Overview
What is Myotonic Dystrophy Foundation Inc?
Myotonic Dystrophy Foundation Inc, located in Oakland, California, is a nonprofit organization dedicated to combating myotonic dystrophy, a chronic and degenerative disease. They accomplish this mission by mobilizing resources and fostering collaboration in the areas of education, advocacy, and research. The foundation raises additional funds in the private sector to accelerate research efforts, with the ultimate goal of discovering a treatment and ultimately a cure for this condition. With a team of five dedicated individuals, the Myotonic Dystrophy Foundation Inc is actively working towards improving the lives of those affected by this disease.
Official website here: www.myotonic.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 97% (Four-Star out of Four Star rating)
The Myotonic Dystrophy Foundation Inc has received an impressive Four-Star rating from Charity Navigator, indicating a strong commitment to accountability and financial health. The rating is derived entirely from the charity's outstanding performance in financial practices, with a perfect score in various areas such as independent board governance and financial oversight.
The foundation has demonstrated excellence in its financial management, as evidenced by a high Program Expense Ratio of 88.05%, ensuring that a significant portion of its funds is directed towards its mission. Additionally, the organization's fundraising efficiency is commendable, with only $0.04 spent to raise each dollar, showcasing effective use of resources.
Overall, the foundation is recognized for its robust policies and practices, including conflict of interest, whistleblower protection, and transparency in board meeting documentation. However, while the financial metrics are strong, the analysis does not provide insight into the foundation's programmatic impact or outreach effectiveness, which could be valuable for potential supporters.
This AI summary has been generated from information found on Charity Navigator.
What do the Facebook reviews say about Myotonic Dystrophy Foundation Inc?
100% of 21 reviewers on Facebook recommend the Myotonic Dystrophy Foundation Inc. Here is a summary of their reviews:
Many reviewers express gratitude for the nonprofit's informative website, highlighting it as a valuable resource for individuals and families affected by Myotonic Dystrophy. The foundation's commitment to providing support and information about this progressive muscle disease resonates positively with users.
Overall, those who engage with the foundation feel well-supported and appreciate the organization's efforts in raising awareness and promoting understanding of Myotonic Dystrophy.
This AI summary has been generated from reviews found on Facebook.
Is Myotonic Dystrophy Foundation Inc legitimate?
Myotonic Dystrophy Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Myotonic Dystrophy Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $247,902
Professional Fundraising Fees: $0
Other Salaries and Wages: $348,019
For more financial information, click here
Official website here: www.myotonic.org
What is the mission statement of Myotonic Dystrophy Foundation Inc?
The Myotonic Dystrophy Foundation Inc is committed to leading efforts and garnering resources towards managing, treating, and ultimately curing myotonic dystrophy. This is achieved through a multifaceted approach that includes education, advocacy, and research. The organization's mission is to accelerate the understanding of the disease by raising additional funds in the private sector for scientific research. The aim is to discover a treatment and, eventually, find a cure for this chronic, degenerative condition.
Official website here: www.myotonic.org
Who is the CEO of Myotonic Dystrophy Foundation Inc?
Tanya Stevenson is the Ceo of Myotonic Dystrophy Foundation Inc. The CEO's salary of Myotonic Dystrophy Foundation Inc is $226,657 and their total compensation is $247,902.
Official website here: www.myotonic.org
What is the revenue of Myotonic Dystrophy Foundation Inc?
Myotonic Dystrophy Foundation Inc's revenue in 2022 was $2,774,035.
Official website here: www.myotonic.org
Who are the executives of Myotonic Dystrophy Foundation Inc and what are their salaries?
The average compensation at Myotonic Dystrophy Foundation Inc during 2022 was $119,184. There are 5 employees and 104 volunteers at Myotonic Dystrophy Foundation Inc.
Here are 13 key members and their salaries (Myotonic Dystrophy Foundation Inc's CEO's salary is $226,657 and their total compensation is $247,902):
- Compensation: $226,657
- Related: $0
- Other: $21,245
- Compensation: $107,821
- Related: $0
- Other: $547
- Compensation: $0
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- Other: $0
- Compensation: $0
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- Other: $0
- Compensation: $0
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- Other: $0
- Compensation: $0
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- Other: $0
- Compensation: $0
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- Other: $0
- Compensation: $0
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- Other: $0
- Compensation: $0
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- Other: $0
- Compensation: $0
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- Other: $0
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- Other: $0
- Compensation: $0
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- Other: $0
- Compensation: $0
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- Other: $0
Official website here: www.myotonic.org
Where can I find the form 990 for Myotonic Dystrophy Foundation Inc?
Myotonic Dystrophy Foundation Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.myotonic.org
Learn more at the official website: www.myotonic.org
Mission Statement of Myotonic Dystrophy Foundation Inc
The Myotonic Dystrophy Foundation Inc is committed to spearheading and rallying resources towards the management, treatment, and ultimately, the cure for myotonic dystrophy. This is achieved through a three-pronged approach that encompasses education, advocacy, and research. The organization's mission is to leverage its resources effectively in order to advance our understanding of this chronic, degenerative disease, with the ultimate goal of finding a treatment and, eventually, a cure.
To accomplish this, the Myotonic Dystrophy Foundation Inc raises additional funds in the private sector. These funds are then channeled towards accelerating research in both the clinical and scientific realms. The objective is to gain a more comprehensive understanding of the disease, with the aim of developing effective treatment options and ultimately, a cure. The foundation's dedication to research is instrumental in the quest to alleviate the suffering of those affected by myotonic dystrophy and to improve their quality of life.
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Impact
October, 2024
The Myotonic Dystrophy Foundation Inc has a significant impact on the lives of individuals affected by myotonic dystrophy through its commitment to education, advocacy, and research. By mobilizing resources and support, the organization enhances understanding and management of this chronic, degenerative disease. Through its fundraising efforts, the foundation accelerates scientific and clinical research aimed at discovering effective treatments and ultimately a cure for myotonic dystrophy. This comprehensive approach not only raises awareness but also fosters a community of support, empowering patients and families navigating the challenges posed by the disease.
This information is meant to be a general summary of Myotonic Dystrophy Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $4,672
- Program Service Revenue: $66,768
- Gross Receipts: $2,872,325
Assets and Liabilities:
- Total Assets: $6,830,491
- Total Liabilities: $1,488,211
- Net Assets: $5,342,280
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Conference Registration
Revenue
$66,768
Organization Details
Founding Year
2006
Phone
(415) 800-7745Principal Officer
Tanya Stevenson
Main Address
663 THIRTEENTH STREET SUITE 100, OAKLAND, CA, 94612
Website
www.myotonic.orgNTEE Category
Code: G40 - Disease
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