Overview
What is Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation?
The Dysautonomia Foundation Inc, also known as Familial Dysautonomia Foundation, is a nonprofit organization based in New York City, specifically at 315 W 39TH STREET 701, New York, NY 10018. Committed to helping individuals impacted by or at risk of Familial Dysautonomia (FD), the foundation provides a wide range of support services. These include medical care, research, social services, and public education. Their mission encompasses operating programs aimed at enhancing the lives of those affected, promoting advancements in understanding FD, and raising awareness about the condition. With a dedicated workforce of five individuals, the Dysautonomia Foundation Inc continues to strive for improved care and support for individuals affected by this condition.
Official website here: www.familialdysautonomia.org/
Is Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation legitimate?
Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $281,357
Professional Fundraising Fees: $0
Other Salaries and Wages: $94,919
For more financial information, click here
What is the mission statement of Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation?
The Dysautonomia Foundation, operating under the name Familial Dysautonomia Foundation, is committed to supporting and managing programs that cater to the medical needs, research, social services, and public education of individuals affected by or at risk of Familial Dysautonomia (FD). Their mission is centered around improving the quality of life for these individuals by providing essential medical care, driving research efforts to further our understanding of the condition, offering social services, and promoting public awareness about Familial Dysautonomia.
Official website here: www.familialdysautonomia.org/
Who is the CEO of Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation?
Allan Cohen is the Executive Dir. of Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation.
Official website here: www.familialdysautonomia.org/
What is the revenue of Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation?
Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation's revenue in 2022 was $1,577,517.
Official website here: www.familialdysautonomia.org/
Who are the executives of Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation and what are their salaries?
The average compensation at Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation during 2022 was $75,255. There are 5 employees at Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation.
Here are 16 key members and their salaries:
- Lanie Etkind (Executive Dir.)
- Faye Ginsburg (President) [Trustee/Director]
- Allan Cohen (Treasurer) [Trustee/Director]
- Edward Baranoff (Vice President) [Trustee/Director]
- Laurent Landau (Vice President) [Trustee/Director]
- Jeffrey Goldberger (Vice President) [Trustee/Director]
- Steven Kietz (Vice President) [Trustee/Director]
- Lisa Newman (Vice President) [Trustee/Director]
- Paul B Wexler (Vice President) [Trustee/Director]
- Steven S Fass (Secretary) [Trustee/Director]
- Jennifer Sonenshein (Director)
- Howard Weiser (Director)
- Gerald Adler (Director)
- Gregg Meyers (Director)
- Daniel Landau (Director)
- Brian Stillman (Director)
Official website here: www.familialdysautonomia.org/
Where can I find the form 990 for Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation?
The Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.familialdysautonomia.org/
Learn more at the official website: www.familialdysautonomia.org/
Mission Statement of Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation
The Dysautonomia Foundation, also known as Familial Dysautonomia Foundation, is dedicated to supporting and operating various programs aimed at providing medical care, research, social services, and public education. This nonprofit organization focuses on benefiting individuals affected by or at risk for Familial Dysautonomia (FD), a complex medical condition. Through its initiatives, the Dysautonomia Foundation aims to improve the lives of those affected by this condition, providing them with the necessary resources and support. The organization's mission is multifaceted, encompassing medical care, groundbreaking research, essential social services, and extensive public education, all with the goal of bettering the lives of those living with or at risk for FD.
Impact
This information is meant to be a general summary of Dysautonomia Foundation Inc Dba Familial Dysautonomia Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Thursday, August 15, 2024
The impact of Dysautonomia Foundation Inc, also known as Familial Dysautonomia Foundation, is focused on supporting and operating programs that provide medical care, research opportunities, social services, and public education for individuals affected by or at risk for Familial Dysautonomia (FD). By dedicating resources to these areas, the foundation aims to improve the quality of life for those living with FD and raise awareness about this rare genetic disorder. With its efforts, the organization plays a crucial role in enhancing healthcare outcomes and providing valuable support to individuals and families grappling with FD.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Organization Details
Founding Year
1954
Phone
(212) 279-1066
Principal Officer
Allan Cohen
Main Address
315 W 39TH STREET 701, NEW YORK, NY, 10018
NTEE Category
Code: G50Z - Disease
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