Overview
What is Epilepsy Foundation Of Connecticut Inc?
The Epilepsy Foundation of Connecticut Inc, located in Middletown, Connecticut, is a dedicated nonprofit organization committed to addressing the challenges associated with epilepsy. They offer a wide range of resources and services to their clients, including brochures, medication information, legal rights advice, and advocacy. Their educational programs cater to various professionals such as school nurses, healthcare professionals, teachers, and first responders, aiming to enhance epilepsy awareness and understanding. During the COVID-19 pandemic, they successfully advocated for expanded telehealth access and reimbursement. Additionally, they sponsor a camping program for children and teens with epilepsy, provide telephone support networks, and host virtual support groups. The organization also offers financial assistance for epilepsy treatment and care services through the Halyna Murtha Family Assistance Fund. Their mission is to lead the fight against epilepsy, aiming to stop seizures, find cures, and save lives.
Official website here: www.epilepsyct.com/
Is Epilepsy Foundation Of Connecticut Inc legitimate?
Epilepsy Foundation Of Connecticut Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Epilepsy Foundation Of Connecticut Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $44,114
Professional Fundraising Fees: $0
Other Salaries and Wages: $155,823
For more financial information, click here
Official website here: www.epilepsyct.com/
What is the mission statement of Epilepsy Foundation Of Connecticut Inc?
The Epilepsy Foundation of Connecticut's mission is focused on leading the fight against the challenges associated with epilepsy. They aim to inform individuals about therapies that can stop seizures, discover cures, and ultimately save lives. The organization provides various educational resources, serving a wide range of audiences such as school nurses, healthcare professionals, and first responders. They have successfully advocated for emergency legislation expanding access to telehealth services during the COVID-19 pandemic. The foundation also sponsors camps for children and teens with epilepsy, offers telephone support networks, and hosts virtual support groups. Additionally, they provide financial assistance for epilepsy treatment and offer programs to improve mental health.
Official website here: www.epilepsyct.com/
Who is the CEO of Epilepsy Foundation Of Connecticut Inc?
Cherie Poirier is the Former Execu of Epilepsy Foundation Of Connecticut Inc.
Official website here: www.epilepsyct.com/
What is the revenue of Epilepsy Foundation Of Connecticut Inc?
Epilepsy Foundation Of Connecticut Inc's revenue in 2022 was $389,163.
Official website here: www.epilepsyct.com/
Who are the executives of Epilepsy Foundation Of Connecticut Inc and what are their salaries?
The average compensation at Epilepsy Foundation Of Connecticut Inc during 2022 was $22,215. There are 9 employees and 200 volunteers at Epilepsy Foundation Of Connecticut Inc.
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Official website here: www.epilepsyct.com/
Where can I find the form 990 for Epilepsy Foundation Of Connecticut Inc?
Epilepsy Foundation Of Connecticut Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.epilepsyct.com/
Learn more at the official website: www.epilepsyct.com/
Mission Statement of Epilepsy Foundation Of Connecticut Inc
The Epilepsy Foundation of Connecticut, a leading organization, is committed to overcoming the challenges associated with living with epilepsy. Their mission is multifaceted, encompassing efforts to stop seizures, discover cures, and ultimately save lives. The foundation fulfills this mission by providing essential information to clients, including details about therapies, legal rights, and advocacy.
Beyond this, the Epilepsy Foundation of Connecticut actively engages in educational programs, reaching out to various sectors of the community. These include school nurses, healthcare professionals, teachers, camp counselors, transit companies, and first responders, among others. The organization hosts webinars featuring professionals who share expert insights on various epilepsy-related topics. During the COVID-19 pandemic, the foundation successfully advocated for emergency legislation expanding access to and reimbursement of telehealth services.
The Epilepsy Foundation of Connecticut also sponsors camping programs for children and teens with epilepsy, offering a supportive environment where they can connect with peers. The organization manages telephone support networks, including one for parents and families, and another for individuals affected by epilepsy. Additionally, it hosts virtual support groups, catering to numerous people across Connecticut. The foundation extends transportation assistance to clients with epilepsy and provides financial assistance through the Hylan Murtha Family Assistance Fund for epilepsy treatment and associated care services. Lastly, the Epilepsy Foundation of Connecticut enrolls clients in the Hobsotch Memory & Cognition Program and the Project Uplift Program, which enhances mental health through mindfulness and cognitive behavioral skills.
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Impact
October, 2024
The Epilepsy Foundation of Connecticut Inc plays a vital role in supporting individuals living with epilepsy by addressing their challenges and providing essential resources. The organization leads efforts to educate clients about effective therapies, working tirelessly to help stop seizures, discover cures, and ultimately save lives.
Through comprehensive informational materials, including brochures and medication guides, the foundation empowers clients with knowledge about their condition, legal rights, and advocacy resources. Educational programs cater to a wide audience, such as school nurses, healthcare professionals, teachers, and first responders, ensuring that key community members are informed and prepared to support those affected by epilepsy.
Amid the COVID-19 pandemic, the foundation successfully advocated for emergency legislation that expanded access to and reimbursement for telehealth services, recognizing the importance of continuity of care. They also host educational webinars featuring experts who discuss various epilepsy-related topics, further enhancing community understanding.
For families, the foundation offers invaluable support systems, such as a Parent & Family Telephone Support Network and virtual support groups that meet monthly, fostering a sense of community among individuals facing similar challenges. In addition, the organization sponsors a camping program specifically for children and teens with epilepsy, providing a nurturing environment where they can connect with peers.
Not only does the foundation assist with mental health through programs like Project Uplift, which teaches mindfulness and cognitive behavioral skills, but it also addresses practical needs by offering transportation assistance and financial aid through the Halyn Murtha Family Assistance Fund. This fund helps individuals cover costs related to epilepsy treatment and care services, making healthcare more accessible.
Through programs like the Hobscotch Memory & Cognition Program that focuses on cognitive health, the Epilepsy Foundation of Connecticut Inc demonstrates its commitment to improving the overall quality of life for those affected by epilepsy. Their multifaceted approach ensures that individuals and families have the support, education, and resources they need to navigate the complexities of living with this condition.
This information is meant to be a general summary of Epilepsy Foundation Of Connecticut Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $66,716
- Program Service Revenue: $32,742
- Gross Receipts: $892,173
Assets and Liabilities:
- Total Assets: $3,279,481
- Total Liabilities: $133,745
- Net Assets: $3,145,736
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
PROGRAM SERVICE FEES
Revenue
$32,742
Organization Details
Founding Year
1984
Phone
(860) 346-1924Principal Officer
Cherie Poirier
Main Address
386 MAIN STREET, MIDDLETOWN, CT, 064573360
Website
www.epilepsyct.com/NTEE Category
Code: G54Z - Disease
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