Overview
What is Galactosemia Foundation?
The Galactosemia Foundation is a non-profit organization based in Albany, New York, with the primary mission to educate, support, and advocate for those affected by Galactosemia. They achieve this by spreading awareness of the condition, offering support to parents of children with Galactosemia, and funding research in the field. Their efforts include publishing two newsletters worldwide, maintaining a national discussion forum online, providing telephone support, and organizing a biennial conference. Their aim is to empower individuals with Galactosemia and their families, and to create a community for sharing experiences and seeking resources.
Official website here: www.galactosemia.org
What are the reviews and ratings of this charity?
Charity Navigator rating: 83%, Three-Star out of Four Star rating.
The Galactosemia Foundation has earned an 83% overall score, reflecting strong performance in accountability and finance. This score is based solely on their accountability and finance metrics, which are critical for assessing the organization's transparency and stewardship of resources. The foundation exhibits excellent governance, with 100% of its board members being independent and a strong program expense ratio of 94.12%, indicating that a significant majority of its resources are directed toward its mission.
The foundation also scores well on various accountability metrics, such as having no material diversion of assets and maintaining a good liabilities to assets ratio of 0.00%. However, it is noted that the foundation lacks a whistleblower policy and a document retention and destruction policy, which could be areas for improvement in its governance practices. Despite these limitations, the overall high score demonstrates the foundation's commitment to effectively managing its finances and maintaining accountability.
This AI summary has been generated from information found on Charity Navigator.
What do the Facebook reviews say about Galactosemia Foundation?
94% of 12 reviewers on Facebook recommend the Galactosemia Foundation. Here’s a summary of their thoughts:
Many users describe the foundation as a vital support system, highlighting its role in fostering a sense of community among families affected by galactosemia. One reviewer particularly emphasized the foundation's importance by expressing gratitude for the support they've received, noting that it feels like an extended family.
Overall, the sentiment towards the Galactosemia Foundation is overwhelmingly positive, with users appreciating the resources and connections it provides to families navigating the challenges of this condition. The organization is recognized for its commitment to serving affected individuals and families effectively.
This AI summary has been generated from reviews found on Facebook.
Is Galactosemia Foundation legitimate?
Galactosemia Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Galactosemia Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.galactosemia.org
What is the mission statement of Galactosemia Foundation?
The Galactosemia Foundation aims to educate, support, and provide advocacy for individuals impacted by galactosemia. The organization works towards spreading awareness of the condition, supporting parents of children with galactosemia, and funding research. They achieve this by publishing newsletters worldwide, setting up a national discussion forum online, providing telephone support, and organizing a biennial conference.
Official website here: www.galactosemia.org
Who is the CEO of Galactosemia Foundation?
Scott Saylor is the President of Galactosemia Foundation.
Official website here: www.galactosemia.org
What is the revenue of Galactosemia Foundation?
Galactosemia Foundation's revenue in 2022 was $376,578.
Official website here: www.galactosemia.org
Who are the executives of Galactosemia Foundation and what are their salaries?
There 12 volunteers at Galactosemia Foundation.
Here are 6 key members and their salaries:
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- Other: $0
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- Other: $0
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- Other: $0
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Official website here: www.galactosemia.org
Where can I find the form 990 for Galactosemia Foundation?
Galactosemia Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.galactosemia.org
Learn more at the official website: www.galactosemia.org
Mission Statement of Galactosemia Foundation
The Galactosemia Foundation, a dedicated organization, strives to educate, support, and advocate for individuals and families affected by galactosemia. This nonprofit works tirelessly to raise awareness about galactosemia, a rare genetic disorder affecting sugar metabolism.
The foundation's primary objectives encompass providing education, support, and funding for research related to galactosemia. They achieve this through various means, such as publishing two newsletters worldwide, setting up a nationwide discussion forum on their website, offering telephone support, and hosting a biennial conference. These efforts aim to ensure that those affected by galactosemia have access to the latest information and resources.
In addition to these initiatives, the Galactosemia Foundation also provides advocacy for those impacted by this condition. They strive to create a supportive environment for individuals with galactosemia and their families, working towards a world where they can live without fear of the challenges associated with this disorder. Through their relentless efforts, the Galactosemia Foundation is making a significant difference in the lives of those affected by this rare condition.
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Impact
June, 2024
The Galactosemia Foundation's impact includes spreading awareness of galactosemia and providing support for parents of children with the condition through education and funding research. They offer support to individuals with galactosemia by publishing two newsletters worldwide, setting up a nationwide website discussion forum, providing telephone support, and organizing a biennial conference. Their efforts aim to educate, support, and advocate for those affected by galactosemia, ultimately contributing to the mental health and well-being of individuals and families dealing with this condition.
This information is meant to be a general summary of Galactosemia Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $14
- Program Service Revenue: $155,345
- Gross Receipts: $376,578
Assets and Liabilities:
- Total Assets: $564,223
- Total Liabilities: $0
- Net Assets: $564,223
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
PROGRAM REVENUE
Revenue
$155,345
Organization Details
Founding Year
1985
Phone
(866) 900-7421Principal Officer
Scott Saylor
Main Address
350 NORTHERN BLVD STE 324-1079, ALBANY, NY, 122041000
Website
www.galactosemia.orgNTEE Category
Code: F197 - Mental health
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