National Multiple Sclerosis Society

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 135661935 ✦ New york, NY ✦ Designated as a 501(c)(3)

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Overview

What is National Multiple Sclerosis Society?

The National Multiple Sclerosis Society is a leading nonprofit organization based in New York, committed to transforming lives of people affected by Multiple Sclerosis (MS). They strive to empower individuals with MS to overcome daily challenges by providing essential support, resources, and education. Their mission is twofold: to find a cure for MS while enhancing the lives of those living with it. This organization offers a range of client and community services, including the MS Navigator program that assists individuals in navigating the complexities of MS. MS Navigators provide information, emotional support, and resources to help manage healthcare, benefits, insurance, employment, and financial challenges. They also offer wellness strategies and assess personalized case management plans. In 2022, MS Navigators supported over 46,000 people directly and assisted an additional 129,000 in finding doctors and resources. In addition, the Society provides educational programs, both in-person, phone-based, and online, reaching over 13,000 attendees and 514,000 people through on-demand content. Their efforts extend globally, reaching 22 international countries outside the US. The Society prioritizes diversity, equity, and inclusion, ensuring a welcoming and inclusive environment for all. Community programs include collaborating with other organizations, focusing on healthcare access, rehabilitation, treatments, and therapies; long-term care; disability rights issues; vocational training and rehabilitation; wellness and fitness; and outreach and education to rural and underserved populations.


Official website here: www.nationalmssociety.org

What are the reviews and ratings of this charity?

Charity Navigator Rating 96% - Four-Star out of Four Star Rating

The National Multiple Sclerosis Society (NMSS) has achieved a high rating of 96%, reflecting its strong accountability and finance management. With a program expense ratio of 72.36% and 96% of its board being independent members, the organization demonstrates a commitment to effective resource allocation and transparency. Their leadership and adaptability score is particularly noteworthy at 100%, indicating a proactive approach to evolving challenges and needs in the MS community.

User reviews highlight the NMSS as a vital support system for individuals affected by multiple sclerosis, with many praising its role in providing education, resources, and community engagement. Participants in events like the MS Walk express gratitude for the organization's efforts in raising awareness and funds for research, which has led to improved treatment options over the years. The positive feedback underlines the significant impact the NMSS has on the quality of life for those living with MS.

However, there are some criticisms regarding donor management and communication, where some users have reported frustrations with receiving unsolicited publications and challenges in opting out of mailing lists. While a few reviews express dissatisfaction with specific interactions, the overall sentiment remains positive, reflecting the organization’s essential role in the lives of many MS patients and their families.


This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.

Is National Multiple Sclerosis Society legitimate?

National Multiple Sclerosis Society is a legitimate nonprofit organization registered as a 501(c)(3) entity. National Multiple Sclerosis Society submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $2,578,241
Professional Fundraising Fees: $2,629,458
Other Salaries and Wages: $58,653,139

For more financial information, click here


Official website here: www.nationalmssociety.org

What is the mission statement of National Multiple Sclerosis Society?

The National Multiple Sclerosis Society is dedicated to finding a cure for MS while supporting individuals living with the condition to lead fulfilling lives. They prioritize diversity, equity, and inclusion, ensuring all voices are heard and valued in their mission. The Society's activities are grounded in the belief that everyone should feel respected and empowered to bring their whole selves to the table. By embracing different perspectives, they aim to make informed decisions that benefit everyone affected by MS.


Official website here: www.nationalmssociety.org

Who is the CEO of National Multiple Sclerosis Society?

Cynthia Zagieboylo is the President & Ceo of National Multiple Sclerosis Society. The CEO's salary of National Multiple Sclerosis Society is $473,993 and their total compensation is $507,344.


Official website here: www.nationalmssociety.org

What is the revenue of National Multiple Sclerosis Society?

National Multiple Sclerosis Society's revenue in 2022 was $171,945,464.


Official website here: www.nationalmssociety.org

Who are the executives of National Multiple Sclerosis Society and what are their salaries?

The average compensation at National Multiple Sclerosis Society during 2022 was $73,507. There are 833 employees and 29380 volunteers at National Multiple Sclerosis Society.


Here are 53 key members and their salaries (National Multiple Sclerosis Society's CEO's salary is $473,993 and their total compensation is $507,344):


