Overview
What is Cystic Fibrosis Foundation?
The Cystic Fibrosis Foundation is a leading nonprofit organization, headquartered with a mission to eradicate Cystic Fibrosis (CF) and improve the lives of those diagnosed with this condition. They are dedicated to funding research to find a cure for CF and providing essential support to individuals and families dealing with the challenges it presents. With a worldwide reputation as a pioneer in CF research, the Cystic Fibrosis Foundation's efforts are geared towards offering hope and opportunities for a full, satisfying life to all those living with CF.
Official website here: www.cff.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 100% (Four-Star out of Four Star rating)
The Cystic Fibrosis Foundation (CFF) has achieved a perfect score from Charity Navigator, indicating exceptional performance in accountability and finance. With a strong emphasis on program expenses, approximately 84% of their funds are directed toward research and related services, showcasing their commitment to advancing treatment options for cystic fibrosis. The organization also boasts a highly independent board, ensuring that decision-making is objective and focused on their mission.
User feedback highlights a stark contrast between positive experiences and notable criticisms. Many supporters praise the CFF for its impact on the lives of patients, particularly through funding essential research that has led to significant medical breakthroughs like Kalydeco. However, some donors and clients have reported frustrations with the organization’s pharmacy services, particularly concerning billing practices that have resulted in unexpected costs. These mixed reviews suggest that while the organization is highly regarded for its overall mission, there may be areas needing improvement in customer service and patient advocacy.
Despite the limitations noted in user reviews, the Cystic Fibrosis Foundation remains a leading organization in the fight against cystic fibrosis, garnering widespread support from both families affected by the disease and medical professionals. The commitment to transparency and effective use of funds further reinforces its strong reputation within the nonprofit sector, although ongoing attention to service delivery could enhance overall satisfaction among constituents.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Cystic Fibrosis Foundation legitimate?
Cystic Fibrosis Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Cystic Fibrosis Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $6,916,442
Professional Fundraising Fees: $176,400
Other Salaries and Wages: $84,064,519
For more financial information, click here
Official website here: www.cff.org
What is the mission statement of Cystic Fibrosis Foundation?
The Cystic Fibrosis Foundation is dedicated to finding a cure for cystic fibrosis (CF) and enabling those diagnosed with the condition to live long, fulfilling lives. As a global leader in CF research, the foundation is committed to advancing treatments and ultimately finding a cure for this disease. The organization also provides essential support to individuals and families dealing with the challenges of CF, ensuring they receive the care and resources they need to navigate their journey. Through its mission, the Cystic Fibrosis Foundation aims to make a significant impact on the lives of those affected by this condition.
Official website here: www.cff.org
Who is the CEO of Cystic Fibrosis Foundation?
Michael P Boyle Md is the President & Ceo of Cystic Fibrosis Foundation. The CEO's salary of Cystic Fibrosis Foundation is $393,943 and their total compensation is $456,111.
Official website here: www.cff.org
What is the revenue of Cystic Fibrosis Foundation?
Cystic Fibrosis Foundation's revenue in 2022 was $248,630,352.
Official website here: www.cff.org
Who are the executives of Cystic Fibrosis Foundation and what are their salaries?
The average compensation at Cystic Fibrosis Foundation during 2022 was $102,226. There are 890 employees and 54572 volunteers at Cystic Fibrosis Foundation.
Here are 32 key members and their salaries (Cystic Fibrosis Foundation's CEO's salary is $393,943 and their total compensation is $456,111):
- Compensation: $950,256
- Related: $0
- Other: $399,526
- Compensation: $0
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- Other: $0
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- Other: $0
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- Compensation: $557,940
- Related: $0
- Other: $71,381
- Compensation: $194,080
- Related: $0
- Other: $28,360
- Compensation: $2,463,847
- Related: $0
- Other: $230,935
- Compensation: $692,205
- Related: $0
- Other: $104,713
- Compensation: $551,336
- Related: $0
- Other: $154,612
- Compensation: $455,835
- Related: $0
- Other: $61,418
- Compensation: $1,023,013
- Related: $0
- Other: $234,362
- Compensation: $921,034
- Related: $0
- Other: $248,237
- Compensation: $543,012
- Related: $0
- Other: $129,909
- Compensation: $574,023
- Related: $0
- Other: $64,672
- Compensation: $552,564
- Related: $0
- Other: $92,779
- Compensation: $393,943
- Related: $0
- Other: $62,168
- Compensation: $176,462
- Related: $0
- Other: $0
- Compensation: $160,000
- Related: $0
- Other: $0
- Compensation: $103,286
- Related: $0
- Other: $0
Official website here: www.cff.org
Where can I find the form 990 for Cystic Fibrosis Foundation?
Cystic Fibrosis Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.cff.org
Learn more at the official website: www.cff.org
Mission Statement of Cystic Fibrosis Foundation
The Cystic Fibrosis Foundation, a renowned organization, is committed to curing cystic fibrosis (CF) and enabling all those afflicted by this condition to live long, fulfilling lives. This mission makes the Foundation a global leader in the relentless pursuit of a cure for CF. It offers essential support to patients and their families, assisting them in navigating the challenges that come with managing this disease.
The Cystic Fibrosis Foundation's vision is twofold: eradicating CF through innovative research and ensuring that those with the condition can thrive. By funding cutting-edge research, the Foundation is at the forefront of the scientific community's efforts to find a cure for CF. Simultaneously, it provides crucial resources and services to patients and their families, helping them cope with the daily struggles of living with the disease.
The Foundation's unwavering commitment to its mission has made it a beacon of hope for the CF community. It is a world-class organization that not only strives to find a cure but also offers vital assistance to patients and their families. By combining groundbreaking research with compassionate care, the Cystic Fibrosis Foundation remains a steadfast ally in the fight against CF.
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Impact
October, 2024
The Cystic Fibrosis Foundation has made a significant impact in the fight against cystic fibrosis (CF) by leading cutting-edge research and supporting innovative treatments. As a world leader in the search for a cure, the organization has played a crucial role in advancing scientific knowledge and developing therapies that improve the quality of life for individuals living with CF.
Their mission centers on not only discovering a cure for the disease but also ensuring that all people affected by CF have the opportunity to lead long, fulfilling lives. Through various programs and resources, the Foundation supports patients and their families in navigating the challenges of living with CF, providing access to critical care and information that empowers them to manage their health effectively.
By fostering collaboration among researchers, healthcare professionals, and the CF community, the Cystic Fibrosis Foundation has catalyzed advancements in treatments that have dramatically changed the prognosis for those with CF, enhancing their daily lives and extending life expectancy. The organization’s comprehensive approach underscores its commitment to both immediate support and long-term solutions in the quest to eradicate cystic fibrosis.
This information is meant to be a general summary of Cystic Fibrosis Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $128,066,687
- Program Service Revenue: $2,555,705
- Gross Receipts: $1,350,372,542
Assets and Liabilities:
- Total Assets: $4,735,058,992
- Total Liabilities: $291,339,976
- Net Assets: $4,443,719,016
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
SCIENTIFIC CONFERENCE
Revenue
$2,290,846
DATA SAFETY MONITORING
Revenue
$264,859
Organization Details
Founding Year
1955
Phone
(301) 951-4422Principal Officer
Michael P Boyle Md
Main Address
4550 MONTGOMERY AVENUE 1100N, BETHESDA, MD, 20814
Website
www.cff.orgNTEE Category
Code: G200 - Disease
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