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Crohn's & Colitis Foundation Inc

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 136193105 ✦ New york, NY ✦ Designated as a 501(c)(3)

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Overview

What is Crohn's & Colitis Foundation Inc?

For over five decades, the Crohn's & Colitis Foundation Inc, based in New York City, has been at the forefront of research dedicated to finding a cure for Crohn's Disease and Ulcerative Colitis while improving the lives of those affected. With a workforce of 388 employees, the Foundation has provided over $475 million for research, funding priority projects targeting areas with a high potential for advancing treatment. Their innovative research platform, IBD Plexus, is the largest IBD database in the US, with data from over 25,000 patients and 250,000 biosamples. The Foundation is leading the way in critical areas of IBD research, accelerating novel therapies and innovative products to address unmet patient needs. In 2020, they launched the most extensive IBD-focused precision nutrition effort and the Surgical Research Network.


Official website here: www.crohnscolitisfoundation.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 83% (Three-Star out of Four Star rating)

The Crohn's & Colitis Foundation Inc. has earned a Three-Star rating from Charity Navigator, which indicates a solid performance overall, particularly in the areas of Impact & Measurement (90) and Culture & Community (94). The organization has made significant investments in research, exceeding $500 million, and is currently funding over 200 projects aimed at finding effective treatments and cures for Crohn’s disease and ulcerative colitis. This commitment to research and community outreach highlights its role as a leader in the field.

User feedback reveals a mix of experiences. Many individuals praise the Foundation for its educational resources and support systems, such as local chapters, camps for children, and extensive research initiatives. These services have provided invaluable assistance to patients and families dealing with inflammatory bowel diseases. However, there are critical voices expressing dissatisfaction with the organization’s direct support for patients. Some reviewers feel that the Foundation has shifted focus away from patient assistance in favor of fundraising, and concerns have been raised regarding the compensation of its leadership.

Overall, while the Crohn's & Colitis Foundation demonstrates strong financial accountability and a commitment to research, the contrasting opinions in user reviews suggest areas for improvement in direct patient support services and transparency regarding fund utilization.


This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.

Is Crohn's & Colitis Foundation Inc legitimate?

Crohn's & Colitis Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Crohn's & Colitis Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $2,983,632
Professional Fundraising Fees: $569,406
Other Salaries and Wages: $24,396,672

For more financial information, click here


Official website here: www.crohnscolitisfoundation.org

What is the mission statement of Crohn's & Colitis Foundation Inc?

For over five decades, the Crohn's & Colitis Foundation has been dedicated to finding a cure for Crohn's disease and ulcerative colitis, two debilitating digestive diseases. The organization's mission is to improve the lives of children and adults affected by these conditions through extensive research funding.

Since its inception, the Foundation has provided over $475 million for research initiatives, focusing on multi-institutional, multi-disciplinary collaborative projects with a high probability of advancing treatment. The Foundation's research portfolio covers basic, translational, and clinical research, with groundbreaking studies and research initiatives contributing significantly to the understanding and treatment of Inflammatory Bowel Diseases (IBD).

IBD Plexus, the Foundation's innovative research platform, is the largest IBD database in the US, providing researchers with data from over 25,000 patients and 250,000 biosamples. The Foundation is at the forefront of new research areas and accelerates novel therapies and innovative products to address unmet patient needs.

In 2020, the Foundation launched the most extensive IBD-focused precision nutrition effort and the Surgical Research Network, a first-ever coordinated-funding effort to study surgical outcomes in IBD, with over 50 centers participating.


Official website here: www.crohnscolitisfoundation.org

Who is the CEO of Crohn's & Colitis Foundation Inc?

Michael Osso is the President/Ceo(Non-Voting) of Crohn's & Colitis Foundation Inc. The CEO's salary of Crohn's & Colitis Foundation Inc is $653,016 and their total compensation is $740,697.


Official website here: www.crohnscolitisfoundation.org

What is the revenue of Crohn's & Colitis Foundation Inc?

Crohn's & Colitis Foundation Inc's revenue in 2022 was $81,491,223.


Official website here: www.crohnscolitisfoundation.org

Who are the executives of Crohn's & Colitis Foundation Inc and what are their salaries?

The average compensation at Crohn's & Colitis Foundation Inc during 2022 was $70,568. There are 388 employees and 5842 volunteers at Crohn's & Colitis Foundation Inc.


Here are 43 key members and their salaries (Crohn's & Colitis Foundation Inc's CEO's salary is $653,016 and their total compensation is $740,697):


