Overview
What is Myasthenia Gravis Foundation Of America Inc?
Myasthenia Gravis Foundation Of America Inc, located in Westborough, Massachusetts, is a dedicated nonprofit organization with a mission to eradicate myasthenia gravis and related disorders. They achieve this by funding high-impact research at esteemed universities and medical institutions, collaborating with partners like the American Brain Foundation and MGNet to nurture new scientists in the field. The organization manages the world's largest myasthenia gravis patient registry, boasting over 3,500 participants. They sponsor annual scientific sessions and international conferences, attracting renowned researchers from across the globe. Beyond research, Myasthenia Gravis Foundation Of America Inc offers information and support to over 40,000 constituents, keeping them informed about advancements and progress in the field. (Word count: 116)
Official website here: www.myasthenia.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 100%
The Myasthenia Gravis Foundation of America Inc has achieved a perfect score of 100%, earning a Four-Star out of Four Star rating primarily due to its strong accountability and financial management practices. The organization boasts a fully independent board and has no reported issues regarding asset diversion. With a program expense ratio of 70.5% and a fundraising efficiency ratio of $0.16, it demonstrates effective use of funds and a commitment to its mission of supporting patients with myasthenia gravis.
User feedback highlights the foundation's strengths in patient support and advocacy, with many reviewers praising its commitment to funding research and providing educational resources. The organization is recognized as a vital resource for patients, offering guidance and referrals to knowledgeable healthcare providers. Reviewers emphasize the foundation's role in raising awareness of myasthenia gravis and its ongoing efforts to improve the lives of those affected by the disease.
However, there are some concerns raised by users regarding the professionalism of its representatives in certain situations. One reviewer noted unprofessional behavior from some individuals associated with the foundation during fundraising efforts, which could detract from the organization's overall image. Despite this, the general sentiment remains overwhelmingly positive, with many endorsing the foundation as an essential ally for patients and families dealing with myasthenia gravis.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
What do the Facebook reviews say about Myasthenia Gravis Foundation Of America Inc?
98% of 86 reviewers on Facebook recommend the Myasthenia Gravis Foundation of America Inc. Here is a summary of their reviews:
Many users express gratitude for finding a supportive community through the foundation, highlighting the positive impact it has had on their lives. The organization's resources and outreach seem to resonate well with individuals living with myasthenia gravis, providing essential information and fostering connection among those affected by the disease.
Overall, the sentiments reflect a strong appreciation for the foundation's role in offering support and guidance, making members feel less isolated in their experiences. The commitment to raising awareness and assisting those impacted by this condition appears to be well-received among the community.
This AI summary has been generated from reviews found on Facebook.
Is Myasthenia Gravis Foundation Of America Inc legitimate?
Myasthenia Gravis Foundation Of America Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Myasthenia Gravis Foundation Of America Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $231,757
Professional Fundraising Fees: $0
Other Salaries and Wages: $1,019,696
For more financial information, click here
Official website here: www.myasthenia.org
What is the mission statement of Myasthenia Gravis Foundation Of America Inc?
The Myasthenia Gravis Foundation of America Inc. is dedicated to finding a cure for myasthenia gravis and related disorders, enhancing treatment options, and offering support to individuals affected by myasthenia gravis. They achieve this goal through various means, including conducting research, providing education, organizing community programs, and advocating for the cause. The organization funds high-impact research at renowned universities and medical institutions, collaborating with partners like the American Brain Foundation and MGNet. They also maintain a global patient registry, sponsor scientific sessions, and organize international conferences to attract leading researchers in the field. The foundation disseminates information about research initiatives and progress to its extensive network of over 40,000 constituents.
Official website here: www.myasthenia.org
Who is the CEO of Myasthenia Gravis Foundation Of America Inc?
Samantha Masterson is the Chief Executive Officer of Myasthenia Gravis Foundation Of America Inc. The CEO's salary of Myasthenia Gravis Foundation Of America Inc is $228,332 and their total compensation is $231,757.
