. Overall, Narcolepsy Network is a pivotal force in improving the quality of life for those affected by narcolepsy.
This information is meant to be a general summary of Narcolepsy Network. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $4,065
- Program Service Revenue: $55,919
- Gross Receipts: $396,302
Assets and Liabilities:
- Total Assets: $499,771
- Total Liabilities: $85,159
- Net Assets: $414,612
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
CONFERENCE
Revenue
$43,135
MEMBERSHIP DUES
Revenue
$12,784
Organization Details
Founding Year
1986
Phone
(888) 292-6522Principal Officer
Keith Harper
Main Address
3242 NE 3RD AVE 1101, CAMAS, WA, 98607
Website
www.narcoplepsynetwork.orgNTEE Category
Code: G99Z - Disease
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