Overview
What is National Tay-Sachs & Allied Diseases Association Inc?
National Tay-Sachs & Allied Diseases Association Inc is a nonprofit organization situated in Brighton, Massachusetts. Their primary focus is on detecting, preventing, and conducting research on Tay-Sachs and related neurological disorders. They accomplish this by offering grants to scientists through a proposal process, funding projects that involve basic, translational, or clinical studies in the field of central nervous system disorders. The organization is committed to supporting families and children affected by these diseases, providing essential services throughout their journey. With a team of seven dedicated individuals, NTSAD leads the global effort to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases, fostering collaboration and community involvement.
Official website here: www.ntsad.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 96% (Four-Star out of Four Stars)
The National Tay-Sachs & Allied Diseases Association Inc (NTSAD) has achieved a commendable Four-Star rating from Charity Navigator, indicating a high level of accountability and financial health. The organization scores exceptionally well in categories such as independent board governance and financial oversight, which is essential for donor trust and operational integrity.
User feedback highlights NTSAD's significant role in supporting families affected by Tay-Sachs and related diseases. Many clients express gratitude for the emotional and educational resources provided, which help them navigate the challenges of the illnesses. The annual family conference is particularly praised for fostering connections among families and offering valuable information.
However, while the organization demonstrates a strong commitment to its mission, feedback references that the number of affected families is relatively small, which may limit the reach of their programs. Overall, NTSAD stands out as a supportive community resource, dedicated to improving the lives of those touched by these rare diseases.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is National Tay-Sachs & Allied Diseases Association Inc legitimate?
National Tay-Sachs & Allied Diseases Association Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. National Tay-Sachs & Allied Diseases Association Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $162,367
Professional Fundraising Fees: $0
Other Salaries and Wages: $282,695
For more financial information, click here
Official website here: www.ntsad.org
What is the mission statement of National Tay-Sachs & Allied Diseases Association Inc?
The National Tay-Sachs & Allied Diseases Association Inc, in its mission, leads the global effort to treat and cure Tay-Sachs, Canavan, GM1, and Sandhofd diseases. This is achieved by driving research, fostering collaborations, and promoting community involvement. Supporting affected families is at the core of their activities. Through a request for proposal process, they provide research grants to scientists, funding projects in the areas of neurological disorders affecting the central nervous system. The association's primary focus is on detecting, preventing, and researching these diseases, while also offering services to families and children living with these diseases.
Official website here: www.ntsad.org
Who is the CEO of National Tay-Sachs & Allied Diseases Association Inc?
Kathleen M Flynn is the Director of National Tay-Sachs & Allied Diseases Association Inc.
Official website here: www.ntsad.org
What is the revenue of National Tay-Sachs & Allied Diseases Association Inc?
National Tay-Sachs & Allied Diseases Association Inc's revenue in 2022 was $1,253,108.
Official website here: www.ntsad.org
Who are the executives of National Tay-Sachs & Allied Diseases Association Inc and what are their salaries?
The average compensation at National Tay-Sachs & Allied Diseases Association Inc during 2022 was $63,580. There are 7 employees and 25 volunteers at National Tay-Sachs & Allied Diseases Association Inc.
Here are 22 key members and their salaries:
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $118,976
- Related: $0
- Other: $0
Official website here: www.ntsad.org
Where can I find the form 990 for National Tay-Sachs & Allied Diseases Association Inc?
National Tay-Sachs & Allied Diseases Association Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.ntsad.org
Learn more at the official website: www.ntsad.org
Mission Statement of National Tay-Sachs & Allied Diseases Association Inc
The National Tay-Sachs & Allied Diseases Association Inc is dedicated to leading the global initiative to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases. Their mission, at its core, revolves around driving research, fostering collaboration, and promoting community involvement in the field of neurological disorders affecting the central nervous system. This nonprofit organization places a significant emphasis on supporting families affected by these diseases, considering their well-being as the primary focus of their efforts.
In their pursuit of a cure, National Tay-Sachs & Allied Diseases Association Inc makes research grants available to scientists through a Request for Proposal process. These grants are allocated to research projects that primarily involve basic research, translational studies, or clinical trials in the areas of neurological disorders that impact the central nervous system. By providing financial support to these projects, the association plays a crucial role in advancing the scientific understanding of these diseases and bringing us closer to potential treatments and cures.
Shop smarter and support your favorite cause with the Give Freely browser extension. Save money with coupons and donate to charity with a single click. Download now!
Impact
July, 2024
National Tay-Sachs & Allied Diseases Association Inc is at the forefront of the global battle to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases. By driving research, fostering collaboration, and building a supportive community, the organization is making a significant impact in the field of neurodegenerative disorders affecting the central nervous system. NTSAD's efforts include providing grants to scientists for research projects encompassing basic research, translational studies, and clinical trials. Additionally, the organization offers vital services to families and children living with these diseases, placing support for families at the heart of its mission.
This information is meant to be a general summary of National Tay-Sachs & Allied Diseases Association Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $1,411
- Program Service Revenue: $355,407
- Gross Receipts: $1,280,649
Assets and Liabilities:
- Total Assets: $3,116,145
- Total Liabilities: $23,563
- Net Assets: $3,092,582
Want to help this charity, for free? You can click here to learn more about Give Freely
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
ANNUAL CONFERENCE
Revenue
$232,337
LICENSING INCOME
Revenue
$123,070
Organization Details
Founding Year
1957
Phone
(617) 277-4463Principal Officer
Kathleen M Flynn
Main Address
2001 BEACON ST 204, BRIGHTON, MA, 021357772
Website
www.ntsad.orgNTEE Category
Code: G2XZ - Disease
If you are a representative of National Tay-Sachs & Allied Diseases Association Inc and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.