Overview
What is Neurofibromatosis Midwest?
Neurofibromatosis Midwest is a nonprofit organization situated in St. Charles, Illinois. Their primary mission is to enhance the lives of individuals and families affected by neurofibromatosis, a genetic disorder. They achieve this by providing direct grants for research and research support to improve understanding and treatment options. Additionally, they collaborate with clinics in their region to improve access to care for neurofibromatosis patients. Beyond this, Neurofibromatosis Midwest offers education and support to the community, focusing on states like Illinois, Indiana, Iowa, Kentucky, Wisconsin, and the eastern half of Missouri. Their work includes improving clinics, raising awareness, funding research, and providing educational resources, all with the ultimate goal of improving the quality of life for those affected by neurofibromatosis.
Official website here: www.nfmidwest.org
What do the Facebook reviews say about Neurofibromatosis Midwest?
96% of 29 reviewers on Facebook recommend Neurofibromatosis Midwest. Here is a summary of their reviews:
Many individuals express gratitude for the support and resources provided by this nonprofit, particularly highlighting its significance for families affected by Neurofibromatosis. One reviewer, who personally deals with NF1 and has a child who may have it, felt reassured knowing there is help available. This sentiment is echoed throughout the reviews, emphasizing the nonprofit's role in offering much-needed assistance and a sense of community.
The overall impression indicates that this organization effectively meets the needs of those impacted by Neurofibromatosis, fostering hope and providing valuable resources for families navigating challenges associated with the condition.
This AI summary has been generated from reviews found on Facebook.
Is Neurofibromatosis Midwest legitimate?
Neurofibromatosis Midwest is a legitimate nonprofit organization registered as a 501(c)(3) entity. Neurofibromatosis Midwest submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $84,246
For more financial information, click here
Official website here: www.nfmidwest.org
What is the mission statement of Neurofibromatosis Midwest?
Neurofibromatosis Midwest, an organization dedicated to neurofibromatosis, aims to enhance the lives of individuals and families affected by the condition. They focus on improving clinics, increasing awareness, advancing research, providing education, and offering support in various states. The organization directly funds research and supports clinical improvements to enhance care access. Additionally, they collaborate with the NF community and other resources to improve the quality of life and care for neurofibromatosis patients.
Official website here: www.nfmidwest.org
Who is the CEO of Neurofibromatosis Midwest?
Diana Haberkamp is the Board Chair of Neurofibromatosis Midwest.
Official website here: www.nfmidwest.org
What is the revenue of Neurofibromatosis Midwest?
Neurofibromatosis Midwest's revenue in 2022 was $220,690.
Official website here: www.nfmidwest.org
Who are the executives of Neurofibromatosis Midwest and what are their salaries?
The average compensation at Neurofibromatosis Midwest during 2022 was $14,041. There are 6 employees and 80 volunteers at Neurofibromatosis Midwest.
Here are 7 key members and their salaries:
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Official website here: www.nfmidwest.org
Where can I find the form 990 for Neurofibromatosis Midwest?
Neurofibromatosis Midwest's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.nfmidwest.org
Learn more at the official website: www.nfmidwest.org
Mission Statement of Neurofibromatosis Midwest
Neurofibromatosis Midwest, an organization dedicated to neurofibromatosis, aims to enhance the lives of children, adults, and their families impacted by this condition. Their mission is multifaceted, focusing on improving clinics, increasing awareness, promoting research, providing education, and offering support in the states of Illinois, Indiana, Iowa, Kentucky, Wisconsin, and the eastern half of Missouri.
To accomplish this, Neurofibromatosis Midwest directly grants funds for research and research support. They also collaborate with clinics in their region to improve care and access to it. In addition, they work closely with the neurofibromatosis community and various resources to launch additional programs and initiatives aimed at improving the quality of life and care for neurofibromatosis patients and their families. By focusing on these areas, Neurofibromatosis Midwest strives to make a significant difference in the lives of those affected by neurofibromatosis.
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Impact
October, 2024
Neurofibromatosis Midwest significantly enhances the lives of individuals and families affected by neurofibromatosis by prioritizing education and support services. By focusing on improving clinics and access to care, the organization facilitates better treatment options for patients across several states, including Illinois, Indiana, Iowa, Kentucky, Wisconsin, and the eastern half of Missouri.
The direct grant funding for research fosters scientific advancements that can lead to improved therapies and potential cures for neurofibromatosis. Additionally, the collaborative efforts with local clinics ensure that patients receive high-quality, informed care tailored to their unique needs. Through various initiatives and programs, Neurofibromatosis Midwest actively promotes community awareness and understanding of the condition, empowering patients and their families with knowledge and resources that enhance their quality of life.
Ultimately, the organization plays a crucial role in creating a supportive environment for those impacted by neurofibromatosis, cultivating a sense of community and resilience while driving forward research and educational opportunities that will benefit current and future generations.
This information is meant to be a general summary of Neurofibromatosis Midwest. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $3,042
- Gross Receipts: $233,073
Assets and Liabilities:
- Total Assets: $317,579
- Total Liabilities: $2,264
- Net Assets: $315,315
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Organization Details
Founding Year
1981
Phone
(630) 945-3562Principal Officer
Diana Haberkamp
Main Address
473 DUNHAM ROAD SUITE 3, ST CHARLES, IL, 60174
Website
www.nfmidwest.orgNTEE Category
Code: H96Z - Medical research
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