Overview
What is Children's Tumor Foundation?
The Children's Tumor Foundation is a New York-based nonprofit organization that is committed to ending Neurofibromatosis (NF) through extensive research efforts. With a staff of 48 individuals, they invest in research by attracting talented investigators, supporting innovative studies, and fostering collaborative projects to develop treatments and cures for NF. The Foundation has played a significant role in discoveries, including the NF1 and NF2 genes, groundbreaking clinical trials, and the establishment of the first nationwide NF clinic network and patient registry. Annually, they sponsor a scientific conference to bring researchers together and share recent developments related to NF. Additionally, they aim to increase public awareness, support patients and families, and encourage the establishment of NF clinics.
Official website here: www.ctf.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 100%
The Children's Tumor Foundation has achieved a perfect score of 100% on Charity Navigator, indicating a strong commitment to accountability and financial integrity. The organization boasts a fully independent board of directors and excels in key financial metrics, including a high program expense ratio, demonstrating that the majority of its funds are directed towards its mission rather than administrative costs.
User reviews reflect a positive impact on families affected by neurofibromatosis (NF), highlighting the Foundation's role in providing vital resources and community support. Past clients and volunteers have praised the organization for its commitment to funding research and for facilitating connections among families, which is crucial for emotional support during challenging times. Their marketing efforts and responsive staff have also been noted as significant strengths.
While the foundation is highly regarded for its leadership and adaptability, it maintains a focus on continuous improvement in these areas, ensuring that it can effectively respond to changes and needs within the NF community. Overall, the Children's Tumor Foundation is recognized for its exceptional service and dedication to advancing research and support for those impacted by NF.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Children's Tumor Foundation legitimate?
Children's Tumor Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Children's Tumor Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $616,398
Professional Fundraising Fees: $100,000
Other Salaries and Wages: $3,653,215
For more financial information, click here
Official website here: www.ctf.org
What is the mission statement of Children's Tumor Foundation?
The Children's Tumor Foundation is committed to ending Neurofibromatosis (NF), a genetic disorder. Their mission encompasses several areas: funding research, increasing public awareness, supporting patients and families, and encouraging the establishment of NF clinics. In the realm of research, the foundation invests in attracting talented researchers, supporting innovative projects, and fostering collaborative efforts to discover treatments and cures for NF. The foundation has been instrumental in key research advancements, such as funding the laboratories that discovered the NF1 and NF2 genes, sponsoring groundbreaking clinical trials, and establishing the first nationwide NF clinic network and patient registry. Annually, they bring researchers together to discuss the latest scientific developments related to NF. Additionally, their programs integrate with and support larger federally funded projects through the Congressionally Directed Medical Research Program (CDMRP) and National Institutes of Health (NIH).
Official website here: www.ctf.org
Who is the CEO of Children's Tumor Foundation?
Annette Bakker Phd is the Board Member of Children's Tumor Foundation.
Official website here: www.ctf.org
What is the revenue of Children's Tumor Foundation?
Children's Tumor Foundation's revenue in 2022 was $16,990,325.
Official website here: www.ctf.org
Who are the executives of Children's Tumor Foundation and what are their salaries?
The average compensation at Children's Tumor Foundation during 2022 was $88,950. There are 48 employees and 1000 volunteers at Children's Tumor Foundation.
Here are 38 key members and their salaries:
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Official website here: www.ctf.org
Where can I find the form 990 for Children's Tumor Foundation?
Children's Tumor Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.ctf.org
Learn more at the official website: www.ctf.org
Mission Statement of Children's Tumor Foundation
The Children's Tumor Foundation is a dedicated organization that strives to put an end to Neurofibromatosis (NF), a condition that affects many individuals. With a clear mission, the Foundation aims to: fund research, increase public awareness, support patients and families, and encourage the establishment of NF clinics.
In simple terms, the Children's Tumor Foundation's mission is to drive research, expand knowledge, and advance care for the NF community. Their ultimate goal is to end NF. The Foundation's investments in research are multifaceted, serving three primary purposes: attracting talented investigators to NF research, supporting innovative research, and fostering collaborative efforts to find treatments and cures for Neurofibromatosis.
Over the years, the Children's Tumor Foundation has been at the forefront of significant advancements in NF research. Some key achievements include funding laboratories that discovered the NF1 and NF2 genes, sponsoring groundbreaking clinical trials, and establishing the first nationwide NF clinic network and NF patient registry. Additionally, the Foundation sponsors an annual scientific conference where researchers gather to discuss the latest scientific developments related to NF. Furthermore, the Foundation's programs are designed to integrate and support larger federally funded projects through the Congressionally Directed Medical Research Program (CDMRP) and the National Institutes of Health (NIH).
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Impact
October, 2024
The Children's Tumor Foundation (CTF) makes a significant impact in the fight against neurofibromatosis (NF) through its comprehensive approach to research, awareness, support, and advocacy. By funding critical research initiatives, CTF attracts talented investigators and supports innovative projects aimed at finding treatments and cures for NF. Their efforts include funding the foundational labs that identified the NF1 and NF2 genes, spearheading groundbreaking clinical trials, and establishing the first nationwide NF clinic network and patient registry.
CTF also plays a vital role in fostering collaboration among researchers by sponsoring an annual scientific conference, which serves as a platform for discussing the latest advancements in NF research.
Beyond research, the foundation enhances public awareness of NF and its impact on patients and families. It provides essential support services to those affected by the disorder, helping them navigate challenges and connect with each other.
Through these multifaceted initiatives, CTF is committed to driving research, expanding knowledge, and advancing care, all while striving for the ultimate goal of ending neurofibromatosis.
This information is meant to be a general summary of Children's Tumor Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $280,593
- Program Service Revenue: $1,169,034
- Gross Receipts: $17,585,501
Assets and Liabilities:
- Total Assets: $32,079,774
- Total Liabilities: $4,527,792
- Net Assets: $27,551,982
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
PARTICIPANT REVENUE
Revenue
$1,169,034
Organization Details
Founding Year
1978
Phone
(212) 344-6633Principal Officer
Annette Bakker Phd
Main Address
697 3RD AVENUE 418, NEW YORK, NY, 10017
Website
www.ctf.orgNTEE Category
Code: H50Z - Medical research
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