Official website here: www.myasthenia.org
What is the revenue of Myasthenia Gravis Foundation Of America Inc?
Myasthenia Gravis Foundation Of America Inc's revenue in 2022 was $4,388,529.
Official website here: www.myasthenia.org
Who are the executives of Myasthenia Gravis Foundation Of America Inc and what are their salaries?
The average compensation at Myasthenia Gravis Foundation Of America Inc during 2022 was $113,768. There are 11 employees and 2500 volunteers at Myasthenia Gravis Foundation Of America Inc.
Here are 23 key members and their salaries (Myasthenia Gravis Foundation Of America Inc's CEO's salary is $228,332 and their total compensation is $231,757):
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- Compensation: $228,332
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- Other: $1,516
Official website here: www.myasthenia.org
Where can I find the form 990 for Myasthenia Gravis Foundation Of America Inc?
Myasthenia Gravis Foundation Of America Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.myasthenia.org
Learn more at the official website: www.myasthenia.org
Mission Statement of Myasthenia Gravis Foundation Of America Inc
The Myasthenia Gravis Foundation of America Inc is dedicated to pursuing a cure for myasthenia gravis and related disorders, enhancing treatment options, and offering support and information to those affected by myasthenia gravis. This nonprofit organization accomplishes its mission through research, education, community programs, and advocacy.
In the realm of research, the Myasthenia Gravis Foundation of America Inc plays a significant role in funding high-impact studies at reputable universities and medical institutions. They collaborate with strategic partners like the American Brain Foundation and MGNet to bring fresh researchers to myasthenia gravis research by offering fellowships, funding pilot grants, and supporting special projects. Moreover, the foundation maintains the global Myasthenia Gravis patient registry, which now includes over 3,500 participants.
To educate and support individuals with myasthenia gravis, the Myasthenia Gravis Foundation of America Inc holds annual scientific sessions in collaboration with AANEM, attracting over 250 attendees. Additionally, they organize an International Conference every three years, which attracts leading myasthenia gravis researchers from around the world, with over 350 participants attending. The foundation provides information to over 40,000 constituents, keeping them informed about research initiatives and progress.
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Impact
October, 2024
Myasthenia Gravis Foundation of America Inc is deeply committed to advancing the understanding and treatment of myasthenia gravis and similar disorders. Their efforts in funding critical research have significantly impacted the field by supporting high-impact projects at leading universities and medical institutions. By leveraging collaborations with organizations like the American Brain Foundation and MGNet, they foster the next generation of researchers through fellowships and pilot grants.
The foundation maintains the only global patient registry for myasthenia gravis, which now includes nearly 3,500 participants. This registry is a vital resource for researchers and helps to shape future studies. Through their annual scientific sessions and international conferences, they not only disseminate knowledge but also actively encourage collaboration among leading researchers, thereby enhancing the global pursuit of treatment and potential cures.
Furthermore, the foundation engages a broad community of over 40,000 constituents, ensuring that individuals affected by myasthenia gravis have access to crucial information regarding research developments and treatment options. Their comprehensive approach—spanning research, education, community engagement, and advocacy—plays a crucial role in improving the lives of those dealing with this challenging condition.
This information is meant to be a general summary of Myasthenia Gravis Foundation Of America Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $275,279
- Program Service Revenue: $452,123
- Gross Receipts: $8,088,935
Assets and Liabilities:
- Total Assets: $11,363,951
- Total Liabilities: $1,331,128
- Net Assets: $10,032,823
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Conference registrations
Revenue
$280,975
Research studies
Revenue
$171,148
Organization Details
Founding Year
1952
Phone
(800) 541-5454Principal Officer
Samantha Masterson
Main Address
290 Turnpike Rd 5-315, Westborough, MA, 01581
Website
www.myasthenia.orgNTEE Category
Code: H56Z - Medical research
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