Overview
What is National Bleeding Disorders Foundation?
The National Bleeding Disorders Foundation, formerly known as the National Hemophilia Foundation, is a health-focused nonprofit organization based in New York City. With a staff of 124 individuals, the foundation is dedicated to finding cures for inherited blood disorders and addressing their complications through research, education, and advocacy. They aim to empower individuals and families affected by these conditions to thrive. In 2022, they launched several new initiatives to increase equitable access to inclusive and evidence-based education about living with an inheritable bleeding disorder. These initiatives include the Health Equity Through HTC Pilot Project, MASAC for You, and the development of new publications on Glanzmann's Thrombasthenia and Factor VII (7) Deficiency. The Victory for Women and Better You Know programs focus on increasing awareness of symptoms and providing education and support for women with bleeding disorders. The foundation also offers workshops, educational components, and leadership institutes to assist young people in the bleeding disorders community.
Official website here: www.hemophilia.org
Is National Bleeding Disorders Foundation legitimate?
National Bleeding Disorders Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. National Bleeding Disorders Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $1,455,427
Professional Fundraising Fees: $0
Other Salaries and Wages: $7,243,553
For more financial information, click here
What is the mission statement of National Bleeding Disorders Foundation?
The National Bleeding Disorders Foundation is dedicated to finding cures for inherited blood disorders and addressing their complications through research, education, and advocacy. This enables individuals and their families to thrive. In 2022, they launched several initiatives to improve equitable access to inclusive education about living with a bleeding disorder, particularly for Black and African-American patients. They also created resources for self-advocacy, such as MASAC for You and various publications in English and Spanish for specific disorders. Their programs, including Victory for Women and Better You Know, aim to increase awareness and provide education to affected individuals. The National Bleeding Disorders Foundation also provides training and opportunities for young adults to become leaders within their community. They offer workshops and educational programs on various topics related to bleeding disorders.
Official website here: www.hemophilia.org
Who is the CEO of National Bleeding Disorders Foundation?
Peter Harvey is the Chair of National Bleeding Disorders Foundation. The CEO's salary of National Bleeding Disorders Foundation is $452,363 and their total compensation is $507,513.
Official website here: www.hemophilia.org
What is the revenue of National Bleeding Disorders Foundation?
National Bleeding Disorders Foundation's revenue in 2022 was $18,150,168.
Official website here: www.hemophilia.org
Who are the executives of National Bleeding Disorders Foundation and what are their salaries?
The average compensation at National Bleeding Disorders Foundation during 2022 was $70,153. There are 124 employees and 1,010 volunteers at National Bleeding Disorders Foundation.
Here are 21 key members and their salaries (National Bleeding Disorders Foundation's CEO's salary is $452,363 and their total compensation is $507,513):
- Leonard Valentino (President & Ceo)
- Kevin Mills Chief (Scientific Officer Thru 12/1/22)
- Peter Harvey (Chief Business Officer)
- Brett Spitale (V.P. Of Advancement)
- Sandra D Rotellini (Chief Operating Officer)
- Michelle Witkop (V.P. Of Research)
- Neil Frick (S.V.P. Of Research & Medic)
- Kerri Norris Vp Of Health (Equity Diversity And Inclusion)
- Anna Sprovskaya (Controller)
- Michelle Rice Former (Chief External Affair Officer)
- Scott Martin (Chair) [Trustee/Director]
- John Faria Mba (Vice Chair) [Trustee/Director]
- Ryan Griffith (Treasurer) [Trustee/Director]
- Paulette Bryant Md (Secretary) [Trustee/Director]
- Kai Brown (Director)
- Lynne Capretto (Director)
- Maria Eileen San Juan (Director)
- Susan Hartmann (Director)
- Ziva Mann (Director)
- Scott Miller Cpa Esq (Director)
- Derick Stace-Naughton (Director)
Official website here: www.hemophilia.org
Where can I find the form 990 for National Bleeding Disorders Foundation?
