Overview
What is Interstitial Cystitis Association Of America Inc?
Interstitial Cystitis Association of America Inc., based in McLean, Virginia, is a nonprofit organization dedicated to supporting individuals and families affected by Interstitial Cystitis/Bladder Pain Syndrome (IC/BPS). They deliver essential health information through various programs, such as medical education for healthcare providers, patient seminars, self-care strategies, educational resources like the ICA Update Magazine and weekly eNews, and collaborative efforts with the Centers for Disease Control and Prevention (CDC) for IC awareness. The organization also advocates for research to discover a cure and improved treatments, raises awareness, and serves as a vital resource for healthcare providers, researchers, and the millions of patients affected by IC/BPS.
Official website here: www.ichelp.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 100%, Four-Star out of Four Star Rating
The Interstitial Cystitis Association of America (ICA) has achieved a perfect score of 100% on Charity Navigator, which underscores its strong performance in accountability and finance as well as leadership and adaptability. A fully independent board and effective governance practices, such as a conflict of interest policy and whistleblower policy, demonstrate a commitment to transparency and ethical management. The ICA's high program expense ratio of 80.43% indicates a substantial portion of its resources is allocated directly to fulfilling its mission of providing support and education to individuals affected by interstitial cystitis.
User feedback highlights that the ICA has played a crucial role in the lives of many patients, assisting them in navigating their diagnosis and treatment options. Many users express gratitude for the resources and community support provided by the organization, which has been instrumental in raising awareness about interstitial cystitis. Positive testimonials reflect how the ICA has been a lifeline for patients, offering information, advocacy, and connection to healthcare professionals who understand the condition.
However, some criticisms have emerged, particularly regarding a perceived decline in the organization's visibility and outreach efforts over the past decade. A few users have expressed concerns about administrative costs and a disconnect between the ICA and its patient community, suggesting that the organization may not be as responsive to current needs as it once was. Despite these criticisms, the overall sentiment remains positive, with many emphasizing the importance of continued support for the ICA's work in advocating for those living with interstitial cystitis.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
What do the Facebook reviews say about Interstitial Cystitis Association Of America Inc?
92% of 41 reviewers on Facebook recommend the Interstitial Cystitis Association Of America Inc. Here's a summary of their insights:
Many individuals express a sense of gratitude and relief towards the organization, describing it as a "beacon of hope" during difficult times. Reviewers highlight the important resources and support offered, which provide comfort and empowerment in managing their condition. The community aspect also receives acclaim, as individuals appreciate connecting with others who understand their experiences.
Overall, the sentiment towards the nonprofit is overwhelmingly positive, emphasizing its role in raising awareness and providing valuable assistance to those affected by interstitial cystitis. This organization clearly resonates deeply with its audience, fulfilling a critical need for support and information.
This AI summary has been generated from reviews found on Facebook.
Is Interstitial Cystitis Association Of America Inc legitimate?
Interstitial Cystitis Association Of America Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Interstitial Cystitis Association Of America Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
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Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.ichelp.org
What is the mission statement of Interstitial Cystitis Association Of America Inc?
The Interstitial Cystitis Association of America Inc. is committed to advocating for research aimed at finding a cure and improving treatments for Interstitial Cystitis/Bladder Pain Syndrome (IC/BPS), a condition characterized by constant urinary urgency, frequency, and severe bladder pain. They also work towards raising awareness about this condition and serve as a resource center for patients, healthcare providers, and researchers. In addition to advocacy, the organization delivers crucial health information and support to patients, caregivers, healthcare providers, and the public through various programs such as medical education for healthcare providers, seminars, interactive self-care strategies, and educational resources. The Interstitial Cystitis Association of America Inc. collaborates with the Centers for Disease Control and Prevention (CDC) on IC awareness programs.
Official website here: www.ichelp.org
Who is the CEO of Interstitial Cystitis Association Of America Inc?
Lee K Lowery is the Chair of Interstitial Cystitis Association Of America Inc.
Official website here: www.ichelp.org
What is the revenue of Interstitial Cystitis Association Of America Inc?
Interstitial Cystitis Association Of America Inc's revenue in 2022 was $604,676.
Official website here: www.ichelp.org
Who are the executives of Interstitial Cystitis Association Of America Inc and what are their salaries?
There 50 volunteers at Interstitial Cystitis Association Of America Inc.
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Official website here: www.ichelp.org
Where can I find the form 990 for Interstitial Cystitis Association Of America Inc?
Interstitial Cystitis Association Of America Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.ichelp.org
Learn more at the official website: www.ichelp.org
Mission Statement of Interstitial Cystitis Association Of America Inc
The Interstitial Cystitis Association of America Inc, often abbreviated as ICA, is committed to advocating for research aimed at discovering a cure and improving treatments for Interstitial Cystitis/Bladder Pain Syndrome (IC/BPS). This condition is characterized by constant urinary urgency, frequency, and extreme bladder pain. The organization serves as a central hub, connecting millions of patients, healthcare providers, and researchers in this field. Beyond advocacy, the ICA seeks to increase awareness about IC/BPS and provides crucial educational resources to patients, caregivers, and the general public.
The ICA's educational programs are extensive, designed to deliver vital health information and support to its target audience. These initiatives include medical education programs for healthcare providers, seminars about IC for patients and their families, and interactive services that teach self-care strategies to IC patients. Additionally, the ICA offers educational resources, such as the ICA Update Magazine and a weekly eNewsletter, to keep the community informed. The organization collaborates with the Centers for Disease Control and Prevention (CDC) on IC awareness programs, furthering its mission to raise awareness and support for those affected by IC/BPS.
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Impact
July, 2024
The Interstitial Cystitis Association Of America Inc's impact is significant in the field of interstitial cystitis (IC) and bladder pain syndrome (BPS). The organization advocates for research dedicated to finding a cure and better treatments for these debilitating conditions. They raise awareness about IC/BPS and serve as a central hub for healthcare providers, researchers, and the millions of patients who suffer from constant urinary urgency, frequency, and extreme bladder pain.
Through education programs, the ICA delivers critical health information and support to patients, caregivers, healthcare providers, researchers, and the public. They conduct seminars, interactive services, and provide resources like the ICA Update Magazine and weekly eNews to educate and empower individuals affected by IC/BPS. Additionally, they collaborate with the Centers for Disease Control and Prevention (CDC) on awareness programs related to IC.
Overall, the Interstitial Cystitis Association Of America Inc plays a vital role in supporting those affected by IC/BPS, advocating for research, and raising awareness about these challenging conditions.
This information is meant to be a general summary of Interstitial Cystitis Association Of America Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $14
- Program Service Revenue: $38,500
- Gross Receipts: $605,234
Assets and Liabilities:
- Total Assets: $304,762
- Total Liabilities: $33,361
- Net Assets: $271,401
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Industry publications
Revenue
$30,000
Media campaign
Revenue
$8,500
Organization Details
Founding Year
1984
Phone
(703) 442-2070Principal Officer
Lee K Lowery
Main Address
1660 International Drive 600, McLean, VA, 221024877
Website
www.ichelp.orgNTEE Category
Code: G40 - Disease
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