Overview
What is The Amyloidosis Foundation?
The Amyloidosis Foundation, situated in Clarkston, MI, is a dedicated nonprofit organization. Its primary mission is to promote awareness and education about amyloidosis, a lesser-known disease. They actively assist patients in securing skilled medical care and back research efforts related to the condition. The organization's activities extend beyond their base, as they participate in medical conferences worldwide to spread awareness about amyloidosis. Furthermore, The Amyloidosis Foundation offers patient support services and conducts public education to empower individuals and families affected by the disease.
Official website here: www.amyloidosis.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 94% (Four-Star out of Four Star Rating)
The Amyloidosis Foundation has achieved an impressive 94% rating on Charity Navigator, reflecting strong performance in both accountability and finance. With a score of 96 in this category, the foundation demonstrates excellent governance practices, including a fully independent board and robust policies for conflict of interest and financial oversight. The organization dedicates a significant portion of its expenses, approximately 83.86%, directly to its programs, underscoring its commitment to serving its mission.
User feedback highlights the foundation's impactful support for individuals affected by amyloidosis. Many reviewers express gratitude for the assistance and resources provided, particularly in navigating the complexities of the disease and facilitating access to treatment options. Personal stories of fundraising efforts in memory of loved ones illustrate the foundation's community impact and the hope it provides to families dealing with this challenging illness.
Despite the overwhelmingly positive feedback, some users emphasize the ongoing need for further research into amyloidosis. This reflects a broader concern within the community for advancing treatment options and raising awareness about the disease. Overall, the Amyloidosis Foundation is recognized for its effective advocacy and support, though continued efforts in research and education are seen as essential for improving outcomes for those impacted.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
What do the Facebook reviews say about The Amyloidosis Foundation?
100% of 16 reviewers on Facebook recommend The Amyloidosis Foundation. Here is a summary of their reviews:
Many individuals appreciate the extensive support and valuable information provided by the organization. Commenters frequently highlight the foundation's role in assisting patients and families coping with amyloidosis, which they describe as a challenging condition.
Overall, those who have interacted with The Amyloidosis Foundation express gratitude for the resources and guidance available, indicating a strong and positive impact on their understanding and management of the disease. The nonprofit clearly fulfills its mission to support those affected by amyloidosis, leaving users highly satisfied with their experience.
This AI summary has been generated from reviews found on Facebook.
Is The Amyloidosis Foundation legitimate?
The Amyloidosis Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Amyloidosis Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $62,031
Professional Fundraising Fees: $0
Other Salaries and Wages: $108,715
For more financial information, click here
Official website here: www.amyloidosis.org
What is the mission statement of The Amyloidosis Foundation?
The Amyloidosis Foundation's mission is centered around increasing awareness and education about amyloidosis. They strive to assist patients in locating qualified medical care related to this condition. Furthermore, the organization supports research to advance understanding and potential treatments for amyloidosis. In addition to these efforts, they actively participate in medical conferences and provide patient support services and public education.
Official website here: www.amyloidosis.org
Who is the CEO of The Amyloidosis Foundation?
Mary E Odonnell is the CEO of The Amyloidosis Foundation The CEO's salary of The Amyloidosis Foundation is $62,030 and their total compensation is $62,030.
Official website here: www.amyloidosis.org
What is the revenue of The Amyloidosis Foundation?
The Amyloidosis Foundation's revenue in 2023 was $535,162.
Official website here: www.amyloidosis.org
Who are the executives of The Amyloidosis Foundation and what are their salaries?
The average compensation at The Amyloidosis Foundation during 2023 was $56,915. There are 3 employees at The Amyloidosis Foundation.
Here are 8 key members and their salaries (The Amyloidosis Foundation's CEO's salary is $62,030 and their total compensation is $62,030):
- Compensation: $62,030
- Related: $0
- Other: $0
- Compensation: $0
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- Other: $0
- Compensation: $0
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- Other: $0
- Compensation: $0
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- Other: $0
- Compensation: $0
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- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.amyloidosis.org
Where can I find the form 990 for The Amyloidosis Foundation?
The Amyloidosis Foundation's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.amyloidosis.org
Learn more at the official website: www.amyloidosis.org
Mission Statement of The Amyloidosis Foundation
The Amyloidosis Foundation, a dedicated organization, is committed to increasing education and awareness about amyloidosis, a lesser-known medical condition. Its mission extends beyond enlightening the public; it also aims to assist patients in locating qualified medical care. Furthermore, the foundation supports research in the field of amyloidosis, aiming to contribute to advancements in diagnoses and treatments. The organization accomplishes these goals by participating in medical conferences and disseminating information globally. In addition, The Amyloidosis Foundation offers patient support services and public education, ensuring that those affected by the condition have access to necessary resources and knowledge.
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Impact
July, 2024
The Amyloidosis Foundation's impact lies in its mission to increase education and awareness of amyloidosis, assist patients in finding qualified medical care, and support research. This organization educates the public and medical community about amyloidosis through its presence at medical conferences and global awareness campaigns. Additionally, it provides crucial support services to patients and contributes to medical research in the field. Through these efforts, the Amyloidosis Foundation plays a significant role in improving outcomes for individuals affected by amyloidosis.
This information is meant to be a general summary of The Amyloidosis Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $24,762
- Gross Receipts: $1,264,850
Assets and Liabilities:
- Total Assets: $1,056,187
- Total Liabilities: $21,399
- Net Assets: $1,034,788
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Organization Details
Founding Year
2003
Principal Officer
Mary Odonnell
Website
www.amyloidosis.orgNTEE Category
Code: H25 - Medical research
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