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Families And Friends Supporting Cystic Fibrosis Care

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 134166186 ✦ New york, NY ✦ Designated as a 501(c)(3)

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Overview

What is Families And Friends Supporting Cystic Fibrosis Care?

Families and Friends Supporting Cystic Fibrosis Care is a dedicated nonprofit organization based in New York, specifically at 55 East End Ave 14D, New York, NY 10028. Their primary mission is to improve the quality of life for individuals with cystic fibrosis, a chronic illness. In previous years, they provided grants to Beth Israel Medical Center in New York for this purpose. However, the Beth Israel Medical Center program has been discontinued. Starting in the current fiscal year, grants have been given to Northwell Health Foundation to aid a new Cystic Fibrosis Center at Lenox Hill Hospital in New York, amounting to $650,000, with $400,000 allocated for facility renovations. Additionally, $28,000 was donated to the Cystic Fibrosis Foundation to support their research for a cystic fibrosis cure. The organization's commitment to Cystic Fibrosis patients extends beyond financial support, as they strive to improve specialized programs available for patients.

What are the reviews and ratings of this charity?

Charity Navigator Rating: 73% (Two-Star out of Four Star rating)

Families And Friends Supporting Cystic Fibrosis Care has received a Two-Star rating from Charity Navigator, indicating it meets some of the essential standards for accountability and finance but has areas needing improvement. The organization excels in having an entirely independent board, which is a positive sign of governance. It also maintains a low liabilities-to-assets ratio and allocates a substantial portion of its expenses toward programs.

However, the nonprofit's transparency is a notable concern, as reflected in its low scores for tax form disclosures and various policies. Issues such as the absence of conflict of interest and whistleblower policies, alongside inadequate posting of tax forms on its website, highlight significant gaps in accountability measures. These limitations may affect potential donors' trust and the organization’s overall credibility.

While the charity effectively allocates funds to its programs, the lack of transparency and proper governance policies could hinder its potential for growth and community impact. Improving these areas may enhance its rating and strengthen trust among supporters and stakeholders.


This AI summary has been generated from information found on Charity Navigator.

Is Families And Friends Supporting Cystic Fibrosis Care legitimate?

Families And Friends Supporting Cystic Fibrosis Care is a legitimate nonprofit organization registered as a 501(c)(3) entity. Families And Friends Supporting Cystic Fibrosis Care submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0

For more financial information, click here

What is the mission statement of Families And Friends Supporting Cystic Fibrosis Care?

Families and Friends Supporting Cystic Fibrosis Care is an organization dedicated to enhancing the quality of life for individuals with cystic fibrosis while they await a cure. The organization achieves this by supporting and working towards improving the special programs available for patients. They provide grants to operate cystic fibrosis centers, with recent funding going to Northwell Health Foundation to support a new center at Lenox Hill Hospital in New York. In the current fiscal year, grants amounting to $650,000 were provided, with $400,000 allocated for facility renovations. Additionally, $28,000 was donated to the Cystic Fibrosis Foundation to aid in their search for a cystic fibrosis cure.

Who is the CEO of Families And Friends Supporting Cystic Fibrosis Care?

Gwen Engelhard is the President of Families And Friends Supporting Cystic Fibrosis Care.

What is the revenue of Families And Friends Supporting Cystic Fibrosis Care?

Families And Friends Supporting Cystic Fibrosis Care's revenue in 2023 was $817,705.

Who are the executives of Families And Friends Supporting Cystic Fibrosis Care and what are their salaries?


Here are 16 key members and their salaries:


Gwen M Engelhard Dds (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jill Dalton (Chief Financial Officer)
  • Compensation: $0
  • Related: $0
  • Other: $0
John Z Jacoby (President Emeritus/Secreta)
  • Compensation: $0
  • Related: $0
  • Other: $0
Marnee Mccarthy (Assistant Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kaitlyn Cheney (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Robert M Hutchinson (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mary Jean Jacoby (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sean Mccooe (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Judy Nance (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lumi Castlen (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Melissa Argenio (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
David Shepherd (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Thomas G Leahy (Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Rose Marie Manger (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Melissa Smith (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lisa Troyano-Ascolese (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Where can I find the form 990 for Families And Friends Supporting Cystic Fibrosis Care?

Families And Friends Supporting Cystic Fibrosis Care's most recent form 990 was submitted in 2023 and can be accessed here.

Mission Statement of Families And Friends Supporting Cystic Fibrosis Care

Families and Friends Supporting Cystic Fibrosis Care is an organization dedicated to improving the lives of individuals battling cystic fibrosis. Their mission is to enhance the quality of life for these patients as they await a cure. They achieve this by supporting and striving to improve the special programs available for patients. The organization accomplishes this by providing grants to operate a cystic fibrosis center, with a notable past recipient being Beth Israel Medical Center in New York. However, the Beth Israel Medical Center program has ceased operation. In the current fiscal year, grants have been given to Northwell Health Foundation to support a new cystic fibrosis center at Lenox Hill Hospital in New York. The total amount granted in this year was $650,000, with $400,000 going towards facility renovations. Besides this, the organization has also donated $28,000 to the Cystic Fibrosis Foundation to aid in their search for a cystic fibrosis cure.

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Impact




October, 2024

Families and Friends Supporting Cystic Fibrosis Care significantly enhances the quality of life for cystic fibrosis patients by providing essential funding to critical healthcare facilities. Recently, the organization allocated $650,000 in grants to support a new cystic fibrosis center at Lenox Hill Hospital in New York. This investment included $400,000 specifically for renovations, ensuring that patients receive care in a modern and supportive environment.

Furthermore, the organization is actively involved in the broader fight against cystic fibrosis, recently donating $28,000 to the Cystic Fibrosis Foundation to aid in research efforts aimed at finding a cure. Through these initiatives, Families and Friends Supporting Cystic Fibrosis Care plays a vital role in improving patient care and fostering an environment where those living with cystic fibrosis can thrive while awaiting a potential cure.




This information is meant to be a general summary of Families And Friends Supporting Cystic Fibrosis Care. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$817,705 (2023)
Expenses
$755,393 (2023)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2023.

  • Investment Income: $37,229
  • Gross Receipts: $896,936

Assets and Liabilities:

  • Total Assets: $1,901,654
  • Total Liabilities: $0
  • Net Assets: $1,901,654

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Organization Details

Founding Year

2001

Principal Officer

Gwen Engelhard

Main Address

55 EAST END AVE 14D, NEW YORK, NY, 10028

NTEE Category

Code: G80 - Disease

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