Overview
What is Dup 15Q Alliance?
Dup 15Q Alliance is a nonprofit organization situated in Matthews, North Carolina, dedicated to supporting families impacted by Dup15Q Syndrome for over 28 years. They provide a range of resources and assistance to uplift their community, including new family support calls, parent-to-parent ambassadors, free counseling services, educational materials about the syndrome, financial planning guidance, and community support groups. Their mission is to empower individuals with Dup15Q Syndrome and related rare diseases to thrive by driving breakthrough research and life-changing therapies, while advocating for families and promoting a world where these individuals can live fulfilling lives. The organization envisions a society where families, clinicians, and advocates collaborate to enable individuals with Dup15Q Syndrome to lead productive lives. [Word count: 114]
Official website here: www.dup15q.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 98% (Four-Star out of Four Star rating)
Dup 15Q Alliance has achieved a remarkable 98% rating from Charity Navigator, reflecting its strong performance in accountability and finance. With a perfect score of 100 in accountability practices, the organization demonstrates excellent governance, having 100% independent board members and comprehensive financial oversight. The charity’s program expense ratio of 77.13% indicates a significant focus on programmatic activities, ensuring that funds are effectively utilized for their mission.
The organization also excels in constituent feedback, boasting a perfect score in feedback collection and usage, which indicates a commitment to understanding and addressing the needs of those they serve. The presence of various policies, including conflict of interest and whistleblower policies, further showcases their adherence to high ethical standards and accountability measures.
However, there are some areas for improvement noted in the equity strategies, where it received an 83 out of 100. Specifically, the organization’s scores in equity data and policies suggest that there may be room for enhancement in measuring and addressing equity issues within its operations. Overall, Dup 15Q Alliance stands out as a highly rated nonprofit with a solid foundation in governance and community engagement, while also identifying potential avenues for growth.
This AI summary has been generated from information found on Charity Navigator.
Is Dup 15Q Alliance legitimate?
Dup 15Q Alliance is a legitimate nonprofit organization registered as a 501(c)(3) entity. Dup 15Q Alliance submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $289,272
For more financial information, click here
Official website here: www.dup15q.org
What is the mission statement of Dup 15Q Alliance?
The Dup 15Q Alliance strives to empower individuals living with Dup15Q syndrome and related rare diseases, enabling them to reach their full potential. This is achieved through the advancement of breakthrough research and life-transforming therapeutic treatments. The organization also provides support to families affected by Dup15Q, and advocates for their cause. Their vision is to create a world where families, clinicians, and advocates collaborate to enable individuals with Dup15Q to live fulfilling and productive lives.
Official website here: www.dup15q.org
Who is the CEO of Dup 15Q Alliance?
David Gifford is the Chair of Dup 15Q Alliance.
Official website here: www.dup15q.org
What is the revenue of Dup 15Q Alliance?
Dup 15Q Alliance's revenue in 2022 was $555,149.
Official website here: www.dup15q.org
Who are the executives of Dup 15Q Alliance and what are their salaries?
The average compensation at Dup 15Q Alliance during 2022 was $36,159. There are 8 employees and 10 volunteers at Dup 15Q Alliance.
Here are 12 key members and their salaries:
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Official website here: www.dup15q.org
Where can I find the form 990 for Dup 15Q Alliance?
Dup 15Q Alliance's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.dup15q.org
Learn more at the official website: www.dup15q.org
Mission Statement of Dup 15Q Alliance
Dup 15Q Alliance, a nonprofit organization, is committed to empowering individuals living with Dup15Q syndrome and related rare diseases to reach their full potential. They achieve this by advocating for groundbreaking research and life-transforming therapeutic treatments. The alliance envisions a world where families, healthcare professionals, and advocates collaborate to enable individuals with Dup15Q to live fulfilling and productive lives. By advancing research and developing therapeutic treatments, Dup 15Q Alliance aims to improve the quality of life for those affected by these conditions. Furthermore, the organization provides support to families impacted by Dup15Q syndrome, fostering an environment that nurtures their strength and resilience. The alliance's mission is driven by a vision of a world where individuals with Dup15Q can thrive, supported by a network of families, clinicians, and advocates.
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Impact
July, 2024
Dup 15Q Alliance's impact is profound in the lives of individuals living with Dup15q syndrome and other related rare diseases. By advancing breakthrough research and life-changing therapeutic treatments, the Alliance is instrumental in empowering these individuals to reach their full potential. Additionally, the support provided to families affected by Dup15q and the promotion of advocacy create a community where individuals with Dup15q can live full and productive lives. Through education, outreach, and family support initiatives, Dup15q Alliance has been a pillar of strength for over 28 years, offering resources, mentorship, counseling services, and various support options to uplift and engage the community. Their efforts play a crucial role in helping families navigate the challenges associated with Dup15q syndrome, including symptom management, financial planning, educational support, and community connection activities. Overall, Dup 15Q Alliance's impact is transformative, enhancing the quality of life for individuals and families affected by Dup15q syndrome.
This information is meant to be a general summary of Dup 15Q Alliance. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $9,253
- Program Service Revenue: $15,600
- Gross Receipts: $567,500
Assets and Liabilities:
- Total Assets: $603,477
- Total Liabilities: $80,073
- Net Assets: $523,404
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
SCIENCE SYMPOSIUM
Revenue
$15,600
Organization Details
Founding Year
2004
Phone
(855) 387-1572Principal Officer
David Gifford
Main Address
250 N TRADE ST STE 205 PMB 155, MATTHEWS, NC, 28105
Website
www.dup15q.orgNTEE Category
Code: G80 - Disease
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