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International Wagr Syndrome Association

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 201947169 ✦ Montgomery village, MD ✦ Designated as a 501(c)(3)

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Overview

What is International Wagr Syndrome Association?

The International Wagr Syndrome Association (IWSA) is a patient advocacy organization, boasting around 225 member families worldwide. Acting as a supportive network, IWSA facilitates a range of activities that promote communication and share information related to Wagr Syndrome. The organization's mission is centered around advocating for individuals and families affected by this syndrome, providing them with a platform for mutual assistance and understanding.


Official website here: www.wagr.org

What do the Facebook reviews say about International Wagr Syndrome Association?

100% of 9 reviewers on Facebook recommend the International Wagr Syndrome Association. Here is a summary of their reviews:

The feedback reflects strong appreciation for the community that the organization fosters. Many feel a deep sense of support and connection, highlighting how the association aids families dealing with Wagr Syndrome. Reviewers describe the community as strong, resilient, and inspirational, reinforcing the positive impact that IWSA has on their lives.

Overall, it is clear that the International Wagr Syndrome Association effectively delivers on its commitment to providing support and resources to families navigating the challenges associated with Wagr Syndrome. The positive sentiment among members suggests a thriving community that truly makes a difference for those involved.


This AI summary has been generated from reviews found on Facebook.

Is International Wagr Syndrome Association legitimate?

International Wagr Syndrome Association is a legitimate nonprofit organization registered as a 501(c)(3) entity. International Wagr Syndrome Association submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Official website here: www.wagr.org

What is the mission statement of International Wagr Syndrome Association?

The International Wagr Syndrome Association, with around 225 member families, operates as a patient advocacy organization. Their primary mission is to support these families and facilitate the sharing of information related to Wagr Syndrome. The Association achieves this through various engaging activities, serving as a platform for connection and knowledge exchange. However, the provided information does not specify any explicit goals or objectives beyond advocacy and information sharing.


Official website here: www.wagr.org

Who is the CEO of International Wagr Syndrome Association?

Shari Krantz is the Executive Director of International Wagr Syndrome Association.


Official website here: www.wagr.org

What is the revenue of International Wagr Syndrome Association?

International Wagr Syndrome Association's revenue in 2022 was $55,811.


Official website here: www.wagr.org

Who are the executives of International Wagr Syndrome Association and what are their salaries?


Here are 7 key members and their salaries:


Kelly Trout (Chairman)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jenny Gunkle (Vice Chairman (Thru 1/2022))
  • Compensation: $0
  • Related: $0
  • Other: $0
John Morris (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Nikki Hoffman (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tom Cox (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Linda Van De Sande (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Shari Krantz (Executive Director)
  • Compensation: $19,556
  • Related: $0
  • Other: $0


Official website here: www.wagr.org

Where can I find the form 990EZ for International Wagr Syndrome Association?

International Wagr Syndrome Association's most recent form 990EZ was submitted in 2022 and can be accessed here.


Official website here: www.wagr.org

Learn more at the official website: www.wagr.org

Mission Statement of International Wagr Syndrome Association

The International Wagr Syndrome Association, abbreviated as iwSA, serves as a patient advocacy organization with a substantial membership base of around 225 families. Their primary focus is on supporting and sharing information with these families, fostering a sense of community and mutual assistance. iwSA's mission is multifaceted, encompassing various activities that aim to engage and assist these families in managing the challenges associated with Wagr Syndrome. By doing so, the organization aims to provide a supportive environment where affected families can draw strength, share experiences, and gain valuable insights.

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Impact




August, 2024

The International WAGR Syndrome Association has had a significant impact on the lives of individuals and families affected by WAGR Syndrome. Through its patient advocacy efforts and support programs, the association has provided a vital network for approximately 225 member families. By offering information-sharing activities and support services, the association has contributed to improving the quality of life for those with WAGR Syndrome and their loved ones. The organization's mission to advocate for patients and raise awareness of this rare disease has made a meaningful difference in the WAGR Syndrome community.




This information is meant to be a general summary of International Wagr Syndrome Association. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$55,811 (2022)
Expenses
$66,804 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $48
  • Gross Receipts: $55,832

Assets and Liabilities:

  • Total Assets: $82,940
  • Total Liabilities: $253
  • Net Assets: $82,687

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Organization Details

Principal Officer

Shari Krantz

Main Address

PO BOX 2875, MONTGOMERY VILLAGE, MD, 20886

NTEE Category

Code: G20 - Disease

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