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Epilepsy Foundation New England

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 222505819 ✦ Lowell, MA ✦ Designated as a 501(c)(3)

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Overview

What is Epilepsy Foundation New England?

Epilepsy Foundation New England (EFNE) is a nonprofit organization located in Lowell, Massachusetts, with a mission to assist individuals and families impacted by epilepsy in the New England region, which includes Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont. Their workforce consists of around 100 employees. EFNE's primary focus is to support its mission through funding, primarily via a donation center that resells gently used clothing and household items. This revenue aids in the advancement of epilepsy research, in collaboration with the Epilepsy Foundation of America. EFNE engages in various activities to promote awareness, such as showcasing research developments and hosting events for healthcare providers, clients, and donors to understand epilepsy research better. The organization's goal is to provide immediate assistance and instill hope for a brighter future for the approximately 110,000 people affected by epilepsy in New England and their caregivers.


Official website here: www.epilepsynewengland.org

What are the reviews and ratings of this charity?

Charity Navigator Rating 94% - Four-Star out of Four Star rating

The Epilepsy Foundation New England has achieved a commendable Four-Star rating from Charity Navigator, signifying a strong commitment to accountability and financial management. With a score of 94% in the Accountability & Finance category, the foundation demonstrates effective oversight and has implemented robust governance practices, including a completely independent board and a comprehensive conflict of interest policy.

Key strengths include a high program expense ratio of 68.22%, indicating that a substantial portion of its funding is directed towards its mission-related activities. Additionally, the organization has no material diversion of assets and maintains a favorable liabilities to assets ratio, which reflects financial stability and responsible management of resources.

While the foundation excels in transparency and financial health, ongoing evaluation of its program impact and outreach efforts could further enhance its effectiveness in serving the epilepsy community. Overall, the Epilepsy Foundation New England showcases a strong operational foundation, ensuring donor confidence and community support.


This AI summary has been generated from information found on Charity Navigator.

Is Epilepsy Foundation New England legitimate?

Epilepsy Foundation New England is a legitimate nonprofit organization registered as a 501(c)(3) entity. Epilepsy Foundation New England submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $509,705
Professional Fundraising Fees: $0
Other Salaries and Wages: $2,745,140

For more financial information, click here


Official website here: www.epilepsynewengland.org

What is the mission statement of Epilepsy Foundation New England?

The Epilepsy Foundation New England (EFNE) aims to assist individuals and families impacted by epilepsy. Their mission is to support the approximately 110,000 people in Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont living with epilepsy and their caregivers. EFNE's services are designed to offer aid for current needs and hope for the future.

The organization operates a donation center that funds its mission and advances epilepsy research. The donation center collects gently used clothing and household items to be resold. EFNE collaborates with the Epilepsy Foundation of America to showcase epilepsy research, raise funds, and engage healthcare providers, clients, and donors in understanding the advancements in the field.


Official website here: www.epilepsynewengland.org

Who is the CEO of Epilepsy Foundation New England?

Susan Linn is the Director of Epilepsy Foundation New England. The CEO's salary of Epilepsy Foundation New England is $241,474 and their total compensation is $263,995.


Official website here: www.epilepsynewengland.org

What is the revenue of Epilepsy Foundation New England?

Epilepsy Foundation New England's revenue in 2023 was $6,573,455.


Official website here: www.epilepsynewengland.org

Who are the executives of Epilepsy Foundation New England and what are their salaries?

The average compensation at Epilepsy Foundation New England during 2023 was $32,548. There are 100 employees and 75 volunteers at Epilepsy Foundation New England.


Here are 21 key members and their salaries (Epilepsy Foundation New England's CEO's salary is $241,474 and their total compensation is $263,995):


Andrea Anderson (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jason Bourque (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jennifer Cardillo (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Brett Downing (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
John N Gaitanis Md (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Philip Haydon Phd (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Zachery Hermes (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tim Higgins (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Don Holmes (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jessica Fennell (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Francis J Kenneally Iii (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Catherine Mccarty (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tamara Sacharczyk (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Francesco Salituro Phd (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kimberlee Schumacher (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tim Young (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Andrew Cole Md (Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Steve Siravo (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Joe Siravo (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Susan Linn (President & Ceo)
  • Compensation: $241,474
  • Related: $0
  • Other: $22,521
Bradley Rich (President - Donation Center)
  • Compensation: $0
  • Related: $244,880
  • Other: $25,516


Official website here: www.epilepsynewengland.org

Where can I find the form 990 for Epilepsy Foundation New England?

Epilepsy Foundation New England's most recent form 990 was submitted in 2023 and can be accessed here.


Official website here: www.epilepsynewengland.org

Learn more at the official website: www.epilepsynewengland.org

Mission Statement of Epilepsy Foundation New England

Epilepsy Foundation New England (EFNE) is dedicated to aiding individuals and families affected by epilepsy in the New England region, which includes Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont. The organization's mission is to offer assistance today and hold the promise of a better tomorrow for the approximately 110,000 people living with epilepsy and their caregivers. EFNE's services are designed to provide support, raising awareness and funds for epilepsy research in partnership with the Epilepsy Foundation of America.

To accomplish this mission, EFNE operates a donation center that collects gently used clothing and household items for resale. The proceeds from these sales aid in funding EFNE's initiatives and the advancement of epilepsy research. The organization strives to showcase the progress made in epilepsy research and engage healthcare providers, clients, and donors through events and communication. By doing so, EFNE contributes to the overall understanding and advancement of epilepsy treatments, offering hope for a future free from the challenges that come with this neurological disorder.

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Impact




October, 2024

Epilepsy Foundation New England (EFNE) significantly impacts the lives of individuals and families affected by epilepsy across five states: Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont. With a mission to support approximately 110,000 people experiencing epilepsy in the region, EFNE provides vital resources, education, and community engagement.

Through its funding support and donation activities, EFNE advances research in epilepsy and offers essential services that aim to improve the quality of life for those impacted by the condition. The organization collects gently used clothing and housewares, which are resold, helping to finance its mission and essential programs.

EFNE also plays a crucial role in raising awareness about epilepsy research, hosting events that involve healthcare providers, clients, and donors, and fostering a better understanding of the challenges faced by those with epilepsy. By focusing on both immediate assistance and the long-term hope associated with research advancements, EFNE serves as a beacon of support and advocacy for individuals and families navigating the complexities of epilepsy.




This information is meant to be a general summary of Epilepsy Foundation New England. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$6,573,455 (2023)
Expenses
$5,905,898 (2023)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2023.

  • Investment Income: $186,935
  • Program Service Revenue: $3,910,457
  • Gross Receipts: $6,813,476

Assets and Liabilities:

  • Total Assets: $10,402,302
  • Total Liabilities: $418,683
  • Net Assets: $9,983,619

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Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

DONATION CENTER

Revenue

$3,907,825

CAMP FEES AND CAMPERSH

Revenue

$2,632

Organization Details

Founding Year

1983

Principal Officer

Susan Linn

Main Address

650 SUFFOLK STREET 405, LOWELL, MA, 01854

NTEE Category

Code: G50 - Disease

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