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Chordoma Foundation

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 208423943 ✦ Durham, NC ✦ Designated as a 501(c)(3)

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Overview

What is Chordoma Foundation?

The Chordoma Foundation is a dedicated nonprofit organization situated in Durham, North Carolina. Their primary mission is to enhance the lives of those affected by chordoma and spearhead the quest for a cure. To accomplish this, they initiate and finance a diverse range of research projects encompassing basic, translational, and clinical science. These projects aim to expedite the development of improved chordoma treatments. To support the chordoma research community, they offer essential services such as banking chordoma tumor tissue, creating and distributing preclinical models of chordoma, conducting preclinical drug screening, and encouraging patient participation in clinical trials. With a modest workforce of 11 individuals, the Chordoma Foundation is committed to making significant strides in the fight against chordoma.


Official website here: www.chordomafoundation.org

What do the Facebook reviews say about Chordoma Foundation?

94% of 54 reviewers on Facebook recommend the Chordoma Foundation. Here’s what they’re saying:

Many individuals express heartfelt gratitude for the support and guidance they received from the foundation, highlighting the compassionate assistance provided by staff members like Stephanie. Those facing the challenges of chordoma often describe feelings of confusion, fear, and isolation before reaching out to the foundation. The personalized help in navigating their diagnosis, such as receiving tailored information and direction to appropriate healthcare providers, has made a significant difference in their journeys.

Overall, people commend the foundation for its dedication to providing emotional support and valuable resources. Many feel reassured and empowered after connecting with the organization, emphasizing that the assistance they received helped them regain control during a difficult time. This sense of community and responsiveness appears to be a cornerstone of what the Chordoma Foundation aims to achieve.


This AI summary has been generated from reviews found on Facebook.

Is Chordoma Foundation legitimate?

Chordoma Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Chordoma Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $470,557
Professional Fundraising Fees: $0
Other Salaries and Wages: $576,540

For more financial information, click here


Official website here: www.chordomafoundation.org

What is the mission statement of Chordoma Foundation?

The Chordoma Foundation's mission is centered on improving the lives of individuals affected by chordoma and leading the quest for a cure. To achieve this, the foundation has undertaken various research initiatives. They have funded a range of research projects spanning basic, translational, and clinical science, aiming to accelerate the development of better treatments for chordoma. The foundation also offers essential services to the chordoma research community, such as banking chordoma tumor tissue, creating preclinical models, conducting preclinical drug screenings, and facilitating patient participation in clinical trials.


Official website here: www.chordomafoundation.org

Who is the CEO of Chordoma Foundation?

Josh Sommer is the Head Of Targ of Chordoma Foundation.


Official website here: www.chordomafoundation.org

What is the revenue of Chordoma Foundation?

Chordoma Foundation's revenue in 2022 was $4,886,250.


Official website here: www.chordomafoundation.org

Who are the executives of Chordoma Foundation and what are their salaries?

The average compensation at Chordoma Foundation during 2022 was $95,191. There are 11 employees and 120 volunteers at Chordoma Foundation.


Here are 20 key members and their salaries:


Daniel Freed (Head Of Targ)
  • Compensation: $153,838
  • Related: $0
  • Other: $13,647
Kenny Brighton (Head Of Phil)
  • Compensation: $153,136
  • Related: $0
  • Other: $5,603
Josh Sommer (Exec. Dir. &)
  • Compensation: $132,248
  • Related: $0
  • Other: $12,084
Tammy Silverthorne (Director Of)
  • Compensation: $100,001
  • Related: $0
  • Other: $15,355
Shannon Lozinsky (Director Of)
  • Compensation: $100,250
  • Related: $0
  • Other: $11,619
Sara Nick (Head Of Enga)
  • Compensation: $100,500
  • Related: $0
  • Other: $3,705
Leslie Adler (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Paul Feldman (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Steven Golick (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Christopher Heery (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Alicia Jeffreys (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ingemar Lanevi (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Susan Mahony (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Steven Mandel (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Shreyaskumar Patel (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
David Sandak (Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Christy Shaffer (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Julie Song (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Megan Stewart (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
John Therien (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.chordomafoundation.org

Where can I find the form 990 for Chordoma Foundation?

Chordoma Foundation's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.chordomafoundation.org

Learn more at the official website: www.chordomafoundation.org

Mission Statement of Chordoma Foundation

The Chordoma Foundation, an organization dedicated to improving the lives of those affected by chordoma, has set a mission to lead the search for a cure for this condition. This mission encompasses a variety of initiatives, primarily focusing on accelerating the development of better treatments for chordoma. To accomplish this, the foundation has funded a portfolio of research projects spanning basic, translational, and clinical science. These projects aim to delve deeper into the intricacies of chordoma, thereby paving the way for more effective treatments.

Beyond funding research, the Chordoma Foundation also provides vital services to the chordoma research community. These services include banking chordoma tumor tissue, developing and distributing preclinical models of chordoma, performing preclinical drug screening, and facilitating patient participation in clinical trials. These efforts are crucial in advancing our understanding of chordoma and in bringing us closer to finding a cure. By providing these resources, the Chordoma Foundation is playing a significant role in supporting and propelling the chordoma research community forward.

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Impact




October, 2024

The Chordoma Foundation significantly impacts the lives of individuals affected by chordoma by driving critical research efforts aimed at improving treatments and ultimately finding a cure. Through the initiation and funding of a diverse portfolio of research projects, the foundation supports advancements in basic, translational, and clinical science.

Key initiatives include banking chordoma tumor tissue, which provides invaluable resources for researchers, and developing preclinical models that facilitate better understanding of the disease. The foundation also plays a crucial role in conducting preclinical drug screenings to identify potential treatment options, as well as facilitating patient participation in clinical trials, ensuring that those impacted can access cutting-edge therapeutic possibilities.

These efforts not only enhance the collective knowledge of chordoma but also provide essential services to the research community, fostering collaboration and innovation in the fight against this rare cancer. Through its comprehensive approach, the Chordoma Foundation is at the forefront of improving patient outcomes and advancing the search for a cure.




This information is meant to be a general summary of Chordoma Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$4,886,250 (2022)
Expenses
$3,088,769 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $15,406
  • Gross Receipts: $4,886,250

Assets and Liabilities:

  • Total Assets: $7,599,511
  • Total Liabilities: $1,353,307
  • Net Assets: $6,246,204

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Organization Details

Founding Year

2007

Principal Officer

Josh Sommer

Main Address

PO BOX 2127, DURHAM, NC, 27702

NTEE Category

Code: H30 - Medical research

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