Overview
What is Wilson Disease Association Intl?
Wilson Disease Association Intl is a nonprofit organization situated in New York, specifically at 1732 1st Ave, New York, NY 10128. Their primary mission is to support and assist individuals affected by Wilson's Disease, a genetic disorder, and contribute to research aimed at discovering effective treatments. To accomplish this, they operate a patient registry, serving as a vital resource for gathering and analyzing data related to the disease. The organization is run by a dedicated team of one individual, demonstrating their commitment to the cause.
Official website here: www.wilsonsdisease.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 88%, Three-Star out of Four Stars
The Wilson Disease Association International has achieved a solid score of 88%, which reflects its commitment to accountability and finance. The organization has an independent board with full compliance in most areas, demonstrating responsible governance. However, it lacks a whistleblower policy and some documentation practices that could enhance transparency and trust.
User feedback highlights the organization's strengths, particularly in providing information, support, and raising awareness about Wilson's disease. Reviewers have shared personal stories, emphasizing the life-saving assistance and community support they received from the WDA. These testimonies illustrate the crucial role the organization plays in helping patients and their families navigate the challenges associated with the disease.
Despite its strengths, the absence of certain governance policies noted in the ratings could be perceived as a limitation. Nevertheless, the positive impact and dedication shown by the WDA in supporting those affected by Wilson’s disease underscore its importance within the community it serves.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
What do the Facebook reviews say about Wilson Disease Association Intl?
94% of 9 reviewers on Facebook recommend the Wilson Disease Association Intl. Here is a summary of their reviews:
Supporters of the organization greatly appreciate its commitment to raising awareness about Wilson disease and providing resources for affected individuals and their families. The community values the opportunity to connect with others facing similar challenges, which has led to a sense of hope and solidarity.
While more detailed recovery stories would be beneficial for potential patients, the sentiment remains positive toward the efforts made by the association in facilitating discussions and support networks. Overall, those who engage with the Wilson Disease Association Intl find it to be a valuable source of information and encouragement, fostering a sense of community among those impacted by the condition.
This AI summary has been generated from reviews found on Facebook.
Is Wilson Disease Association Intl legitimate?
Wilson Disease Association Intl is a legitimate nonprofit organization registered as a 501(c)(3) entity. Wilson Disease Association Intl submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $85,000
For more financial information, click here
Official website here: www.wilsonsdisease.org
What is the mission statement of Wilson Disease Association Intl?
The Wilson Disease Association International, in its mission, focuses on providing support and aid to individuals battling Wilson's Disease. This organization strives to contribute to research aimed at discovering effective treatments for this condition. One of their primary initiatives involves supporting research through the Wilson Disease Patient Registry. This registry potentially aids in deepening the understanding of the disease and paving the way for advancements in its diagnosis and treatment.
Official website here: www.wilsonsdisease.org
Who is the CEO of Wilson Disease Association Intl?
Steve Walsh is the Director of Wilson Disease Association Intl.
Official website here: www.wilsonsdisease.org
What is the revenue of Wilson Disease Association Intl?
Wilson Disease Association Intl's revenue in 2022 was $655,804.
Official website here: www.wilsonsdisease.org
Who are the executives of Wilson Disease Association Intl and what are their salaries?
The average compensation at Wilson Disease Association Intl during 2022 was $85,000. There is 1 employee and 25 volunteers at Wilson Disease Association Intl.
Here are 6 key members and their salaries:
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Official website here: www.wilsonsdisease.org
Where can I find the form 990 for Wilson Disease Association Intl?
Wilson Disease Association Intl's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.wilsonsdisease.org
Learn more at the official website: www.wilsonsdisease.org
Mission Statement of Wilson Disease Association Intl
The Wilson Disease Association International, abbreviated as WDA, is committed to providing support and assistance to individuals diagnosed with Wilson's Disease. This nonprofit organization's mission encompasses two key aspects: offering aid to patients and contributing to research aimed at discovering effective treatments for this condition.
Specifically, WDA focuses on providing support to individuals living with Wilson's Disease. This assistance takes various forms, including but not limited to, emotional support, resource sharing, and networking opportunities. Additionally, the organization is actively involved in research efforts, primarily through the Wilson Disease Patient Registry. This registry serves as a valuable tool for collecting and analyzing data related to Wilson's Disease, which can subsequently inform and guide future research and treatment strategies. By engaging in both patient support and research initiatives, WDA aims to improve the lives of individuals affected by Wilson's Disease and contribute to the broader understanding and management of this condition.
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Impact
July, 2024
Wilson Disease Association Intl's impact includes providing crucial support and assistance to individuals affected by Wilson's disease. They also play a significant role in advancing research for treatment through initiatives like the Wilson Disease Patient Registry. Through their efforts, they are making a difference in the lives of those with Wilson's disease and contributing to the advancement of medical knowledge in this area.
This information is meant to be a general summary of Wilson Disease Association Intl. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $4,767
- Gross Receipts: $665,392
Assets and Liabilities:
- Total Assets: $460,855
- Total Liabilities: $4,396
- Net Assets: $456,459
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Organization Details
Founding Year
1983
Phone
(414) 961-0533Principal Officer
Steve Walsh
Main Address
1732 1st Ave 20043, New York, NY, 10128
Website
www.wilsonsdisease.orgNTEE Category
Code: G80 - Disease
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