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The Hemophilia Alliance Group Purchasing Organization

The Hemophilia Alliance

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 202529619 ✦ Clearwater, FL ✦ Designated as a 501(c)(3)

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Overview

What is The Hemophilia Alliance Group Purchasing Organization?

The Hemophilia Alliance Group Purchasing Organization, operating under the name The Hemophilia Alliance, is a nonprofit based in Clearwater, Florida. Its primary mission is to act as a broker and purchasing agent for its member hemophilia treatment centers, securing favorable purchasing terms for blood clotting factors and related materials. The organization provides counseling to help these centers comply with state and federal laws and grant requirements. It also aids in the production of educational materials, promotes the value of the comprehensive care model, and advocates for this model to policy makers, patients, and third-party payers. The Hemophilia Alliance's ultimate goal is to ensure that its member centers have the necessary expertise, resources, and public support to sustain their integrated clinical and pharmacy services for individuals with bleeding and clotting disorders, thereby enhancing their overall care. The organization currently employs 9 individuals.


Official website here: www.hemoalliance.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 72% (Two-Star out of Four Stars)

The Hemophilia Alliance Group Purchasing Organization has received a 72% rating from Charity Navigator, reflecting a Two-Star status. This score is derived solely from the Accountability & Finance beacon, indicating that the organization has a moderately reliable financial footing. The high marks for independent board membership and the absence of asset diversion contribute positively to this score.

Strengths include a fully independent board and solid program expense ratio, with over 78% of expenses allocated directly to programs. The organization demonstrates transparency by listing its website on tax forms and maintaining a conflict of interest policy. However, the lack of a whistleblower policy is a significant limitation that could affect accountability.

Overall, while the organization displays many strengths in governance and financial practices, the absence of a whistleblower policy may raise concerns regarding transparency and stakeholder trust. Continued focus on addressing this gap could enhance its overall accountability and potentially improve its rating in the future.


This AI summary has been generated from information found on Charity Navigator.

Is The Hemophilia Alliance Group Purchasing Organization legitimate?

The Hemophilia Alliance Group Purchasing Organization is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Hemophilia Alliance Group Purchasing Organization submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $1,148,361
Professional Fundraising Fees: $0
Other Salaries and Wages: $704,586

For more financial information, click here


Official website here: www.hemoalliance.org

What is the mission statement of The Hemophilia Alliance Group Purchasing Organization?

The Hemophilia Alliance Group Purchasing Organization's mission is to support hemophilia treatment centers by providing them with the necessary resources and expertise to sustain their integrated clinical and pharmacy services for individuals with bleeding and clotting disorders. They act as a broker and purchasing agent, helping members obtain favorable terms for blood clotting factor and other related treatment materials. Moreover, they counsel centers on compliance with state and federal laws and grant requirements, aid in the creation of educational materials, and promote the importance of the comprehensive care model to policy makers, patients, and third-party payers.


Official website here: www.hemoalliance.org

Who is the CEO of The Hemophilia Alliance Group Purchasing Organization?

Joseph N Pugliese is the Director of The Hemophilia Alliance Group Purchasing Organization.


Official website here: www.hemoalliance.org

What is the revenue of The Hemophilia Alliance Group Purchasing Organization?

The Hemophilia Alliance Group Purchasing Organization's revenue in 2022 was $8,928,051.


Official website here: www.hemoalliance.org

Who are the executives of The Hemophilia Alliance Group Purchasing Organization and what are their salaries?

The average compensation at The Hemophilia Alliance Group Purchasing Organization during 2022 was $205,883. There are 9 employees at The Hemophilia Alliance Group Purchasing Organization.


Here are 23 key members and their salaries:


Becky Burns (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Colleen Druzgal (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dan Dalton (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dean M Hindenlang Phd (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Eric Gray Cpa (Vice Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Heidi Lane (Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kimo Stine (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Laurie Reger (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Leigh Carpenter Rph (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Michael Silvey Md (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ralph Woods (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Regina Butler Rn-Bc (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Stacy Croteau (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Stephanie Raymond (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Steven M Powell Mba (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Zack Duffy (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jeffrey Blake (Vice President)
  • Compensation: $254,898
  • Related: $0
  • Other: $36,738
Joseph N Pugliese (President)
  • Compensation: $647,475
  • Related: $0
  • Other: $146,619
Sean Singh (Vice President)
  • Compensation: $245,988
  • Related: $0
  • Other: $26,883
Jeffrey A Amond (Director, Member & Community Relations)
  • Compensation: $155,925
  • Related: $0
  • Other: $9,356
Karen H Hause (Director, Member & Community Relations)
  • Compensation: $153,433
  • Related: $0
  • Other: $9,528
Kiet Huynh (Manager Of It Solutions)
  • Compensation: $113,313
  • Related: $0
  • Other: $11,824
Mark A Plencner (Director, Member & Community Relations)
  • Compensation: $173,065
  • Related: $0
  • Other: $19,855


Official website here: www.hemoalliance.org

Where can I find the form 990 for The Hemophilia Alliance Group Purchasing Organization?

The Hemophilia Alliance Group Purchasing Organization's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.hemoalliance.org

Learn more at the official website: www.hemoalliance.org

Mission Statement of The Hemophilia Alliance Group Purchasing Organization

The Hemophilia Alliance Group Purchasing Organization is committed to ensuring that its member Hemophilia Treatment Centers possess the necessary expertise, resources, and public support to maintain their integrated clinical and pharmacy services for individuals suffering from bleeding and clotting disorders. In essence, the organization's mission is to provide its member centers with the tools and resources necessary to sustain a comprehensive care model for these individuals.

To accomplish this, The Hemophilia Alliance serves as a broker or purchasing agent for its members, securing favorable purchasing terms for blood clotting factors and other materials used in the treatment of hemophilia and related bleeding disorders. Furthermore, the organization offers counseling to its members on complying with state and federal laws, as well as grant requirements. Additionally, it aids in the production of educational pieces, promotes the value of the comprehensive care model to policy makers, patients, and third-party payers. By doing so, The Hemophilia Alliance Group Purchasing Organization strives to support its member centers in their mission to provide comprehensive and effective care to individuals with bleeding and clotting disorders.

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Impact




August, 2024

The Hemophilia Alliance Group Purchasing Organization's impact is significant in ensuring member hemophilia treatment centers have the expertise, resources, and public support to sustain their integrated clinical and pharmacy services for individuals with bleeding and clotting disorders. By acting as a broker and purchasing agent for members to obtain favorable purchasing terms for crucial materials used in treating individuals with hemophilia and related bleeding disorders, this organization plays a vital role in supporting the provision of essential care. Additionally, their efforts in counseling centers on compliance with state and federal laws and grant requirements, aiding in producing educational materials, and advocating for the comprehensive care model to policymakers, patients, and third-party payers have a far-reaching impact on the hemophilia community.




This information is meant to be a general summary of The Hemophilia Alliance Group Purchasing Organization. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$8,928,051 (2022)
Expenses
$6,260,744 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $151,636
  • Program Service Revenue: $8,069,115
  • Gross Receipts: $8,928,051

Assets and Liabilities:

  • Total Assets: $21,636,521
  • Total Liabilities: $12,381,516
  • Net Assets: $9,255,005

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Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

ADMIN FEES

Revenue

$7,846,115

MEETINGS/CONFERENCE

Revenue

$148,000

WEBINAR

Revenue

$75,000

Organization Details

Founding Year

2005

Principal Officer

Joseph N Pugliese

Main Address

2655 ULMERTON RD 263, CLEARWATER, FL, 33762

NTEE Category

Code: G192 - Disease

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