Overview
What is C & S Patient Education Foundation?
The C & S Patient Education Foundation, operating under the name Conquer Chiari, is a nonprofit organization based in Wexford, Pennsylvania. Its primary mission is to improve the lives of individuals affected by Chiari Malformation and Syringomyelia by providing accurate information, raising awareness, and sponsoring research. The organization has made significant strides in these areas, serving as a resource for information through their website and publications, sponsoring research at the Conquer Chiari Research Center at the University of Akron, and promoting awareness through annual fundraising events. The foundation directs most of its funding towards the Conquer Chiari Research Center, which focuses on improving diagnostics, assessing cognitive effects, genetic research, and other critical areas related to Chiari Malformation.
Official website here: www.conquerchiari.org
Is C & S Patient Education Foundation legitimate?
C & S Patient Education Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. C & S Patient Education Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $135,027
For more financial information, click here
Official website here: www.conquerchiari.org
What is the mission statement of C & S Patient Education Foundation?
The C & S Patient Education Foundation is committed to enhancing the experiences and outcomes for individuals with Chiari and Syringomyelia. This is achieved through various means, including:
1. Offering accurate, updated, and easily understandable information to patients, enabling them to take charge of their healthcare and make informed decisions.
2. Raising awareness among family, friends, and the general public, empowering them to provide better support.
3. Increasing awareness and providing accurate, up-to-date information to the medical community, reducing misdiagnoses and improper treatments.
4. Sponsoring research to advance the understanding of these conditions, eventually aiming to conquer Chiari.
5. Organizing events such as the Conquer Chiari Walk Across America, a nationwide series of fundraising walks, to raise funds for their cause.
6. Providing resources through their website (www.conquerchiari.org) and various publications, serving as a valuable source of information on Chiari and related topics.
Official website here: www.conquerchiari.org
Who is the CEO of C & S Patient Education Foundation?
Richard Labuda is the Executive Director, Secret of C & S Patient Education Foundation.
Official website here: www.conquerchiari.org
What is the revenue of C & S Patient Education Foundation?
C & S Patient Education Foundation's revenue in 2022 was $421,843.
Official website here: www.conquerchiari.org
Who are the executives of C & S Patient Education Foundation and what are their salaries?
The average compensation at C & S Patient Education Foundation during 2022 was $45,009. There are 3 employees and 150 volunteers at C & S Patient Education Foundation.
Here are 5 key members and their salaries:
- Compensation: $86,750
- Related: $0
- Other: $28,847
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.conquerchiari.org
Where can I find the form 990 for C & S Patient Education Foundation?
C & S Patient Education Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.conquerchiari.org
Learn more at the official website: www.conquerchiari.org
Mission Statement of C & S Patient Education Foundation
The C&S Patient Education Foundation, dedicated to conquering Chiari and related conditions, aims to enhance the experiences and outcomes of patients. It accomplishes this by providing accurate, up-to-date, and easily understandable information to patients, enabling them to take charge of their healthcare and make informed decisions. The foundation recognizes the importance of empowering patients with knowledge, which is essential for effective self-care and treatment choices.
Beyond educating patients, the C&S Patient Education Foundation also strives to raise awareness among family, friends, and the general public. By doing so, it aims to foster a better understanding of the challenges faced by patients with Chiari and Syringomyelia, ultimately leading to enhanced support networks.
Furthermore, the foundation is committed to raising awareness within the medical community. By supplying accurate and up-to-date information to healthcare professionals, it hopes to reduce diagnostic errors and improve treatment methods. Additionally, the C&S Patient Education Foundation sponsors research to advance the understanding of these conditions. Through its annual Conquer Chiari Walk Across America, research conferences, and the Conquer Chiari Research Center at the University of Akron, the foundation supports projects focusing on improving diagnostics, assessing cognitive effects, conducting genetic research, and exploring other critical areas in Chiari and Syringomyelia research.
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Impact
October, 2024
C & S Patient Education Foundation has made significant strides in advancing the understanding and treatment of Chiari malformation and syringomyelia. Through its comprehensive website and various publications, it provides accessible and accurate information, empowering patients to take control of their healthcare decisions. This initiative not only enhances the patients' knowledge but also raises awareness among their families and the general public, fostering support systems for those affected.
The organization sponsors crucial research through the Conquer Chiari Research Center at the University of Akron, which is the world’s first research laboratory dedicated exclusively to Chiari malformation. By providing grants for projects aimed at improving diagnostics and assessing cognitive effects, the foundation is at the forefront of advancing medical knowledge in critical areas related to these conditions. The center actively collaborates with leading clinicians and scientists, promoting a deeper understanding of the disease and improving patient outcomes.
Additionally, the Conquer Chiari Walk Across America serves as a powerful grassroots movement to increase awareness on a national level, bringing communities together to support a common cause. Overall, C & S Patient Education Foundation plays a pivotal role in transforming the patient experience by enhancing understanding, improving healthcare, and fostering research initiatives necessary to conquer Chiari malformation and syringomyelia.
This information is meant to be a general summary of C & S Patient Education Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $1,386
- Program Service Revenue: $11,291
- Gross Receipts: $510,848
Assets and Liabilities:
- Total Assets: $535,451
- Total Liabilities: $19,416
- Net Assets: $516,035
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
PROGRAM RELATED SALES
Revenue
$11,291
Organization Details
Founding Year
2004
Phone
(724) 940-0116Principal Officer
Richard Labuda
Main Address
320 OSPREY COURT, WEXFORD, PA, 15090
Website
www.conquerchiari.orgNTEE Category
Code: E70 - Health
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