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Huntington's Disease Society Of America Inc

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 133349872 ✦ New york, NY ✦ Designated as a 501(c)(3)

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Overview

What is Huntington's Disease Society Of America Inc?

Huntington's Disease Society of America Inc, based in New York City, is a dedicated nonprofit organization that strives to enhance the lives of individuals affected by Huntington's disease and their families. Their primary focus is on supporting research, as advised by their Scientific Advisory Board, with the aim of discovering cures and effective treatments for this condition. The Society is a national voluntary health and welfare organization, committed to its mission of improving the lives of those impacted by Huntington's disease. With a workforce of 34 individuals, they continue their efforts to support and empower those affected by this condition.


Official website here: www.hdsa.org

Is Huntington's Disease Society Of America Inc legitimate?

Huntington's Disease Society Of America Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Huntington's Disease Society Of America Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $2,982,377

For more financial information, click here


Official website here: www.hdsa.org

What is the mission statement of Huntington's Disease Society Of America Inc?

The Huntington's Disease Society of America Inc. is a voluntary health and welfare organization, committed to enhancing the lives of individuals struggling with Huntington's disease and their families. The organization's mission, in essence, is to support research directed towards discovering cures and effective treatments for Huntington's disease, as guided by its Scientific Advisory Board. The Society's activities are geared towards improving the quality of life for affected individuals and their families, providing them with the necessary resources and aid during their challenging journey.


Official website here: www.hdsa.org

Who is the CEO of Huntington's Disease Society Of America Inc?

Louise Vetter is the Chair of Huntington's Disease Society Of America Inc. The CEO's salary of Huntington's Disease Society Of America Inc is $349,249 and their total compensation is $401,948.


Official website here: www.hdsa.org

What is the revenue of Huntington's Disease Society Of America Inc?

Huntington's Disease Society Of America Inc's revenue in 2022 was $10,709,965.


Official website here: www.hdsa.org

Who are the executives of Huntington's Disease Society Of America Inc and what are their salaries?

The average compensation at Huntington's Disease Society Of America Inc during 2022 was $87,717. There are 34 employees and 500 volunteers at Huntington's Disease Society Of America Inc.


Here are 27 key members and their salaries (Huntington's Disease Society Of America Inc's CEO's salary is $349,249 and their total compensation is $401,948):


Victor Sung Md (Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Teresa Srajer (Chair-Elect)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kamran Alam (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jenne Coler-Dark (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ej Garner (Past Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Angela Allen (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Daniel Brennan (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jeff Carroll (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mark Coe (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Stacy Coen (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Wendy Erler (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Erin Furr-Stimming Md (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Beth Hoffman (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jay Hughes (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jonathan Klein Esq (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kelsey Porter (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dominique Thomas (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Leslie M Thompson Phd (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Vicki Wheelock Md (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Louise Vetter (Chief Executive Officer)
  • Compensation: $349,249
  • Related: $0
  • Other: $52,699
Rosemary Coluccio (Chief Operations Officer)
  • Compensation: $249,757
  • Related: $0
  • Other: $26,305
Arik Johnson (Chief Mission Officer)
  • Compensation: $195,400
  • Related: $0
  • Other: $2,714
Jamison Skala (Director, National Develop)
  • Compensation: $165,915
  • Related: $0
  • Other: $11,985
Debra Lovecky (Director Of Education Prog)
  • Compensation: $161,407
  • Related: $0
  • Other: $22,964
Christopher Cosentino (Director Of Marketing & Co)
  • Compensation: $143,417
  • Related: $0
  • Other: $37,591
Deborah Boyd (Regional Development Direc)
  • Compensation: $113,225
  • Related: $0
  • Other: $18,592
Rebecca Chan (Controller)
  • Compensation: $106,797
  • Related: $0
  • Other: $36,399


Official website here: www.hdsa.org

Where can I find the form 990 for Huntington's Disease Society Of America Inc?

Huntington's Disease Society Of America Inc's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.hdsa.org

Learn more at the official website: www.hdsa.org

Mission Statement of Huntington's Disease Society Of America Inc

The Huntington's Disease Society of America Inc, as a national voluntary health and welfare organization, is committed to enhancing the lives of individuals diagnosed with Huntington's disease and their families. Its mission lies in supporting research efforts, which are guided by its Scientific Advisory Board. The aim of these research projects is to uncover potential cures and treatments for Huntington's disease. This organization strives to improve the quality of life for those affected by this debilitating condition, offering hope and support during what can often be a challenging journey.

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Impact




October, 2024

Huntington's Disease Society Of America Inc has a significant impact on the lives of individuals and families affected by Huntington's disease. Through its commitment to improving those lives, it provides essential support and resources for patients and their families, ensuring they are not alone in their journey. The organization actively funds and supports research initiatives, guided by its Scientific Advisory Board, aimed at discovering effective treatments and potential cures for Huntington's disease. By facilitating collaboration among researchers and stakeholders, it fosters advancements in understanding this complex neurological disorder, ultimately driving hope for better outcomes. Located in New York, the organization's national scope allows it to reach a wide audience, uniting communities and enhancing awareness about Huntington's disease and its challenges.




This information is meant to be a general summary of Huntington's Disease Society Of America Inc. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$10,709,965 (2022)
Expenses
$9,418,102 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $29,528
  • Gross Receipts: $11,768,085

Assets and Liabilities:

  • Total Assets: $17,419,711
  • Total Liabilities: $2,232,998
  • Net Assets: $15,186,713

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Organization Details

Founding Year

1986

Principal Officer

Louise Vetter

Main Address

505 EIGHTH AVENUE SUITE 902, NEW YORK, NY, 10018

NTEE Category

Code: G20 - Disease

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