Michael Osso (President/Ceo(Non-Voting))
  • Compensation: $653,016
  • Related: $0
  • Other: $87,681
Alessandro Dinello (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Alex Funderburg (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Amber Backhaus (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Rep Ander Crenshaw (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Annette Martinez (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Armin Rahmanian (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Audra Miller (Trustee (As Of 03/2022))
  • Compensation: $0
  • Related: $0
  • Other: $0
Brent Polk Md (Chairman)
  • Compensation: $0
  • Related: $0
  • Other: $0
Chase Carpenter (Trustee (As Of 03/2022))
  • Compensation: $0
  • Related: $0
  • Other: $0
Daniel Stone (Trustee (As Of 03/2022))
  • Compensation: $0
  • Related: $0
  • Other: $0
David Rubin Md (Nsac Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Deborah Crawford (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Frank Russomano (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jeffrey Mittleman (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jodi Yellen (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Joe Monk (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Joel Rosh Md (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lori Siegel Rabinowitz (Trustee (As Of 03/2022))
  • Compensation: $0
  • Related: $0
  • Other: $0
Marcy Beth Nanus (Trustee (Thru 03/2022))
  • Compensation: $0
  • Related: $0
  • Other: $0
Mark Murray Phd (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Meena Bewtra (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Michele Kissous-Hunt (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Noel Brown (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Peter Higgins Md Phd Msc (Nsac Chair Elect (As Of 03/2022))
  • Compensation: $0
  • Related: $0
  • Other: $0
Rhonda Bolding (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sean Kelley (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tolulope Falaiye Md (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Troy Vollertsen (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Shelby Modell (Co-Founder/Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Robert Territo (Cfo/Coo (Thru 06/2022))
  • Compensation: $237,843
  • Related: $0
  • Other: $15,411
Sharon Lungrin (Coo (As Of 07/2022))
  • Compensation: $118,178
  • Related: $0
  • Other: $2,134
Caren Heller (Chief Science Officer)
  • Compensation: $408,303
  • Related: $0
  • Other: $17,287
Rohit Suri (Chief Technology Officer)
  • Compensation: $298,668
  • Related: $0
  • Other: $21,099
Michael Elkow (Chief Field Officer)
  • Compensation: $272,254
  • Related: $0
  • Other: $21,063
Allison Coffey (Chief Development Officer)
  • Compensation: $266,582
  • Related: $0
  • Other: $12,084
John Michael Mize (Evp, Business Development)
  • Compensation: $258,070
  • Related: $0
  • Other: $13,636
Judy Hoffstein (Chief Marketing & Communications Off)
  • Compensation: $253,433
  • Related: $0
  • Other: $26,887
Angela Dobes (Vice President, Ibd Plexus)
  • Compensation: $192,045
  • Related: $0
  • Other: $8,386
Laura Wingate (Evp, Education, Support & Advocacy)
  • Compensation: $226,232
  • Related: $0
  • Other: $15,805
Anthony Leon (Svp, It)
  • Compensation: $188,560
  • Related: $0
  • Other: $26,458
Marisa Mayer (Chief Legal Officer)
  • Compensation: $204,166
  • Related: $0
  • Other: $15,354
Jack Matarasso (Svp, Digital Marketing)
  • Compensation: $187,730
  • Related: $0
  • Other: $11,416


Official website here: www.crohnscolitisfoundation.org

Where can I find the form 990 for Crohn's & Colitis Foundation Inc?

Crohn's & Colitis Foundation Inc's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.crohnscolitisfoundation.org

Learn more at the official website: www.crohnscolitisfoundation.org

Mission Statement of Crohn's & Colitis Foundation Inc

The Crohn's & Colitis Foundation has dedicated itself to finding a cure for Crohn's disease and ulcerative colitis for over five decades. Established in the United States, this esteemed organization has provided over $475 million for research on the treatment and cures of inflammatory bowel diseases (IBD). The Foundation's research initiatives focus on multi-institutional, multi-disciplinary collaborative projects, funding the brightest researchers to advance the understanding and treatment of IBD.

With a commitment to cutting years off the research process, the Crohn's & Colitis Foundation's innovative research platform, IBD Plexus, is the largest IBD database in the country. It provides researchers with data from over 25,000 patients, including 250,000 biosamples. The Foundation leads the way in critical areas of IBD research, accelerating novel therapies and innovative products that address unmet patient needs.

In 2020, the Crohn's & Colitis Foundation launched the most extensive IBD-focused precision nutrition effort to better understand the impact of food on the management of IBD and patient quality of life. Additionally, the organization's first-ever coordinated-funding effort, the Surgical Research Network, involves over 50 centers participating in studying surgical outcomes in IBD. These initiatives demonstrate the Foundation's unwavering dedication to improving the lives of those affected by Crohn's disease and ulcerative colitis.

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Impact




October, 2024

The Crohn's & Colitis Foundation Inc has made a significant impact in the fight against inflammatory bowel diseases (IBD) such as Crohn's disease and ulcerative colitis. Since its inception, the Foundation has allocated over $475 million toward groundbreaking research aimed at understanding and treating these diseases. It emphasizes multi-institutional and multidisciplinary collaborations, targeting promising areas of science that can lead to advancements in treatment.

By funding some of the best and brightest researchers, the Foundation promotes innovative studies that enhance the understanding of IBD. Its research portfolio spans basic, translational, and clinical research, designed to accelerate the discovery process. A key component of this effort is the IBD Plexus, the largest IBD database in the United States, which offers invaluable data from over 25,000 patients, including 250,000 biosamples.

In addition to its research initiatives, the Foundation has pioneered important areas of inquiry, such as its precision nutrition effort launched in 2020, which investigates how dietary factors affect IBD management and patient quality of life. Furthermore, the Foundation has established a Surgical Research Network to study surgical outcomes in IBD, involving over 50 participating centers.

Through these comprehensive efforts, the Crohn's & Colitis Foundation is not only driving critical research but also working tirelessly to improve the lives of those affected by these challenging conditions.




This information is meant to be a general summary of Crohn's & Colitis Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$81,491,223 (2022)
Expenses
$82,569,900 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: -$30,834
  • Program Service Revenue: $7,296,231
  • Gross Receipts: $92,874,168

Assets and Liabilities:

  • Total Assets: $57,441,645
  • Total Liabilities: $51,378,795
  • Net Assets: $6,062,850

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Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

IBD PLEXUS DATABASE AC

Revenue

$7,109,626

EDUCATION & CAMP REGIS

Revenue

$186,605

Organization Details

Founding Year

1967

Principal Officer

Michael Osso

Main Address

733 THIRD AVENUE 510, NEW YORK, NY, 10017

NTEE Category

Code: G70Z - Disease

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