The National Bleeding Disorders Foundation’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.hemophilia.org
Learn more at the official website: www.hemophilia.org
Mission Statement of National Bleeding Disorders Foundation
The National Bleeding Disorders Foundation, formerly known as the National Hemophilia Foundation, is a dedicated organization that strives to find cures for inheritable bleeding disorders and addresses the complications of these disorders through research, education, and advocacy. By enabling people and families to thrive, this esteemed nonprofit aims to make a significant impact in the lives of those affected.
In 2022, the National Bleeding Disorders Foundation announced several new initiatives to identify barriers and improve equitable access to inclusive, evidence-based education for individuals living with bleeding disorders. These initiatives include the Health Equity Through HTC Pilot Project, which focuses on engaging Black and African-American patients, and the development of tool kits for families and healthcare providers. Additionally, the organization launched MASAC for You, starting with the topic of navigating emergency department visits, ensuring that MASAC guidelines are accessible to all. New publications in English and Spanish for Glanzmann's Thrombasthenia and Factor VII (7) Deficiency, as well as VWD Guidelines Summary Sheets, were also created to aid patients in self-advocacy.
The National Bleeding Disorders Foundation's primary goals for its Victory for Women and Better You Know programs include improving awareness of symptoms of bleeding disorders in women and providing education and support for affected women. In 2022, the organization launched a new program, Journey to Know, where women with symptoms join a three-month program to receive more information and support on the path to diagnosis. Over 4,500 women took the Better You Know risk assessment tool, 75% of whom had symptoms of a bleeding disorder, and over 5,700 visited Victoryforwomen.org.
Furthermore, the organization's Steps for Living is a multimedia educational program designed to increase access to age and culturally appropriate information for the management of daily challenges in living with a bleeding disorder. The program aims to redesign and relaunch for 2024, and in 2022, it had over 87,000 sessions. The Education for Empowerment program brings workshops out to local chapter and HTC events, and in 2022, NHF facilitated 68 workshops in English and Spanish, with over 1,300 participants. The National Youth Leadership Institute (NYLI) assists young people from the bleeding disorders community to become well-trained, recognized leaders, providing training, support, and opportunities to provide education to the bleeding disorders community. In 2022, NHF provided trainings to the 16 members of NYLI on topics including public speaking, advocacy, non-profit management, and fundraising. Additionally, the organization developed numerous educational components for its Gene and Innovative Therapies Programming to ensure community members are aware of the latest treatments in the pipeline and how to have conversations with their healthcare providers for the best treatment decisions.
Impact
This information is meant to be a general summary of National Bleeding Disorders Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Thursday, August 15, 2024
National Bleeding Disorders Foundation has a significant impact on the community through its dedicated efforts in finding cures for inheritable blood disorders and addressing and preventing the complications associated with these disorders. Their focus on research, education, and advocacy enables individuals and families affected by bleeding disorders to thrive. The foundation's initiatives, such as the Health Equity Through HTC Pilot Project, MASAC for You program, and Victory for Women and Better You Know programs, are designed to improve access to education, support, and resources for those living with bleeding disorders. Additionally, their Steps for Living program and National Youth Leadership Institute provide vital information and opportunities for empowerment within the bleeding disorders community. Through collaborations, publications, training programs, and various educational resources, the National Bleeding Disorders Foundation continues to have a positive and far-reaching impact on individuals affected by these conditions.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
EDUCATIONAL/MEDICAL LITERATURE
Revenue
$1,000,348
EDUCATION SEMINARS
Revenue
$221,293
Organization Details
Founding Year
1948
Phone
(212) 328-3700
Principal Officer
Peter Harvey
Main Address
1230 AVENUE OF THE AMERICAS 16TH F, NEW YORK, NY, 10020
Website
www.hemophilia.org
NTEE Category
Code: G20 - Disease
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