Overview
What is Cure Duchenne?
Cure Duchenne, established in 2003, is a nonprofit organization located in Newport Beach, California. Its primary mission is to fund research aimed at discovering a cure for Duchenne Muscular Dystrophy and enhancing the care and health of patients affected by this condition. By coordinating and financing research initiatives, Cure Duchenne has played a significant role in obtaining FDA approval for various drugs beneficial to Duchenne Muscular Dystrophy patients. Beyond research, the organization also strives to raise public awareness about the disease, improve the overall quality of life for patients, and advocate for policies and resources that support Duchenne Muscular Dystrophy care. With a dedicated workforce of 37 individuals, Cure Duchenne is a committed force in the battle against this debilitating condition.
Official website here: www.cureduchenne.org
Is Cure Duchenne legitimate?
Cure Duchenne is a legitimate nonprofit organization registered as a 501(c)(3) entity. Cure Duchenne submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $1,216,122
Professional Fundraising Fees: $0
Other Salaries and Wages: $2,174,238
For more financial information, click here
What is the mission statement of Cure Duchenne?
Cure Duchenne is a non-profit organization devoted to finding a cure for Duchenne muscular dystrophy. They achieve this by funding research and increasing public awareness about the condition. The organization's mission also includes improving the care, health, and quality of life for patients with Duchenne muscular dystrophy. Since its establishment in 2003, Cure Duchenne has played a significant role in having several drugs approved by the FDA for patients with Duchenne muscular dystrophy. The organization's activities aim to advance medical knowledge and support for individuals affected by this condition.
Official website here: www.cureduchenne.org
Who is the CEO of Cure Duchenne?
Debra Miller is the Secretary of Cure Duchenne. The CEO's salary of Cure Duchenne is $151,305 and their total compensation is $151,305.
Official website here: www.cureduchenne.org
What is the revenue of Cure Duchenne?
Who are the executives of Cure Duchenne and what are their salaries?
The average compensation at Cure Duchenne during 2022 was $91,631. There are 37 employees and 18 volunteers at Cure Duchenne.
Here are 18 key members and their salaries (Cure Duchenne's CEO's salary is $151,305 and their total compensation is $151,305):
- Kent Mora (Former Chief Of Staff)
- Lianna Orlando (Vice President Of Research)
- Michael Kelly (Chief Scientific Officer)
- Kathlene Balisy (Finance Director)
- Heather Medlin (Senior Director Of Clinical Development)
- Debra Miller (President & Ceo) [Trustee/Director]
- Bradley Hodges (Former Partner With Cureduchenne Ventures)
- Paul Miller (Secretary) [Trustee/Director]
- Jeffrey Goffman (Director)
- Peter Strelow (Director)
- David Macinnis (Director)
- Dana White (Director)
- Ryan Williams (Director)
- Martin Lehr (Director)
- Elaine Wu (Director)
- Tj Farnsworth (Director)
- Sarah Mcelroy (Director)
- Tim Sullivan (Director)
Official website here: www.cureduchenne.org
Where can I find the form 990 for Cure Duchenne?
The Cure Duchenne’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.cureduchenne.org
Learn more at the official website: www.cureduchenne.org
Mission Statement of Cure Duchenne
Cure Duchenne, a non-profit organization established in 2003, is devoted to making significant strides in the fight against Duchenne Muscular Dystrophy. Their mission is twofold: firstly, they aim to raise funds and coordinate research to discover a cure for this debilitating condition. Secondly, they strive to enhance the care, health, and quality of life for patients affected by Duchenne Muscular Dystrophy.
Cure Duchenne's relentless pursuit of a cure has led to several drugs being approved by the Food and Drug Administration (FDA) for Duchenne Muscular Dystrophy patients. Beyond this, the organization also works tirelessly to increase public awareness about this condition, ensuring that patients receive the support they need and deserve. Their commitment to improving the lives of those affected by Duchenne Muscular Dystrophy is evident in their tireless efforts.
Impact
This information is meant to be a general summary of Cure Duchenne. Please take the time to review official sources before making any decisions based upon the content provided here.
Thursday, August 15, 2024
Cure Duchenne's impact includes coordinating and funding research crucial for finding a cure for Duchenne Muscular Dystrophy. This nonprofit organization has significantly contributed to the approval of several drugs by the FDA for patients with this condition. Additionally, Cure Duchenne works on improving the care, health, and quality of life for individuals with Duchenne Muscular Dystrophy. Through its efforts, Cure Duchenne is making a tangible difference in the lives of those affected by this disease.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Organization Details
Founding Year
2003
Phone
(949) 872-2552
Principal Officer
Debra Miller
Main Address
100 BAYVIEW CIRCLE 5600, NEWPORT BEACH, CA, 92660
Website
www.cureduchenne.org
NTEE Category
Code: H50 - Medical research
If you are a representative of Cure Duchenne and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.