Overview
What is Moebius Syndrome Foundation?
The Moebius Syndrome Foundation, situated in Denver, Colorado, is a small nonprofit organization with a mission to support individuals with Moebius syndrome and their families. They achieve this objective primarily through their newsletter and biannual conferences. The foundation's main goal is to increase awareness and understanding of Moebius syndrome, advocate for scientific research, and advance the diagnosis and treatment of this condition and its related aspects. With a dedicated team of two, the Moebius Syndrome Foundation is committed to making a difference in the lives of those affected by this syndrome.
Official website here: www.moebiussyndrome.org
Is Moebius Syndrome Foundation legitimate?
Moebius Syndrome Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Moebius Syndrome Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $83,350
Professional Fundraising Fees: $0
Other Salaries and Wages: $41,874
For more financial information, click here
Official website here: www.moebiussyndrome.org
What is the mission statement of Moebius Syndrome Foundation?
The Moebius Syndrome Foundation, in its mission, aims to offer information and assistance to individuals affected by Moebius syndrome and their families. It strives to increase public understanding and awareness of this condition. Furthermore, the organization actively advocates for scientific research to advance the diagnosis and treatment of Moebius syndrome and its related conditions. Their primary tools for achieving these objectives include a newsletter and a biannual conference.
Official website here: www.moebiussyndrome.org
Who is the CEO of Moebius Syndrome Foundation?
Jacob Licht is the Board Member of Moebius Syndrome Foundation.
Official website here: www.moebiussyndrome.org
What is the revenue of Moebius Syndrome Foundation?
Moebius Syndrome Foundation's revenue in 2022 was $358,125.
Official website here: www.moebiussyndrome.org
Who are the executives of Moebius Syndrome Foundation and what are their salaries?
The average compensation at Moebius Syndrome Foundation during 2022 was $62,612. There are 2 employees and 1 volunteer at Moebius Syndrome Foundation.
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Official website here: www.moebiussyndrome.org
Where can I find the form 990 for Moebius Syndrome Foundation?
Moebius Syndrome Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.moebiussyndrome.org
Learn more at the official website: www.moebiussyndrome.org
Mission Statement of Moebius Syndrome Foundation
The Moebius Syndrome Foundation is dedicated to serving individuals with Moebius syndrome and their families. Its primary objective is to promote understanding and awareness about Moebius syndrome, a condition characterized by facial paralysis and other impairments. Beyond this, the foundation advocates for scientific research aimed at advancing the diagnosis and treatment of Moebius syndrome and its associated conditions. The Moebius Syndrome Foundation achieves its mission through various means, including distributing information via its newsletter and organizing a biannual conference. These platforms provide a platform for individuals with Moebius syndrome and their families to connect, share experiences, and gain valuable resources. The foundation's ultimate goal is to support those affected by Moebius syndrome and contribute to the advancement of medical knowledge in this field.
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Impact
October, 2024
The Moebius Syndrome Foundation significantly impacts the lives of individuals with Moebius syndrome and their families through multiple avenues. By providing crucial information and support, the foundation helps families navigate the complexities of the condition, ensuring that they have access to the resources and knowledge necessary for informed decision-making.
One key initiative is the foundation’s newsletter, which keeps families and individuals updated on new findings, available support, and community events. The biannual conference serves as an essential platform for connection, allowing those affected by Moebius syndrome to meet, share experiences, and learn from experts in the field.
Additionally, the foundation plays a pivotal role in promoting awareness and understanding of Moebius syndrome. By advocating for scientific research, it helps drive advancements in diagnosis and treatment, ultimately improving the quality of life for those affected. Through these efforts, the Moebius Syndrome Foundation fosters a sense of community and hope, empowering families while working toward a better understanding and treatment of the syndrome.
This information is meant to be a general summary of Moebius Syndrome Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $47,724
- Program Service Revenue: $69,422
- Gross Receipts: $358,125
Assets and Liabilities:
- Total Assets: $1,898,826
- Total Liabilities: $45,653
- Net Assets: $1,853,173
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Conference registratio
Revenue
$69,422
Organization Details
Founding Year
1994
Phone
(844) 663-2487Principal Officer
Jacob Licht
Main Address
1312 17th St 976, Denver, CO, 80202
Website
www.moebiussyndrome.orgNTEE Category
Code: T30 - Philanthropy
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