Overview
What is World Federation Of Hemophilia Usa?
The World Federation of Hemophilia USA, based in Albany, New York, is a nonprofit organization dedicated to advancing the global mission of the World Federation of Hemophilia (WFH) within the United States. Their primary goal is to enhance care and support for individuals with inherited bleeding disorders worldwide. They execute this mission by providing essential resources and raising awareness within the US. The WFH Humanitarian Aid Program, spearheaded by WFH USA, bridges gaps in access to care and treatment in emerging countries. This initiative offers education, training, and donated factor and non-factor replacement therapy to national member organizations, hemophilia treatment centres, and healthcare practitioners. By facilitating access to reliable and consistent treatment, WFH USA enables people with inherited bleeding disorders to receive essential care, regardless of their location or gender. Additionally, WFH USA is solely responsible for soliciting donors and potential donors for the WFH Humanitarian Aid Program, both in terms of monetary contributions and in-kind donations of clotting factor and other pharmaceutical products.
Official website here: www.wfhusa.org
What are the reviews and ratings of this charity?
Rating from Charity Navigator: 75%, Three-Star out of Four Star rating
The World Federation of Hemophilia USA has achieved a Three-Star rating, indicating a solid performance based on accountability and finance metrics. The organization boasts a high level of transparency, with a fully independent board and excellent scores in areas such as financial oversight and conflict of interest policies. Their program expense ratio is notably high at 99.97%, suggesting a strong commitment to allocating funds directly towards their mission.
However, certain areas require improvement, particularly in fundraising efficiency, where the organization scored only 5 out of 25 points. This may reflect challenges in generating funds relative to their costs. Additionally, the absence of a whistleblower policy and document retention policy, which are critical for governance and operational integrity, could be potential weaknesses in their organizational practices.
Despite these limitations, the overall indicators of financial health and governance suggest that the World Federation of Hemophilia USA is a responsible nonprofit that effectively manages its resources to support individuals affected by hemophilia. Continued focus on enhancing fundraising strategies and addressing governance gaps could further strengthen their operational foundation.
This AI summary has been generated from information found on Charity Navigator.
What do the Facebook reviews say about World Federation Of Hemophilia Usa?
86% of 28 reviewers on Facebook recommend the World Federation of Hemophilia USA. Here is a summary of their reviews:
Many users appreciate the organization as a valuable resource for information about bleeding disorders. The emphasis on education and knowledge-sharing stands out, indicating that the nonprofit successfully meets the needs of individuals and families affected by these conditions.
Additionally, the positive sentiment suggests that the services offered are well-received, creating a supportive community for those seeking assistance and information. Overall, it seems that the World Federation of Hemophilia USA effectively delivers on its mission to empower individuals with bleeding disorders through education and engagement.
This AI summary has been generated from reviews found on Facebook.
Is World Federation Of Hemophilia Usa legitimate?
World Federation Of Hemophilia Usa is a legitimate nonprofit organization registered as a 501(c)(3) entity. World Federation Of Hemophilia Usa submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $92,025
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.wfhusa.org
What is the mission statement of World Federation Of Hemophilia Usa?
The World Federation of Hemophilia USA, an affiliate of the international charitable organization based in Montreal, works towards advancing the global mission of the World Federation of Hemophilia within the US. Their primary objective is to enhance and sustain care for individuals with inherited bleeding disorders on a global scale. Through their efforts in the US, they aim to develop resources and raise awareness for the global vision of "Treatment for All." Charitable solicitations for the shared goals of WFH and WFH USA within the US are conducted through WFH USA, a 501c3 affiliated entity.
Official website here: www.wfhusa.org
Who is the CEO of World Federation Of Hemophilia Usa?
Eric Stolte is the President of World Federation Of Hemophilia Usa.
Official website here: www.wfhusa.org
What is the revenue of World Federation Of Hemophilia Usa?
World Federation Of Hemophilia Usa's revenue in 2022 was $684,615,118.
Official website here: www.wfhusa.org
Who are the executives of World Federation Of Hemophilia Usa and what are their salaries?
There 12 volunteers at World Federation Of Hemophilia Usa.
Here are 14 key members and their salaries:
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- Other: $84,761
Official website here: www.wfhusa.org
Where can I find the form 990 for World Federation Of Hemophilia Usa?
World Federation Of Hemophilia Usa's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.wfhusa.org
Learn more at the official website: www.wfhusa.org
Mission Statement of World Federation Of Hemophilia Usa
The World Federation of Hemophilia USA, an affiliate of the international charitable organization based in Montreal, is dedicated to advancing the global mission of the World Federation of Hemophilia within the US. This nonprofit organization strives to improve and sustain care for individuals with inherited bleeding disorders around the world. By developing resources and building awareness within the US, the World Federation of Hemophilia USA supports the global vision of "Treatment for All."
Charitable solicitations for the common purposes of the World Federation of Hemophilia and the World Federation of Hemophilia USA within the US are conducted through the World Federation of Hemophilia USA, a 501c3 affiliated entity. This nonprofit organization plays a crucial role in furthering the mission of the World Federation of Hemophilia by focusing on the US market. Through its efforts, the World Federation of Hemophilia USA works to ensure that people with inherited bleeding disorders in the US and beyond receive the care and resources they need to live healthy lives.
The World Federation of Hemophilia USA's primary goal is to improve and sustain care for individuals with inherited bleeding disorders in the US and around the world. By working in collaboration with the World Federation of Hemophilia, this nonprofit organization contributes to the global vision of providing treatment to all those in need. Through developing resources and building awareness within the US, the World Federation of Hemophilia USA makes a significant impact on the lives of individuals with inherited bleeding disorders and their communities.
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Impact
October, 2024
The World Federation of Hemophilia USA (WFH USA) significantly enhances access to care and treatment for individuals with inherited bleeding disorders, both within the United States and globally. By advocating for the global mission of the WFH, they work to improve and sustain care for affected populations around the world.
One of the WFH USA's key initiatives is the Humanitarian Aid Program, which addresses the stark disparities in access to treatment faced by patients in emerging countries. This program supports national member organizations, hemophilia treatment centers, and healthcare practitioners by providing essential education, training, and donated therapies. As a result, it enables individuals with bleeding disorders to reliably access safe and consistent treatment, regardless of their circumstances.
WFH USA's impact extends beyond direct medical support; it also plays a crucial role in promoting awareness and understanding of bleeding disorders. By incentivizing governmental investment in treatment and care, the organization illustrates the benefits of such investments—leading to better health outcomes and the introduction of preventative measures like prophylaxis and elective surgeries in more than 60 countries. Ultimately, WFH USA's efforts contribute to the realization of their vision: Treatment for All, ensuring equitable access to care for individuals with hemophilia and other inherited bleeding disorders.
This information is meant to be a general summary of World Federation Of Hemophilia Usa. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $42,836
- Program Service Revenue: -$26,415
- Gross Receipts: $684,615,118
Assets and Liabilities:
- Total Assets: $1,856,452
- Total Liabilities: $720,864
- Net Assets: $1,135,588
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Investment income Endowment fund
Revenue
-$26,415
Organization Details
Founding Year
1996
Phone
(877) 417-7944Principal Officer
Eric Stolte
Main Address
PMB 142 911 CENTRAL AVE, ALBANY, NY, 122061304
Website
www.wfhusa.orgNTEE Category
Code: G20 - Disease
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