Overview
What is Lupus And Allied Diseases Association Inc?
Lupus And Allied Diseases Association Inc is a nonprofit organization located in Verona, New York. Their primary mission is to improve the lives of individuals affected by lupus and related diseases. They achieve this by funding research projects, aiming to advance diagnostics and treatment methods, discover causes, and seek cures. One such initiative involves a $150,000 grant for investigating non-invasive imaging of lupus nephritis and B cell targeting to prevent fetal loss. Another research-focused grant of $101,400 supports studying Neuropsychiatric SLE and Genetics in the pediatric population. The organization also invests in the Michael Jon Barlin Childhood Pediatric Research Program, funded with $45,000, aimed at enhancing the quality of life for pediatric lupus patients. Furthermore, Lupus And Allied Diseases Association Inc supports the Marc R. Chevrier, MD, PhD, FACR, Lupus Research Memorial Fund at the Rheumatology Research Foundation, with a $35,000 grant for preceptorships. Beyond research, this nonprofit is dedicated to providing education and empowerment programs, using the patient voice as a tool to inspire improvements in healthcare access and treatment. Their goal is to advocate for those affected by lupus and allied diseases, contributing to public awareness, education, and research efforts to ultimately improve quality of life.
Official website here: www.ladainc.org
What are the reviews and ratings of this charity?
Rating from Charity Navigator: 99%, Four-Star out of Four Star rating.
The Lupus and Allied Diseases Association Inc. has achieved a remarkable 99% overall score, reflecting its strong performance in accountability and finance. It boasts a perfect score of 100 in accountability and finance, with an entirely independent board and excellent oversight practices. The organization demonstrates a commitment to transparency, as evidenced by the availability of its financial statements and governance policies on its website.
User feedback corroborates the high ratings, with a review highlighting the organization’s patient-focused mission since its founding in 1978. It emphasizes the charity's dedication to improving the quality of life for those affected by lupus and allied diseases through advocacy, education, and research initiatives. The involvement of those directly impacted by these conditions ensures that the patient's voice is integral in its operations.
While the organization holds a strong overall performance, the Culture & Community score of 87 indicates room for improvement in fostering community engagement and inclusion initiatives. Nonetheless, the strong program expense ratio of 99.47% suggests that a significant portion of its funds is directed towards its mission-driven activities.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Lupus And Allied Diseases Association Inc legitimate?
Lupus And Allied Diseases Association Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Lupus And Allied Diseases Association Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
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Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.ladainc.org
What is the mission statement of Lupus And Allied Diseases Association Inc?
The Lupus and Allied Diseases Association Inc's mission is centered around advocating for individuals affected by lupus and related diseases. They accomplish this through various initiatives, including public awareness campaigns, education programs, and research funding. The organization's primary goal is to improve the quality of life for those suffering from these conditions by advocating for better healthcare and treatment access, as well as advancing research to discover causes and cures. They demonstrate this commitment by funding grants for research projects focusing on diagnostics, treatments, and understanding the genetic and physiological aspects of lupus and related diseases, particularly in pediatric populations.
Official website here: www.ladainc.org
Who is the CEO of Lupus And Allied Diseases Association Inc?
Kathleen A Arntsen is the President And Ceo of Lupus And Allied Diseases Association Inc. The CEO's salary of Lupus And Allied Diseases Association Inc is $0 and their total compensation is $0.
Official website here: www.ladainc.org
What is the revenue of Lupus And Allied Diseases Association Inc?
Lupus And Allied Diseases Association Inc's revenue in 2023 was $1,009,530.
Official website here: www.ladainc.org
Who are the executives of Lupus And Allied Diseases Association Inc and what are their salaries?
There 109 volunteers at Lupus And Allied Diseases Association Inc.
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Official website here: www.ladainc.org
Where can I find the form 990 for Lupus And Allied Diseases Association Inc?
Lupus And Allied Diseases Association Inc's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.ladainc.org
Learn more at the official website: www.ladainc.org
Mission Statement of Lupus And Allied Diseases Association Inc
Lupus And Allied Diseases Association Inc is dedicated to enhancing the quality of life for individuals affected by lupus and related diseases. Their mission is threefold: to advocate for those affected by these conditions, promote awareness and education, and advance research to improve diagnosis, treatment, and ultimately, find cures.
The association actively works towards advocacy by raising public awareness about lupus and allied diseases. They achieve this goal through various initiatives, including funding research projects and supporting organizations that share their mission. For instance, they granted $150,000 to the Lupus Research Alliance to fund projects focusing on noninvasive imaging of lupus nephritis and targeting B cells to prevent fetal loss.
Moreover, the Lupus And Allied Diseases Association Inc is committed to education and empowerment. They fund programs that aim to educate individuals about these diseases, providing them with the knowledge they need to better understand and manage their conditions. One such project is the $101,400 grant they provided to the Childhood Arthritis and Rheumatology Research Alliance for research into Neuropsychiatric SLE and genetics in the pediatric population.
In addition, the association recognizes the importance of research in improving the lives of those affected by lupus and related diseases. They support various research projects, such as the $200,000 grant to the Masonic Medical Research Institute for studying the use of cardiosphere-derived human exosomes, the RhoA pathway in lupus nephritis, SHP2 inflammatory macrophages, and effects of lymphocytes on VTs.
In summary, Lupus And Allied Diseases Association Inc is an organization that actively works towards improving the lives of individuals affected by lupus and allied diseases. They achieve this by advocating for those affected, promoting awareness and education, and funding research projects to improve diagnosis, treatment, and ultimately, find cures for these conditions.
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Impact
October, 2024
The Lupus And Allied Diseases Association Inc significantly enhances the quality of life for individuals affected by lupus and related autoimmune diseases. Through comprehensive education and empowerment programs, it amplifies the patient voice, advocating for improved healthcare access and treatment options.
By investing in vital research, the organization has contributed over $585,000 in grants to various initiatives aimed at improving diagnosis, treatment, and understanding of lupus. Notably, funding has supported groundbreaking projects such as the noninvasive imaging of lupus nephritis and studies focused on pediatric lupus, including neuropsychiatric aspects and genetics.
The association's commitment extends to initiatives that directly benefit children affected by lupus, such as the Michael Jon Barlin Childhood Pediatric Research Program, enhancing their quality of life. Additionally, the establishment of the Marc R. Chevrier, MD, PhD, FACR, Lupus Research Memorial Fund highlights the organization’s efforts to nurture future research leaders in rheumatology.
Overall, the Lupus And Allied Diseases Association Inc plays a critical role in advancing research and awareness, driving initiatives that not only seek to alleviate the challenges faced by patients but also aim to find cures and better treatments for lupus and allied diseases.
This information is meant to be a general summary of Lupus And Allied Diseases Association Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $46,627
- Gross Receipts: $1,041,187
Assets and Liabilities:
- Total Assets: $2,246,545
- Total Liabilities: $0
- Net Assets: $2,246,545
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Organization Details
Founding Year
1978
Phone
(315) 829-4272Principal Officer
Kathleen A Arntsen
Main Address
PO Box 170, Verona, NY, 134780170
Website
www.ladainc.orgNTEE Category
Code: G80 - Disease
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