Overview
What is Neuropathy Action Foundation?
The Neuropathy Action Foundation (NAF) is a nonprofit organization based in Santa Ana, California, dedicated to raising awareness and advocating for individuals with Neuropathy, a medical condition affecting the nerves. Their mission revolves around educating the public, healthcare providers, and decision-makers about Neuropathy, aiming to help patients gain access to personalized treatments. The foundation has been successful in launching campaigns for Multifocal Motor Neuropathy and Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), ultimately leading to improved diagnosis and treatment options for patients. In 2021, the NAF conducted a CIDP Quality of Life survey, revealing crucial insights into the diagnostic process and treatment efficacy. The survey results have the potential to influence providers, public policy, and patient care. Additionally, the foundation provides various services, such as bi-monthly newsletters, medication access assistance, and patient education resources, reaching millions of individuals through their website and informational brochures.
Official website here: www.neuropathyaction.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 90% (Four-Star out of Four Stars)
The Neuropathy Action Foundation has achieved a strong Charity Navigator rating of 90%, reflecting its commitment to accountability and finance. The charity boasts a perfect score in governance, with all board members being independent and no material diversion of assets reported. Additionally, the foundation maintains a healthy program expense ratio of 70%, indicating that a significant portion of its funds directly supports its mission.
User feedback highlights the organization's effectiveness in providing valuable information and support to individuals affected by neuropathy. Reviewers consistently praise the foundation for its dedication to raising awareness, hosting educational events, and offering resources that genuinely assist patients. Personal testimonials emphasize the warmth and responsiveness of the staff, further enhancing the organization's reputation.
Despite the overwhelmingly positive reviews, specific limitations or areas for improvement were not noted in the gathered data. Overall, the Neuropathy Action Foundation is recognized for its impactful work and strong community engagement, making it a trusted resource for those dealing with neuropathy-related challenges.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Neuropathy Action Foundation legitimate?
Neuropathy Action Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Neuropathy Action Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
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Official website here: www.neuropathyaction.org
What is the mission statement of Neuropathy Action Foundation?
The Neuropathy Action Foundation's mission is centered around educating the general public, healthcare providers, patients, and decision-makers about Neuropathy. Their primary goal is to help Neuropathy patients gain access to personalized treatments. Following successful educational campaigns on Multifocal Motor Neuropathy and Chronic Inflammatory Demyelinating Polyneuropathy, they conducted a Quality of Life survey to increase awareness of accurate diagnosis and effective treatment for CIDP. The survey results showed the need for improved diagnosis and highlighted the positive impact of treatment on patients' lives. The Neuropathy Action Foundation also provides resources and support to patients, helping with medication access issues, answering queries, and conducting awareness campaigns in multiple languages.
Official website here: www.neuropathyaction.org
Who is the CEO of Neuropathy Action Foundation?
Dominick V Spatafora is the President of Neuropathy Action Foundation.
Official website here: www.neuropathyaction.org
What is the revenue of Neuropathy Action Foundation?
Neuropathy Action Foundation's revenue in 2022 was $69,500.
Official website here: www.neuropathyaction.org
Who are the executives of Neuropathy Action Foundation and what are their salaries?
Here are 9 key members and their salaries:
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Official website here: www.neuropathyaction.org
Where can I find the form 990 for Neuropathy Action Foundation?
Neuropathy Action Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.neuropathyaction.org
Learn more at the official website: www.neuropathyaction.org
Mission Statement of Neuropathy Action Foundation
The Neuropathy Action Foundation, a devoted organization, aims to educate various audiences, including the general public, healthcare providers, patients, and decision-makers, about Neuropathy. Their primary objective is to help Neuropathy patients gain access to personalized treatments. By doing so, they aim to increase awareness and encourage action among healthcare providers, the public, and policy officials. This education and advocacy are crucial in ensuring early and accurate diagnoses of Neuropathy, which can significantly impact patients' lives and treatment outcomes. The organization has demonstrated this commitment through their successful campaigns focusing on Multifocal Motor Neuropathy and Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). Their most recent initiative involved conducting a CIDP Quality of Life patient survey, which highlighted the need for improved diagnosis and treatment for CIDP patients. The survey results revealed challenges in timely and accurate diagnoses, with many patients experiencing misdiagnoses by neurologists and family care providers. This highlights the importance of the Neuropathy Action Foundation's mission in raising awareness and advocating for individualized treatments for Neuropathy patients.
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Impact
August, 2024
The Neuropathy Action Foundation has made a significant impact by educating the general public, healthcare providers, patients, and decision-makers on Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). Their international CIDP Quality of Life Patient Survey revealed crucial insights into timely diagnosis, treatment efficacy, and the impact of the disease on patients' quality of life. The survey results highlighted the importance of early and accurate diagnosis in managing CIDP effectively and improving patients' lives.
Moreover, the foundation's ongoing efforts, such as providing patient support through newsletters, aiding patients with medication access issues, and disseminating informational materials, have helped over 175 patients and reached millions of individuals through their website and outreach campaigns. By collaborating with various coalitions and organizations, the Neuropathy Action Foundation continues to advocate for individualized care and access to treatments, ultimately empowering patients to improve their quality of life.
This information is meant to be a general summary of Neuropathy Action Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $42
- Gross Receipts: $69,500
Assets and Liabilities:
- Total Assets: $283,966
- Total Liabilities: $149
- Net Assets: $283,817
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
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Registration
Organization Details
Phone
(714) 550-9155Principal Officer
Dominick V Spatafora
Main Address
1950 Old Tustin Avenue, Santa Ana, CA, 92705
Website
www.neuropathyaction.orgNTEE Category
Code: G96 - Disease
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