National Down Syndrome Society

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 132992567 ✦ Washington, DC ✦ Designated as a 501(c)(3)

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Overview

What is National Down Syndrome Society?

The National Down Syndrome Society (NDSS) is a prominent advocacy organization dedicated to championing the rights and inclusion of individuals with Down syndrome. With over 350 affiliate groups nationwide, NDSS functions as a strong network that advocates for enhancing the quality of life, realizing aspirations, and integrating individuals with Down syndrome into welcoming communities. Their mission encompasses striving for a society where these individuals are valued and treated with acceptance. NDSS serves as a beacon of hope and support, ensuring that individuals with Down syndrome have the opportunity to thrive and lead fulfilling lives.


Official website here: www.ndss.org

What are the reviews and ratings of this charity?

Charity Navigator rating: 98% (Four-Star out of Four Star rating)

The National Down Syndrome Society is recognized for its strong performance, earning a Four-Star rating from Charity Navigator. With a perfect score in Accountability & Finance, the organization demonstrates excellent governance and transparency. The majority of its board members are independent, and there are no material diversions of assets, highlighting a commitment to ethical management of resources.

User feedback also supports the nonprofit's reputation, with donors praising its dedication to its mission. Reviews indicate that the organization works tirelessly to support individuals with Down syndrome, thus aligning its financial health with tangible outcomes in the community. The program expense ratio of 77.55% suggests that a significant portion of funds is allocated directly to programs, reinforcing its effectiveness.

While the accountability metrics are strong, the Culture & Community score is slightly lower at 83. This indicates room for improvement in areas related to equity and community engagement. Nonetheless, overall, the National Down Syndrome Society is viewed positively by both evaluators and donors, which reflects its commitment to supporting a vital cause.


This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.

Is National Down Syndrome Society legitimate?

National Down Syndrome Society is a legitimate nonprofit organization registered as a 501(c)(3) entity. National Down Syndrome Society submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $175,389
Professional Fundraising Fees: $0
Other Salaries and Wages: $1,155,413

For more financial information, click here


Official website here: www.ndss.org

What is the mission statement of National Down Syndrome Society?

The National Down Syndrome Society, serving as the leading human rights organization, aims to create a world where individuals with Down syndrome have the opportunity to improve their quality of life, achieve their aspirations, and become integral members of inclusive communities. The society, recognized as NDSS, acts as a national advocate, advocating for the value, acceptance, and inclusion of people with Down syndrome. With over 350 affiliate groups nationwide, NDSS is committed to fostering a welcoming environment for all individuals with Down syndrome.


Official website here: www.ndss.org

Who is the CEO of National Down Syndrome Society?

Kandi Pickard is the Executive Dir. of National Down Syndrome Society.


Official website here: www.ndss.org

What is the revenue of National Down Syndrome Society?

National Down Syndrome Society's revenue in 2022 was $3,651,955.


Official website here: www.ndss.org

Who are the executives of National Down Syndrome Society and what are their salaries?

The average compensation at National Down Syndrome Society during 2022 was $45,890. There are 29 employees and 195 volunteers at National Down Syndrome Society.


Here are 28 key members and their salaries:


Kandi Pickard (Executive Dir.)
  • Compensation: $161,797
  • Related: $0
  • Other: $300
Sara Goldberg (Sr. Director)
  • Compensation: $90,455
  • Related: $0
  • Other: $19,500
Tiffany Barfield (Chairman)
  • Compensation: $0
  • Related: $0
  • Other: $0
Carlo P Frappolli (Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Heather Lavallee (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Anthony J Gostkowski (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Elizabeth F Goodwin (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Christopher Brooks (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Megan Perez Burke (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
John Cronin (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sean Duffy (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Janet Slaughter Eissenstat (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Steve Freeman (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sean Fromm (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Misty Holmes (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Brandon Gruber (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Annette Halprin (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mark Johnson (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Debbie Morris (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lisa Pelham (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Thomas Santos (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
John Short (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Bob Siegel (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Capt Robert P Taishoff Usn Ret (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Laurie Walters (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
C Mitch Taylor (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Charles Symington (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tom Warner (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.ndss.org

Where can I find the form 990 for National Down Syndrome Society?

National Down Syndrome Society's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.ndss.org

Learn more at the official website: www.ndss.org

Mission Statement of National Down Syndrome Society

The National Down Syndrome Society (NDSS) serves as the leading human rights organization, advocating for the value, acceptance, and inclusion of individuals with Down syndrome. Their mission envisions a world where these individuals can fully enhance their quality of life, realize their aspirations, and become integral members of welcoming communities. Established as a national advocate, the NDSS boasts over 350 affiliate groups across the country, working tirelessly to ensure individuals with Down syndrome are treated with respect and given the opportunities they deserve.

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Impact




August, 2024

The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome. With a mission to advocate for the value, acceptance, and inclusion of people with Down syndrome, NDSS has made a significant impact in promoting the rights and opportunities for individuals with this condition. The organization has over 350 affiliate groups across the country, working to ensure that people with Down syndrome have the opportunity to enhance their quality of life, realize their aspirations, and become valued members of welcoming communities. Through their advocacy efforts and support programs, NDSS plays a crucial role in empowering individuals with Down syndrome and promoting a more inclusive society.




This information is meant to be a general summary of National Down Syndrome Society. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$3,651,955 (2022)
Expenses
$3,391,372 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $336,258
  • Program Service Revenue: $169,793
  • Gross Receipts: $4,192,335

Assets and Liabilities:

  • Total Assets: $13,076,710
  • Total Liabilities: $539,277
  • Net Assets: $12,537,433

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Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

NATIONAL BUDDY WALK

Revenue

$169,793

Organization Details

Founding Year

1979

Principal Officer

Kandi Pickard

Main Address

1155 15TH STREET NW SUITE 540, WASHINGTON, DC, 20005

NTEE Category

Code: G20 - Disease

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