Cynthia Zagieboylo (President & Ceo)
  • Compensation: $473,993
  • Related: $0
  • Other: $33,351
Richard Knutson (Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
William T Monahan (Vice Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Laura Vaccaro (Vice Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Caroline Whitacre (Vice Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Bonnie Higgins (Director/Vice Chair (As Of 11/17/21))
  • Compensation: $0
  • Related: $0
  • Other: $0
Eugene May (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Peter Porrino (Chair Elect & Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mindy B Alpert (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Gregory R Bishop (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Michael Bogdonoff (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Chris Campbell (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Hafiz Chandiwala (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Michele Dinn (Director (As Of 11/17/21))
  • Compensation: $0
  • Related: $0
  • Other: $0
Kassaundra Escalera (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dana M Foote (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Elizabeth Forstneger (Director (Thru 11/17/21))
  • Compensation: $0
  • Related: $0
  • Other: $0
Brendon Gallagher (Director (Thru 11/17/21))
  • Compensation: $0
  • Related: $0
  • Other: $0
Peter Galligan (Director (As Of 11/17/21))
  • Compensation: $0
  • Related: $0
  • Other: $0
Shyam Gidumal (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Peter Harbilas (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Andy Harris (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ian Harris (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lily Jung Henson (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
William Holley (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mark Livingston (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Linda Mcaleer (Director (As Of 11/17/21))
  • Compensation: $0
  • Related: $0
  • Other: $0
Rick Mcdermott (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Elizabeth Page (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Russell Parker (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Chet Porembski (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Elizabeth Rodriguez (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Nanette Reid (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tobi Rogowsky (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
David M Rottkamp (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Robert Shin (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jami Stewart (Director (As Of 11/17/21))
  • Compensation: $0
  • Related: $0
  • Other: $0
Diana Twadell (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Wendi Wasik (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Malcolm P Wattman Esq (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mitzi Williams (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tami Caesar (Chief Operating Officer)
  • Compensation: $322,722
  • Related: $0
  • Other: $50,248
Tim Coetzee (Chief Advoc, Svc & Science Officer)
  • Compensation: $317,479
  • Related: $0
  • Other: $76,385
John Scott Thru 2422 (Chief Mkt & Development Officer)
  • Compensation: $325,645
  • Related: $0
  • Other: $50,221
Lisa Goldfarb (Chief Ppl, Vol & Comm Eng Officer)
  • Compensation: $331,191
  • Related: $0
  • Other: $34,536
Elizabeth Crites Thru 4822 (Evp, Indiv Giving & Corp Eng.)
  • Compensation: $203,541
  • Related: $0
  • Other: $43,774
Rebecca Fehlig (Evp, Operations)
  • Compensation: $192,705
  • Related: $0
  • Other: $28,945
Ronda Krier (Evp, Technology (As Of 3/22/21))
  • Compensation: $162,283
  • Related: $0
  • Other: $18,160
Phyllis Robsham (Evp, Community Leadership)
  • Compensation: $255,966
  • Related: $0
  • Other: $46,451
Jennifer Lee (Evp, Development)
  • Compensation: $249,808
  • Related: $0
  • Other: $60,084
Bari Talente (Evp, Advocacy & Healthcare Access)
  • Compensation: $247,237
  • Related: $0
  • Other: $55,037
Bruce Bebo (Evp, Research)
  • Compensation: $207,462
  • Related: $0
  • Other: $50,112
Ron Zwerin (Evp, Mkt, Brand & Communications)
  • Compensation: $206,352
  • Related: $0
  • Other: $44,295


Official website here: www.nationalmssociety.org

Where can I find the form 990 for National Multiple Sclerosis Society?

National Multiple Sclerosis Society's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.nationalmssociety.org

Learn more at the official website: www.nationalmssociety.org

Mission Statement of National Multiple Sclerosis Society

The National Multiple Sclerosis Society is a forceful movement dedicated to finding a cure for Multiple Sclerosis (MS) while supporting those affected by the condition to live fulfilling lives. The organization is deeply committed to diversity, equity, and inclusion, as reflected in its mission statement that reads, "We will cure MS while empowering people affected by MS to live their best lives."

The Society's mission is twofold. On one hand, it is focused on eradicating MS through scientific research and innovation. On the other hand, it is dedicated to empowering individuals living with MS to thrive and reach their highest potential. This commitment to both finding a cure and providing support is what sets the National Multiple Sclerosis Society apart.

The Society prioritizes diversity, equity, and inclusion in all its endeavors. This commitment is reflected in the organization's internal operations, as evidenced by the statement read before all meetings: "The National Multiple Sclerosis Society is a movement by and for all people affected by MS. Our voices and actions reflect diversity, equity, and inclusion. We welcome and value diverse perspectives. We actively seek out and embrace differences. We want everyone to feel respected and empowered to bring their whole selves to ensure we make the best decisions to achieve our mission."

Through its programs and initiatives, the National Multiple Sclerosis Society is making a difference in the lives of those affected by MS, both through research and essential support services. The Society's unwavering commitment to its mission and its inclusive approach to serving the MS community is truly making a difference in the lives of countless individuals.

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Impact




October, 2024

The National Multiple Sclerosis Society is dedicated to empowering individuals affected by multiple sclerosis (MS) to overcome everyday challenges and live their best lives. By providing critical client and community services, the organization supports individuals through resources that enhance their quality of life, boost confidence, and foster meaningful connections.

Key offerings include the MS Navigator service, which assists nearly 47,000 individuals annually with information, emotional support, and resources to navigate medical care, insurance details, and financial challenges. In addition, self-service applications reach an impressive 129,141 users, helping them locate doctors and essential resources.

The society conducted 84 educational programs in the past year, attended by over 13,300 individuals, with recorded content accessed by more than half a million people globally. Topics covered include the effects of MS on various demographics, guidance on managing symptoms, and insights into wellness strategies, reaching audiences in 22 international countries.

Efforts to connect with diverse communities include programs designed for newly diagnosed individuals, Black and Hispanic Latinx communities, and rural populations. Collaborations with other organizations focus on vital issues like healthcare access, rehabilitation, vocational training, and disability rights, ensuring that support extends to underserved groups.

Finally, the society prioritizes diversity, equity, and inclusion within its mission, actively embracing a wide range of perspectives to foster a respectful and empowering environment for all affected by MS. Through these comprehensive services and initiatives, the National Multiple Sclerosis Society profoundly impacts the lives of those navigating the challenges of MS.




This information is meant to be a general summary of National Multiple Sclerosis Society. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$171,945,464 (2022)
Expenses
$159,668,291 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $3,532,512
  • Program Service Revenue: $7,830
  • Gross Receipts: $202,831,491

Assets and Liabilities:

  • Total Assets: $185,523,085
  • Total Liabilities: $61,129,294
  • Net Assets: $124,393,791

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Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

PROGRAM REGISTR. FEES

Revenue

$7,830

Organization Details

Founding Year

1946

Principal Officer

Cynthia Zagieboylo

Main Address

733 THIRD AVENUE, NEW YORK, NY, 100173211

NTEE Category

Code: G500 - Disease

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