Overview
What is Cure Duchenne?
Cure Duchenne, established in 2003, is a nonprofit organization located in Newport Beach, California. Its primary mission is to fund research aimed at discovering a cure for Duchenne Muscular Dystrophy and enhancing the care and health of patients affected by this condition. By coordinating and financing research initiatives, Cure Duchenne has played a significant role in obtaining FDA approval for various drugs beneficial to Duchenne Muscular Dystrophy patients. Beyond research, the organization also strives to raise public awareness about the disease, improve the overall quality of life for patients, and advocate for policies and resources that support Duchenne Muscular Dystrophy care. With a dedicated workforce of 37 individuals, Cure Duchenne is a committed force in the battle against this debilitating condition.
Official website here: www.cureduchenne.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 87% (Three-Star out of Four Star rating)
Cure Duchenne has received a solid Three-Star rating from Charity Navigator, indicating a strong performance in accountability and finance. The organization boasts an impressive accountability score of 74%, supported by a fully independent board and a clean record with no material diversion of assets. Their financial practices reflect a commitment to transparency, with effective policies in place for conflict of interest, whistleblower protection, and document retention.
The organization excels particularly in leadership and adaptability, achieving a perfect score of 100 in this area. This suggests that Cure Duchenne is not only focused on its current mission but also invests in cultivating leadership within its ranks and demonstrates resilience in navigating external challenges. Additionally, the culture and community aspect is rated highly at 94, reflecting a positive environment and strong community engagement.
While the overall ratings are favorable, potential donors might consider exploring specific initiatives or programs to understand how their contributions directly impact the fight against Duchenne muscular dystrophy. The organization maintains a robust program expense ratio, indicating that a significant portion of its funding is allocated to its mission-driven activities.
This AI summary has been generated from information found on Charity Navigator.
Is Cure Duchenne legitimate?
Cure Duchenne is a legitimate nonprofit organization registered as a 501(c)(3) entity. Cure Duchenne submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $2,563,123
Professional Fundraising Fees: $0
Other Salaries and Wages: $1,540,526
For more financial information, click here
Official website here: www.cureduchenne.org
What is the mission statement of Cure Duchenne?
Cure Duchenne is a non-profit organization devoted to finding a cure for Duchenne muscular dystrophy. They achieve this by funding research and increasing public awareness about the condition. The organization's mission also includes improving the care, health, and quality of life for patients with Duchenne muscular dystrophy. Since its establishment in 2003, Cure Duchenne has played a significant role in having several drugs approved by the FDA for patients with Duchenne muscular dystrophy. The organization's activities aim to advance medical knowledge and support for individuals affected by this condition.
Official website here: www.cureduchenne.org
Who is the CEO of Cure Duchenne?
Debra Miller is the CEO of Cure Duchenne The CEO's salary of Cure Duchenne is $151,304 and their total compensation is $151,304.
Official website here: www.cureduchenne.org
What is the revenue of Cure Duchenne?
Cure Duchenne's revenue in 2023 was $7,357,938.
Official website here: www.cureduchenne.org
Who are the executives of Cure Duchenne and what are their salaries?
The average compensation at Cure Duchenne during 2023 was $117,247. There are 35 employees at Cure Duchenne.
Here are 22 key members and their salaries (Cure Duchenne's CEO's salary is $151,304 and their total compensation is $151,304):
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- Compensation: $151,304
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- Compensation: $175,000
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- Compensation: $225,000
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- Compensation: $225,000
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- Compensation: $220,141
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- Compensation: $175,000
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- Compensation: $170,353
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- Compensation: $166,267
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- Compensation: $151,051
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- Other: $0
- Compensation: $183,333
- Related: $0
- Other: $0
Official website here: www.cureduchenne.org
Where can I find the form 990 for Cure Duchenne?
Cure Duchenne's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.cureduchenne.org
Learn more at the official website: www.cureduchenne.org
Mission Statement of Cure Duchenne
Cure Duchenne, a non-profit organization established in 2003, is devoted to making significant strides in the fight against Duchenne Muscular Dystrophy. Their mission is twofold: firstly, they aim to raise funds and coordinate research to discover a cure for this debilitating condition. Secondly, they strive to enhance the care, health, and quality of life for patients affected by Duchenne Muscular Dystrophy.
Cure Duchenne's relentless pursuit of a cure has led to several drugs being approved by the Food and Drug Administration (FDA) for Duchenne Muscular Dystrophy patients. Beyond this, the organization also works tirelessly to increase public awareness about this condition, ensuring that patients receive the support they need and deserve. Their commitment to improving the lives of those affected by Duchenne Muscular Dystrophy is evident in their tireless efforts.
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Impact
October, 2024
Cure Duchenne plays a critical role in the fight against Duchenne muscular dystrophy (DMD) by coordinating and funding essential research aimed at finding a viable cure. Established in 2003, the organization has made significant strides in not only advancing scientific understanding but also improving treatment options for patients. Its efforts have been pivotal in facilitating the FDA approval of several drugs, thereby enhancing care for individuals affected by DMD.
In addition to research funding, Cure Duchenne is dedicated to raising public awareness about the challenges faced by those living with DMD. This heightened awareness helps foster a more supportive environment and contributes to potential funding opportunities for ongoing research initiatives. The ultimate goal of Cure Duchenne is to improve the quality of life for patients, ensuring that those affected by this debilitating condition receive the best possible care and support as advancements are made in medical treatments.
This information is meant to be a general summary of Cure Duchenne. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $363,250
- Gross Receipts: $16,749,448
Assets and Liabilities:
- Total Assets: $28,410,543
- Total Liabilities: $310,658
- Net Assets: $28,099,885
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Organization Details
Founding Year
2003
Principal Officer
Debra Miller
Website
www.cureduchenne.orgNTEE Category
Code: H50 - Medical research
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