Overview
What is Amyotrophic Lateral Sclerosis Assn?
The Amyotrophic Lateral Sclerosis Association, also known as The ALS Association, is a nonprofit organization headquartered at 1300 Wilson Blvd 600, Arlington, VA, 22209. With a workforce of 547 employees, the Association is dedicated to providing comprehensive, consistent programs and services for individuals with Amyotrophic Lateral Sclerosis (ALS), their families, caregivers, and professionals across the United States. Their initiatives are shaped by key stakeholders, and their activities cater to both current needs and future services. The Association leads the fight to cure and treat ALS through research, advocacy, and care services. Their offerings include clinical and professional education programs, certified care center certification and recertification, strategies to deliver care through other means, and current information, resources, and referrals for the communities they serve. Additionally, they provide compassionate care and support to empower people with ALS and their families to live fuller lives.
Official website here: www.als.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 94% (Four-Star out of Four Stars)
The Amyotrophic Lateral Sclerosis Association (ALSA) has received a commendable Four-Star rating from Charity Navigator, reflecting a strong emphasis on accountability and financial health. With a score of 93 in Accountability & Finance and 100 in Leadership & Adaptability, ALSA demonstrates robust governance and financial oversight. The organization boasts a fully independent board and effective financial practices, including comprehensive policies that ensure transparency and ethical conduct.
User feedback presents a mixed view of ALSA's effectiveness in serving individuals affected by ALS. Many clients appreciate the support and resources provided by local chapters, emphasizing the importance of direct services to patients and their families. However, some criticisms focus on the national organization’s management and allocation of funds. There are concerns regarding the percentage of funds directed toward research and services, with some reviewers expressing disappointment in the perceived lack of progress in finding viable treatments for ALS.
Overall, while ALSA maintains a strong financial rating, the feedback highlights a significant divide between the organization’s operational success and the expectations of those it serves. Many users express a desire for more targeted efforts in finding treatments and better management practices at the national level, suggesting that potential donors may want to consider local chapters for their contributions.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Amyotrophic Lateral Sclerosis Assn legitimate?
Amyotrophic Lateral Sclerosis Assn is a legitimate nonprofit organization registered as a 501(c)(3) entity. Amyotrophic Lateral Sclerosis Assn submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $2,009,534
Professional Fundraising Fees: $648,986
Other Salaries and Wages: $27,608,816
For more financial information, click here
Official website here: www.als.org
What is the mission statement of Amyotrophic Lateral Sclerosis Assn?
The Amyotrophic Lateral Sclerosis Association is dedicated to leading the charge in treating and curing Amyotrophic Lateral Sclerosis (ALS) through innovative, global research and providing compassionate care and support to those afflicted by the disease. Their mission is to empower individuals with ALS and their families to live fuller lives and make a significant impact in the fight against this debilitating condition. The organization's efforts focus on funding research to advance understanding and treatment of ALS while offering essential services and resources to enhance the quality of life for those living with the disease.
Official website here: www.als.org
Who is the CEO of Amyotrophic Lateral Sclerosis Assn?
Calaneet Balas is the President And Ceo of Amyotrophic Lateral Sclerosis Assn. The CEO's salary of Amyotrophic Lateral Sclerosis Assn is $456,666 and their total compensation is $497,765.
Official website here: www.als.org
What is the revenue of Amyotrophic Lateral Sclerosis Assn?
Amyotrophic Lateral Sclerosis Assn's revenue in 2023 was $55,567,608.
Official website here: www.als.org
Who are the executives of Amyotrophic Lateral Sclerosis Assn and what are their salaries?
The average compensation at Amyotrophic Lateral Sclerosis Assn during 2023 was $54,147. There are 547 employees and 31 volunteers at Amyotrophic Lateral Sclerosis Assn.
Here are 47 key members and their salaries (Amyotrophic Lateral Sclerosis Assn's CEO's salary is $456,666 and their total compensation is $497,765):
- Compensation: $456,666
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- Other: $41,099
- Compensation: $308,028
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- Other: $41,556
- Compensation: $306,968
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- Other: $14,816
- Compensation: $275,627
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- Compensation: $247,460
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- Other: $12,356
- Compensation: $247,360
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- Other: $12,615
- Compensation: $241,396
- Related: $0
- Other: $22,878
- Compensation: $228,324
- Related: $0
- Other: $19,143
- Compensation: $224,926
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- Other: $10,962
- Compensation: $222,758
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- Other: $49,556
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Official website here: www.als.org
Where can I find the form 990 for Amyotrophic Lateral Sclerosis Assn?
Amyotrophic Lateral Sclerosis Assn's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.als.org
Learn more at the official website: www.als.org
Mission Statement of Amyotrophic Lateral Sclerosis Assn
The Amyotrophic Lateral Sclerosis Association, commonly known as ALS Association, is a leading force in the battle to cure and treat Amyotrophic Lateral Sclerosis (ALS), also referred to as Lou Gehrig's disease. This nonprofit organization is dedicated to making a significant impact on people's lives who are affected by ALS and their families. Through global, state-of-the-art research, the ALS Association strives to find innovative treatments and ultimately, a cure for this debilitating disease.
The mission of the Amyotrophic Lateral Sclerosis Association is multifaceted, encompassing not only research but also advocacy and care services. By leading the charge in research, the ALS Association aims to uncover the mysteries behind ALS and develop effective therapies to treat and cure the condition. Simultaneously, the organization empowers those living with ALS and their families by providing them with compassionate care and support, enabling them to live fuller lives.
In their relentless pursuit to make a difference, the ALS Association fosters a collaborative research environment, bringing together renowned scientists, researchers, and clinicians to pool their knowledge and expertise. This global approach to research not only accelerates progress but also ensures that the most promising discoveries are translated from the lab to the clinic as efficiently as possible. Ultimately, the ALS Association's mission is to bring hope and support to those affected by ALS, guiding them through their journey with compassion, respect, and understanding.
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Impact
October, 2024
The Amyotrophic Lateral Sclerosis Association plays a crucial role in the fight against ALS by spearheading comprehensive efforts in research, advocacy, and patient care. Its commitment to developing and managing innovative programs ensures that individuals living with ALS, along with their families and caregivers, receive essential support tailored to their needs.
By incorporating insights from various stakeholders—including patients, experts, and caregivers—the organization addresses immediate challenges while preparing for future requirements in ALS care and treatment. This involves conducting ongoing needs assessments and integrating best practices into educational programs for both clinicians and professionals in the field.
Additionally, the association emphasizes the importance of certified care centers, providing grants to enhance these facilities and ensuring that they adhere to nationally recognized standards. It also proactively seeks to deliver quality care through alternative avenues, broadening access to critical resources and information for those affected by the disease.
Through these multifaceted strategies, the Amyotrophic Lateral Sclerosis Association significantly improves the quality of life for people impacted by ALS, empowering them to navigate their journeys with the support and knowledge they need.
This information is meant to be a general summary of Amyotrophic Lateral Sclerosis Assn. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $1,771,537
- Gross Receipts: $77,468,178
Assets and Liabilities:
- Total Assets: $94,445,022
- Total Liabilities: $30,210,557
- Net Assets: $64,234,465
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Organization Details
Founding Year
1985
Phone
(202) 407-8580Principal Officer
Calaneet Balas
Main Address
1300 WILSON BLVD 600, ARLINGTON, VA, 22209
Website
www.als.orgNTEE Category
Code: G500 - Disease
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