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Diamond Blackfan Anemia Foundation

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 161459422 ✦ West seneca, NY ✦ Designated as a 501(c)(3)

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Overview

What is Diamond Blackfan Anemia Foundation?

The Diamond Blackfan Anemia Foundation is a nonprofit organization, situated at 20 Tracy Lynn Lane, West Seneca, NY 14224. Its primary mission is to advance research initiatives aimed at improving the understanding, therapeutic strategies, and potential cure for Diamond Blackfan Anemia, a rare bone marrow failure syndrome. The foundation supports patients, families, and researchers by funding peer-reviewed research projects and providing patient advocacy, support, and education services. Their activities are geared towards enhancing diagnosis, clinical treatment, and management of the disorder, ultimately improving the quality of life for affected families worldwide. With a small team of dedicated individuals, the foundation's efforts contribute to the broader scientific community, striving for breakthroughs in this field.


Official website here: www.dbafoundation.org

Is Diamond Blackfan Anemia Foundation legitimate?

Diamond Blackfan Anemia Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Diamond Blackfan Anemia Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $50,000
Professional Fundraising Fees: $0
Other Salaries and Wages: $0

For more financial information, click here


Official website here: www.dbafoundation.org

What is the mission statement of Diamond Blackfan Anemia Foundation?

The Diamond Blackfan Anemia Foundation's mission is centered around advancing research initiatives related to this rare bone marrow failure syndrome. Their goal is to promote a deeper understanding, develop therapeutic strategies, and ultimately, find a cure for Diamond Blackfan Anemia. The organization is committed to providing patient advocacy, support, and education services to individuals, families, and medical professionals. These efforts aim to improve diagnoses, clinical treatments, and management of the disorder, thereby enhancing the quality of life for affected families worldwide.


Official website here: www.dbafoundation.org

Who is the CEO of Diamond Blackfan Anemia Foundation?

Dawn Baumgardner is the Executive Director of Diamond Blackfan Anemia Foundation.


Official website here: www.dbafoundation.org

What is the revenue of Diamond Blackfan Anemia Foundation?

Diamond Blackfan Anemia Foundation's revenue in 2022 was $383,838.


Official website here: www.dbafoundation.org

Who are the executives of Diamond Blackfan Anemia Foundation and what are their salaries?

The average compensation at Diamond Blackfan Anemia Foundation during 2022 was $50,000. There is 1 employee and 20 volunteers at Diamond Blackfan Anemia Foundation.


Here are 12 key members and their salaries:


Dawn Baumgardner (Executive Director)
  • Compensation: $50,000
  • Related: $0
  • Other: $0
Kathi Vroman (Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Peter Baumgardner (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Carol Mancuso (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lauren Brady (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Cara Breidster (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Charles Brown (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Rebecca Degroff (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jamie Dermatis (Director (Eff 11/22))
  • Compensation: $0
  • Related: $0
  • Other: $0
Jacy Downey (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Anthony Marchese (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Anita Shier Bruton (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.dbafoundation.org

Where can I find the form 990 for Diamond Blackfan Anemia Foundation?

Diamond Blackfan Anemia Foundation's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.dbafoundation.org

Learn more at the official website: www.dbafoundation.org

Mission Statement of Diamond Blackfan Anemia Foundation

The Diamond Blackfan Anemia Foundation, dedicated to its charitable and scientific purpose, is committed to raising funds for supporting patients and families affected by Diamond Blackfan Anemia (DBA), a rare bone marrow failure syndrome. The organization's mission is twofold: firstly, it aims to foster research initiatives that enhance our understanding of DBA, facilitate the development of therapeutic strategies, and ultimately contribute to finding a cure for this condition.

Secondly, the Diamond Blackfan Anemia Foundation provides advocacy, support, and educational services to individuals, families, and medical professionals. This endeavor is aimed at improving the diagnosis, clinical treatment, and management of DBA, thereby enhancing the quality of life for affected families globally. The foundation's endeavors encompass patient advocacy, offering resources and guidance to individuals and families battling DBA, as well as educating medical professionals to ensure they are equipped with the latest knowledge and best practices for treating and managing the disorder.

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Impact




October, 2024

The Diamond Blackfan Anemia Foundation significantly impacts the lives of those affected by Diamond Blackfan Anemia (DBA) through dedicated efforts in research, support, and education. By generating funds for charitable and scientific purposes, the foundation aids in the understanding of this rare bone marrow failure syndrome. It supports peer-reviewed research projects aimed at uncovering the causes of DBA, exploring potential treatment options, and ultimately seeking a cure.

In addition to advancing research initiatives, the foundation prioritizes patient advocacy and education. It provides valuable resources to individuals, families, and medical professionals, fostering improved diagnostics, treatment strategies, and management practices. Through these efforts, the foundation enhances the quality of life for families impacted by DBA, ensuring they receive the support and information necessary to navigate the challenges of this condition. The overall result is a positive effect on both the medical community and affected families, contributing to a deeper understanding and more effective management of Diamond Blackfan Anemia.




This information is meant to be a general summary of Diamond Blackfan Anemia Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$383,838 (2022)
Expenses
$151,934 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $1,639
  • Gross Receipts: $383,838

Assets and Liabilities:

  • Total Assets: $1,691,996
  • Total Liabilities: $0
  • Net Assets: $1,691,996

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Organization Details

Founding Year

1994

Principal Officer

Dawn Baumgardner

Main Address

20 TRACY LYNN LANE, WEST SENECA, NY, 14224

NTEE Category

Code: G12 - Disease

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