Overview
What is Charcot-Marie-Tooth Association?
The Charcot-Marie-Tooth Association is a nonprofit organization situated in Glenolden, Pennsylvania. Their primary mission is to combat Charcot-Marie-Tooth disease, a condition affecting the nerves, by funding research, developing new treatments, and improving the lives of those diagnosed. The association awards fellowships and grants to researchers in this field, promoting knowledge exchange and collaboration through bi-annual meetings. To ensure the selection of worthy recipients and drafting of funding agreements, they employ a medical research consultant. With a team of 12 dedicated individuals, the Charcot-Marie-Tooth Association is committed to finding a cure and enhancing the quality of life for people living with this disease.
Official website here: www.cmtausa.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 100% (Four-Star out of Four Stars)
The Charcot-Marie-Tooth Association (CMTA) has received an outstanding four-star rating from Charity Navigator, highlighting its strong commitment to accountability and financial health. With a perfect score in Accountability & Finance as well as Culture & Community, the organization demonstrates transparency and effective management practices. The independent board, comprised entirely of 14 members, further enhances its credibility, while an impressive program expense ratio of nearly 90% indicates that the majority of funds are directed to its mission-related activities.
User feedback predominantly reflects positive experiences, especially in terms of support and resources provided to families affected by Charcot-Marie-Tooth disease. Many clients have praised the CMTA for its educational initiatives, community-building activities, and the establishment of support groups. Testimonials emphasize the impact of programs such as youth outings and educational conferences that empower individuals living with CMT and promote understanding within their communities.
However, some reviews raise concerns about executive compensation and the financial management of the organization, suggesting that salaries may be disproportionately high relative to revenue. Critics have called for greater transparency regarding fundraising and expenditures, particularly in light of ongoing large-scale campaigns. As such, while the CMTA's overall rating is commendable, potential donors are encouraged to review financial documents and user experiences comprehensively to gauge the organization’s alignment with their philanthropic goals.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
What do the Facebook reviews say about Charcot-Marie-Tooth Association?
90% of the 296 reviewers on Facebook recommend the Charcot-Marie-Tooth Association. Here is a summary of their reviews:
Many individuals express appreciation for the supportive community that the organization fosters, particularly those who are connected to family members affected by Charcot-Marie-Tooth disease. Users often find value in the information shared by the association, which helps them understand the challenges faced by their loved ones, as well as facilitating connections with others in similar situations. The emphasis on community and support resonates strongly with those interacting with the organization.
The feedback indicates that the nonprofit effectively addresses the needs of its audience, providing a platform for both education and emotional support. Overall, many feel encouraged by the resources available and the opportunity to engage with others who share their experiences.
This AI summary has been generated from reviews found on Facebook.
Is Charcot-Marie-Tooth Association legitimate?
Charcot-Marie-Tooth Association is a legitimate nonprofit organization registered as a 501(c)(3) entity. Charcot-Marie-Tooth Association submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $376,930
Professional Fundraising Fees: $0
Other Salaries and Wages: $528,146
For more financial information, click here
Official website here: www.cmtausa.org
What is the mission statement of Charcot-Marie-Tooth Association?
The Charcot-Marie-Tooth Association's mission is centered around combating Charcot-Marie-Tooth Disease (CMT). Their primary goal is to develop new medications to treat this condition, enhance the quality of life for those affected by CMT, and ultimately, discover a cure. To achieve this, the association awards research fellowships and grants for CMT research. Furthermore, they host bi-annual meetings for researchers receiving their funding to facilitate knowledge exchange and synergy. The association also relies on a medical research consultant to oversee the selection of research funding recipients and write grants and contracts with these researchers.
Official website here: www.cmtausa.org
Who is the CEO of Charcot-Marie-Tooth Association?
Kimberly Magee is the Chairman of Charcot-Marie-Tooth Association. The CEO's salary of Charcot-Marie-Tooth Association is $269,038 and their total compensation is $278,772.
Official website here: www.cmtausa.org
What is the revenue of Charcot-Marie-Tooth Association?
Charcot-Marie-Tooth Association's revenue in 2022 was $10,398,940.
Official website here: www.cmtausa.org
Who are the executives of Charcot-Marie-Tooth Association and what are their salaries?
The average compensation at Charcot-Marie-Tooth Association during 2022 was $75,423. There are 12 employees and 100 volunteers at Charcot-Marie-Tooth Association.
Here are 17 key members and their salaries (Charcot-Marie-Tooth Association's CEO's salary is $269,038 and their total compensation is $278,772):
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- Compensation: $269,038
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- Compensation: $125,538
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- Other: $4,476
Official website here: www.cmtausa.org
Where can I find the form 990 for Charcot-Marie-Tooth Association?
Charcot-Marie-Tooth Association's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.cmtausa.org
Learn more at the official website: www.cmtausa.org
Mission Statement of Charcot-Marie-Tooth Association
The Charcot-Marie-Tooth Association is dedicated to combating Charcot-Marie-Tooth Disease (CMT). Their primary mission is threefold: firstly, to support the creation of innovative drugs aimed at treating CMT; secondly, to enhance the quality of life for individuals living with CMT; and lastly, with an ultimate goal of discovering a cure for the disease.
In pursuit of these objectives, the Charcot-Marie-Thooth Association awards research fellowships and grants focused on CMT. These funds are instrumental in advancing scientific research in this field. Furthermore, the organization hosts bi-annual meetings, bringing together all researchers benefiting from its funding. These gatherings foster knowledge exchange and collaboration, thereby accelerating research progress. To manage the selection process and the grant-writing tasks, the Charcot-Marie-Tooth Association utilizes the expertise of a medical research consultant. This consultant ensures that the most deserving researchers receive funding and that all necessary contracts are drafted and executed.
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Impact
October, 2024
The Charcot-Marie-Tooth Association (CMTA) plays a crucial role in advancing research and fostering collaboration in the fight against Charcot-Marie-Tooth disease (CMT). By awarding research fellowships and grants, the CMTA directly supports innovative studies aimed at understanding and treating this condition. Their initiative to host bi-annual meetings for funded researchers facilitates valuable knowledge exchange, encouraging synergy among experts in the field.
Additionally, by utilizing a medical research consultant, the CMTA ensures that the selection process for research funding is systematic and scientifically robust, maximizing the potential impact of their investments. Ultimately, the CMTA is dedicated to developing new drug therapies, enhancing the quality of life for individuals affected by CMT, and striving towards a cure for this debilitating disease. Their efforts not only propel scientific inquiry forward but also provide hope to the CMT community.
This information is meant to be a general summary of Charcot-Marie-Tooth Association. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $15,898
- Program Service Revenue: $1,581,813
- Gross Receipts: $10,595,119
Assets and Liabilities:
- Total Assets: $9,861,023
- Total Liabilities: $0
- Net Assets: $9,861,023
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
PROGRAM SERVICE REVENUE
Revenue
$1,581,813
Organization Details
Founding Year
1983
Phone
(610) 427-2971Principal Officer
Kimberly Magee
Main Address
8 S GARFIELD AVE, GLENOLDEN, PA, 19036
Website
www.cmtausa.orgNTEE Category
Code: G8XZ - Disease
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