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Epilepsy Study Consortium Inc C/O Sterling Foundation Management Llc

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 204950952 ✦ Reston, VA ✦ Designated as a 501(c)(3)

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Overview

What is Epilepsy Study Consortium Inc C/O Sterling Foundation Management Llc?

Epilepsy Study Consortium Inc, under the umbrella of Sterling Foundation Management Llc, is a nonprofit organization based in Reston, Virginia. Their primary mission is to expedite the development of novel therapies for epilepsy, aiming to enhance patient care. They achieve this goal through research, providing expert advice for advisory boards and independent consulting activities. The organization has contributed to the design of various protocols and developed educational tools for clinical trials, ensuring the enrollment of suitable subjects. Central review of documentation is also conducted to confirm patient eligibility in these trials. With a workforce of six individuals, Epilepsy Study Consortium Inc is dedicated to improving the lives of those affected by epilepsy.


Official website here: www.epilepsyconsortium.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 81% (Three-Star out of Four Stars)

The Epilepsy Study Consortium Inc has earned an 81% rating from Charity Navigator, indicating a strong performance in accountability and finance. This score reflects the organization's commitment to transparency and good governance, with a particularly noteworthy 100% score in accountability metrics. The charity maintains a fully independent board and has implemented comprehensive policies to ensure integrity and responsible management of resources.

Strengths of the organization include a high program expense ratio of 98.09%, suggesting that the vast majority of its funds are directed towards its mission-related programs rather than administrative costs. The charity has also demonstrated effective governance practices, as indicated by its solid scores in areas such as conflict of interest and whistleblower policies, which are crucial for maintaining trust with donors and stakeholders.

While the organization shows strong financial practices, potential limitations are not explicitly mentioned in the available data. Overall, the Epilepsy Study Consortium appears to be a reliable nonprofit with a focus on using its resources effectively to support its objectives in epilepsy research and advocacy.


This AI summary has been generated from information found on Charity Navigator.

Is Epilepsy Study Consortium Inc C/O Sterling Foundation Management Llc legitimate?

Epilepsy Study Consortium Inc C/O Sterling Foundation Management Llc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Epilepsy Study Consortium Inc C/O Sterling Foundation Management Llc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $364,789
Professional Fundraising Fees: $0
Other Salaries and Wages: $347,581

For more financial information, click here


Official website here: www.epilepsyconsortium.org

What is the mission statement of Epilepsy Study Consortium Inc C/O Sterling Foundation Management Llc?

The Epilepsy Study Consortium Inc., managed by Sterling Foundation Management Llc, is dedicated to accelerating the development of novel therapies for epilepsy with the ultimate goal of enhancing patient care. They utilize their extensive epilepsy expertise in advisory boards and independent consulting activities. The consortium provides study design consultation on various protocols, develops and implements educational tools for clinical trials to ensure appropriate subject enrollment, and central reviews documentation to confirm patient eligibility in clinical trials. In essence, their mission is to facilitate research in epilepsy therapy development, ultimately aiming to improve patient care.


Official website here: www.epilepsyconsortium.org

What is the revenue of Epilepsy Study Consortium Inc C/O Sterling Foundation Management Llc?

Epilepsy Study Consortium Inc C/O Sterling Foundation Management Llc's revenue in 2023 was $3,371,798.


Official website here: www.epilepsyconsortium.org

Who are the executives of Epilepsy Study Consortium Inc C/O Sterling Foundation Management Llc and what are their salaries?

The average compensation at Epilepsy Study Consortium Inc C/O Sterling Foundation Management Llc during 2023 was $101,767. There are 7 employees and 12 volunteers at Epilepsy Study Consortium Inc C/O Sterling Foundation Management Llc.

Here are 16 key members and their salaries:


Michael Sperling Md (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Bree Diventura (Co-Executive Director)
  • Compensation: $194,484
  • Related: $0
  • Other: $5,835
Gregory Krauss Md (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
John Pollard Md (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Pavel Klein Md (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sudha Kessler Md (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Marc Dichter Md Phd (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Hina Dave Md (Director)
  • Compensation: $1,725
  • Related: $0
  • Other: $0
Meryl Lozano (Co-Executive Director)
  • Compensation: $141,167
  • Related: $0
  • Other: $0
Claude Steriade Md (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Michael Gelfand Md (Director)
  • Compensation: $27,413
  • Related: $0
  • Other: $0
James Lintott Esq (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jacqueline French Md (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dennis Dlugos Md (Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Daniel Friedman Md (Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tracy L De Vito (Employee)
  • Compensation: $104,612
  • Related: $0
  • Other: $0


Official website here: www.epilepsyconsortium.org

Where can I find the form 990 for Epilepsy Study Consortium Inc C/O Sterling Foundation Management Llc?

Epilepsy Study Consortium Inc C/O Sterling Foundation Management Llc's most recent form 990 was submitted in 2023 and can be accessed here.


Official website here: www.epilepsyconsortium.org

Learn more at the official website: www.epilepsyconsortium.org

Mission Statement of Epilepsy Study Consortium Inc C/O Sterling Foundation Management Llc

The Epilepsy Study Consortium Inc, under the management of Sterling Foundation Management Llc, is committed to expediting the creation of innovative therapies for epilepsy. Their primary objective is to enhance patient care by conducting extensive research in this field. This nonprofit organization offers its extensive epilepsy expertise for advisory boards and independent consulting activities. They have played a significant role in providing consultation on various study designs, contributing to the development and implementation of educational tools for clinical trials. These tools ensure the enrollment of suitable subjects, thereby contributing to the success of these trials. Moreover, Epilepsy Study Consortium Inc conducts central reviews of documentation to confirm the eligibility of patients participating in clinical trials. This meticulous process helps maintain the integrity of these trials and contributes to the development of effective therapies for epilepsy patients.

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Impact




October, 2024

The Epilepsy Study Consortium Inc, through its efforts, significantly advances the development of new therapies aimed at improving patient care in the field of epilepsy. By leveraging extensive epilepsy expertise, they provide invaluable consulting services, which enhance the capabilities of advisory boards and independent consulting activities within the domain.

Their contributions include designing and refining study protocols, which ensure that clinical trials are optimally structured to yield meaningful results. Furthermore, the Consortium develops and implements educational tools that facilitate the recruitment of appropriate subjects for clinical trials, thereby increasing the chances of trial success and addressing the needs of the patient population more effectively. Centralized review of documentation is another critical aspect of their work, ensuring that patients meet eligibility criteria for participation in clinical trials.

Overall, the impact of the Epilepsy Study Consortium Inc lies in its commitment to accelerating research and the translation of findings into viable therapies, enhancing the quality of care for individuals living with epilepsy. Through these initiatives, they play a pivotal role in shaping the future landscape of epilepsy treatment and patient outcomes.




This information is meant to be a general summary of Epilepsy Study Consortium Inc C/O Sterling Foundation Management Llc. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$3,371,798 (2023)
Expenses
$1,701,465 (2023)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2023.

  • Investment Income: $37,668
  • Program Service Revenue: $2,473,596
  • Gross Receipts: $3,391,941

Assets and Liabilities:

  • Total Assets: $1,783,845
  • Total Liabilities: $0
  • Net Assets: $1,783,845

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Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

CONSULTING

Revenue

$2,011,243

TRIAL DESIGNS

Revenue

$462,353

Organization Details

Founding Year

2006

Principal Officer

James Lintott

NTEE Category

Code: G54 - Disease

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