Overview
What is Muscular Dystrophy Association Inc?
The Muscular Dystrophy Association Inc, based in Chicago, Illinois, is a leading nonprofit organization that empowers individuals living with muscular dystrophy, ALS, and related neuromuscular diseases. With a team of 231 employees, they have committed over $1 billion to research, aiming to discover therapies and cures. Their network of multidisciplinary clinics at top medical institutions offers best-in-class, comprehensive care from integrated healthcare specialists. They support families through one-on-one specialized assistance, educational materials, and community resource referrals. Annually, thousands of children and young adults learn life skills and gain independence at camps, staffed with healthcare professionals and trained volunteers. MDA's mission is to help people live longer, more independent lives.
Official website here: www.mda.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 80%, Three-Star out of Four Star rating
The Muscular Dystrophy Association (MDA) has received an 80% rating from Charity Navigator, indicating a reasonably strong performance in accountability and finance, impact measurement, leadership, and community culture. The organization boasts a fully independent board and high scores in areas such as financial oversight and feedback practices, which highlights a commitment to transparency and good governance. However, areas like accountability and finance received a lower score of 67, suggesting there might be room for improvement in financial management.
User reviews reflect a divided perception of MDA's effectiveness. While some clients and volunteers praise the organization's mission and services, noting personal experiences of support in navigating muscular dystrophy, others express disappointment over recent service cuts and financial decisions. Critics highlight a perceived decline in client support, specifically mentioning the cessation of financial assistance for essential medical equipment and services, which has led to frustration and feelings of neglect among some users.
Overall, while MDA has a solid framework in place for its operations and is recognized for its commitment to research and community support, the mixed feedback from clients indicates a significant concern over the organization's responsiveness to the needs of those it serves. This dichotomy suggests that potential donors and supporters should consider both the positive impacts reported and the criticisms raised when evaluating the organization's current standing and future direction.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Muscular Dystrophy Association Inc legitimate?
Muscular Dystrophy Association Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Muscular Dystrophy Association Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $1,168,200
Professional Fundraising Fees: $0
Other Salaries and Wages: $17,112,416
For more financial information, click here
Official website here: www.mda.org
What is the mission statement of Muscular Dystrophy Association Inc?
The Muscular Dystrophy Association (MDA) is a leading health organization in the United States, dedicated to improving the lives of individuals diagnosed with muscular dystrophy, ALS, and related neuromuscular diseases. For over seven decades, MDA has spearheaded efforts to accelerate research, advance care, and advocate for families affected by these conditions. Their mission is to empower those they serve to live longer, more independent lives. By providing essential resources, emotional support, and access to healthcare, MDA aims to enhance the overall well-being of those affected by these diseases. Through collaborations with various organizations, they also address healthcare access, long-term care, and other related issues.
Official website here: www.mda.org
Who is the CEO of Muscular Dystrophy Association Inc?
Dr Donald S Wood is the Principal Officer of Muscular Dystrophy Association Inc. The CEO's salary of Muscular Dystrophy Association Inc is $522,923 and their total compensation is $549,560.
Official website here: www.mda.org
What is the revenue of Muscular Dystrophy Association Inc?
Muscular Dystrophy Association Inc's revenue in 2022 was $63,227,837.
Official website here: www.mda.org
Who are the executives of Muscular Dystrophy Association Inc and what are their salaries?
The average compensation at Muscular Dystrophy Association Inc during 2022 was $79,137. There are 231 employees and 961 volunteers at Muscular Dystrophy Association Inc.
Here are 28 key members and their salaries (Muscular Dystrophy Association Inc's CEO's salary is $522,923 and their total compensation is $549,560):
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- Compensation: $522,923
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- Compensation: $188,558
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- Other: $27,594
Official website here: www.mda.org
Where can I find the form 990 for Muscular Dystrophy Association Inc?
Muscular Dystrophy Association Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.mda.org
Learn more at the official website: www.mda.org
Mission Statement of Muscular Dystrophy Association Inc
Muscular Dystrophy Association Inc, also known as MDA, is a leading voluntary health organization in the United States dedicated to improving the lives of those affected by muscular dystrophy, ALS, and related neuromuscular diseases. With over 70 years of experience, MDA has been at the forefront of accelerating research, advancing care, and advocating for the support of affected families.
The mission of Muscular Dystrophy Association Inc is to empower the individuals it serves to live longer, more independent lives. By providing resources, support, and research, MDA strives to help those living with muscular dystrophy and related conditions to overcome the challenges they face. Through its advocacy efforts, MDA works to raise awareness and secure essential resources for families, ensuring they have access to the care and services they need.
MDA's commitment to research is evident through its role as a trailblazer in the field. By funding groundbreaking studies and collaborating with researchers, MDA is driving the development of innovative treatments and therapies to help slow the progression of these diseases and ultimately find a cure. In addition to its research efforts, MDA offers a range of supportive services to help individuals and families cope with the daily challenges of living with neuromuscular diseases. From medical care to educational resources and counseling, MDA is there to provide the support and guidance needed to navigate the journey.
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Impact
October, 2024
Muscular Dystrophy Association Inc significantly impacts the lives of individuals and families affected by muscular dystrophy, ALS, and related neuromuscular diseases. By providing critical support through comprehensive healthcare services, it empowers patients to live longer, more independent lives.
As the largest source of private funding for neuromuscular disease research outside of the federal government, MDA has committed over $1 billion to accelerate the discovery of therapies and cures. This financial investment fuels innovative research and enhances the understanding of these diseases.
MDA operates an extensive network of over 150 multidisciplinary clinics located at top medical institutions, where patients receive coordinated and personalized care. Each care center brings together a team of specialists dedicated to meeting the unique healthcare needs of individuals and families. MDA care specialists play a pivotal role in guiding families through the healthcare landscape, ensuring they have access to essential resources and educational materials.
Additionally, the organization offers life-changing opportunities for children and young adults, such as summer camps and recreational programs that foster independence and skill development, all at no cost to families. This holistic approach not only addresses medical needs but also enriches the overall quality of life for those affected.
Through its commitment to research, education, and community support, MDA stands as a vital advocate for the neuromuscular disease community, ensuring that those affected receive the care and resources necessary to navigate their challenges effectively.
This information is meant to be a general summary of Muscular Dystrophy Association Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $3,244,992
- Gross Receipts: $68,508,927
Assets and Liabilities:
- Total Assets: $64,403,820
- Total Liabilities: $57,595,156
- Net Assets: $6,808,664
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Organization Details
Founding Year
1950
Phone
(312) 260-5900Principal Officer
Dr Donald S Wood
Main Address
161 N CLARK ST 3550, CHICAGO, IL, 60601
Website
www.mda.orgNTEE Category
Code: G50 - Disease
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