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Tyler's Hope For Dystonia Cure Inc

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 203733312 ✦ Alachua, FL ✦ Designated as a 501(c)(3)

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Overview

What is Tyler's Hope For Dystonia Cure Inc?

Tyler's Hope For Dystonia Cure Inc is a nonprofit organization situated in Alachua, Florida, with a single dedicated employee. Their primary mission is to contribute funds towards organizations engaged in finding a cure and discovering effective treatments for DYT1 Dystonia, a neurological movement disorder. The organization was established with the intention of advancing research in this field, promoting awareness, and providing education about DYT1 Dystonia to the public. By supporting and collaborating with other organizations, Tyler's Hope For Dystonia Cure Inc aims to contribute to the global efforts in combating this disorder.


Official website here: www.tylershope.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 76% (Three-Star out of Four Star rating)

Tyler's Hope For Dystonia Cure Inc has received a solid Three-Star rating from Charity Navigator, reflecting strengths in accountability and finance. The organization excels in areas such as having a completely independent board and no reported material diversion of assets, which contributes positively to its overall score. Its program expense ratio is high at 95.14%, indicating that a significant portion of its funds is directed towards its programs.

However, there are notable weaknesses in the charity's governance practices. The organization lacks essential policies such as a conflict of interest policy, a whistleblower policy, and guidelines for document retention and destruction, which resulted in lower scores in these areas. Additionally, while the charity's tax forms are listed on its website, the necessary documentation was not provided as required, impacting its transparency.

Overall, while Tyler's Hope For Dystonia Cure Inc demonstrates commendable financial management and a commitment to its mission, improvements in governance policies and transparency are necessary to enhance its credibility and trustworthiness among stakeholders.


This AI summary has been generated from information found on Charity Navigator.

Is Tyler's Hope For Dystonia Cure Inc legitimate?

Tyler's Hope For Dystonia Cure Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Tyler's Hope For Dystonia Cure Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $45,675

For more financial information, click here


Official website here: www.tylershope.org

What is the mission statement of Tyler's Hope For Dystonia Cure Inc?

Tyler's Hope For Dystonia Cure Inc was established with a mission to advance research for a cure and discover effective treatments for DYT1 Dystonia, a neurological movement disorder. The organization aims to promote awareness and education about this disorder to the public. To accomplish its goals, Tyler's Hope contributes funds to organizations working on finding a cure, developing effective treatments, and increasing understanding of DYT1 Dystonia. The organization's activities are focused on supporting research, raising awareness, and providing educational resources to individuals and families affected by this condition.


Official website here: www.tylershope.org

Who is the CEO of Tyler's Hope For Dystonia Cure Inc?

Richard A Staab is the Director of Tyler's Hope For Dystonia Cure Inc.


Official website here: www.tylershope.org

What is the revenue of Tyler's Hope For Dystonia Cure Inc?

Tyler's Hope For Dystonia Cure Inc's revenue in 2021 was $485,740.


Official website here: www.tylershope.org

Who are the executives of Tyler's Hope For Dystonia Cure Inc and what are their salaries?

The average compensation at Tyler's Hope For Dystonia Cure Inc during 2021 was $45,675. There is 1 employee and 150 volunteers at Tyler's Hope For Dystonia Cure Inc.


Here are 20 key members and their salaries:


Patrick Banis (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Alan Chatman (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Scott Costello (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Daniel R Galasso (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kevin Griffin (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
John Hayes (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Theodore B Seagroves Iii (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Franklin K Lentz Jr (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lisa Rutenberg Kinsell (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Miles Kinsell (Vp Legal Issues)
  • Compensation: $0
  • Related: $0
  • Other: $0
Brian Leslie (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
John Marti (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dr Kelli Ross (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Wj Rossi (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Brian Scarborough (Vp Comm Affairs)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kenneth E Staab (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Michelle Staab (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Richard A Staab (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Michele Streitmatter (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Stephen Tanner (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.tylershope.org

Where can I find the form 990 for Tyler's Hope For Dystonia Cure Inc?

Tyler's Hope For Dystonia Cure Inc's most recent form 990 was submitted in 2021 and can be accessed here.


Official website here: www.tylershope.org

Learn more at the official website: www.tylershope.org

Mission Statement of Tyler's Hope For Dystonia Cure Inc

Tyler's Hope for Dystonia Cure Inc is an organization dedicated to making significant strides in the field of DYT1 Dystonia, a neurological movement disorder. Established with a clear mission, this nonprofit aims to drive research towards discovering a cure, identify effective treatments, and promote awareness and education about DYT1 Dystonia. By contributing funds to organizations with similar objectives, Tyler's Hope for Dystonia Cure Inc works tirelessly to support efforts aimed at alleviating the challenges associated with this disorder. In essence, the organization is committed to bringing hope and improvement to the lives of those affected by DYT1 Dystonia, striving to create a future where individuals can live with reduced symptoms and improved quality of life.

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Impact




July, 2024

Tyler's Hope For Dystonia Cure Inc is making a significant impact in advancing research for a cure, discovering effective treatments, and promoting awareness and education of the neurological movement disorder DYT1 Dystonia. Through their efforts to contribute funds to organizations dedicated to finding a cure and promoting awareness of DYT1 Dystonia, they are playing a crucial role in supporting the fight against this debilitating disease. Their mission reflects a commitment to making a tangible difference in the lives of those affected by DYT1 Dystonia, offering hope for a brighter future.




This information is meant to be a general summary of Tyler's Hope For Dystonia Cure Inc. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$485,740 (2021)
Expenses
$365,889 (2021)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2021.

  • Investment Income: $2,942
  • Gross Receipts: $485,740

Assets and Liabilities:

  • Total Assets: $489,534
  • Total Liabilities: $0
  • Net Assets: $489,534

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Organization Details

Founding Year

2005

Principal Officer

Richard A Staab

Main Address

13301 US HIGHWAY 441, ALACHUA, FL, 32615

NTEE Category

Code: G128 - Disease

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