Overview
What is Sjogren's Foundation Inc?
Sjogren's Foundation Inc is a nonprofit organization based in Reston, Virginia. With a team of 17 dedicated individuals, the foundation's primary mission is to offer support and resources to individuals affected by Sjogren's syndrome and their loved ones. They achieve this by providing educational materials, advocating on behalf of all Sjogren's patients, and funding innovative research projects. In May 2023, the foundation awarded three research grants to university-affiliated researchers as part of their annual grant program. These grants supported studies focused on biomarkers in autoimmune diseases, furthering the foundation's commitment to advancing scientific understanding of the condition. Additionally, the Sjogren's Foundation collaborated with multiple pharmaceutical companies to prepare and launch Phase 2 and Phase 3 clinical trials, aiming to develop new treatments for Sjogren's syndrome.
Official website here: www.sjogrens.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 100% (Four-Star out of Four Star rating)
The Sjogren's Foundation Inc has achieved a perfect score of 100% on Charity Navigator, indicating strong accountability and financial health. This rating is significant as it reflects the foundation's commitment to transparency, with a majority of independent board members and comprehensive policies in place for oversight. Their efficient use of resources is evident, with 86.54% of expenses directed towards programs and an impressive fundraising efficiency ratio of $0.09.
User reviews from Great Nonprofits highlight the foundation's positive impact on individuals affected by Sjogren's syndrome. Volunteers and patients appreciate the organization's dedication to education and support for those newly diagnosed, underscoring the foundation's role in raising awareness and providing resources. The trust placed in the foundation by users, particularly regarding the allocation of funds towards research, speaks to its credibility and effectiveness within the community.
While the overall feedback is overwhelmingly positive, there are no specific limitations noted in the gathered data. The foundation is recognized for its innovative ideas and dedication to advancing research, making it a valuable resource for patients and medical professionals alike.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Sjogren's Foundation Inc legitimate?
Sjogren's Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Sjogren's Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $586,800
Professional Fundraising Fees: $0
Other Salaries and Wages: $839,659
For more financial information, click here
Official website here: www.sjogrens.org
What is the mission statement of Sjogren's Foundation Inc?
The Sjogren's Foundation Inc's mission is centered around providing education and resources to individuals affected by Sjogren's syndrome and their loved ones. They aim to serve as a reliable source of information for healthcare professionals as well. The foundation advocates for all Sjogren's patients and is committed to funding innovative research in this field. In May 2023, they awarded three research grants to university-affiliated researchers. Additionally, they expanded their research policies to include a dynamic grant policy and granted funds to Oklahoma Medical Research Foundation for their genome research project. The foundation also collaborates closely with pharmaceutical companies to prepare for and bring forward phase 2 and phase 3 clinical trials. They support these programs by conferring with companies on trial design and presenting information to patients about clinical trials and enrollment.
Official website here: www.sjogrens.org
Who is the CEO of Sjogren's Foundation Inc?
Janet Church is the Chairman of Sjogren's Foundation Inc. The CEO's salary of Sjogren's Foundation Inc is $326,700 and their total compensation is $348,896.
Official website here: www.sjogrens.org
What is the revenue of Sjogren's Foundation Inc?
Sjogren's Foundation Inc's revenue in 2023 was $3,324,713.
Official website here: www.sjogrens.org
Who are the executives of Sjogren's Foundation Inc and what are their salaries?
The average compensation at Sjogren's Foundation Inc during 2023 was $83,909. There are 17 employees and 617 volunteers at Sjogren's Foundation Inc.
Here are 25 key members and their salaries (Sjogren's Foundation Inc's CEO's salary is $326,700 and their total compensation is $348,896):
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- Compensation: $326,700
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- Other: $3,120
Official website here: www.sjogrens.org
Where can I find the form 990 for Sjogren's Foundation Inc?
Sjogren's Foundation Inc's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.sjogrens.org
Learn more at the official website: www.sjogrens.org
Mission Statement of Sjogren's Foundation Inc
The Sjogren's Foundation Inc is devoted to providing education and resources for individuals affected by Sjogren's syndrome and their loved ones. The organization serves as a credible source of information and education for healthcare professionals as well. Furthermore, the foundation acts as an advocate for all Sjogren's patients, striving to lead and fund innovative research in this field.
In May 2023, the Sjogren's Foundation awarded three research grants under their annual grant program to university-affiliated researchers. These grants included two pilot awards and one high-impact award. Additionally, the foundation expanded their research policies to incorporate a dynamic grant policy and awarded a grant to Oklahoma Medical Research Foundation to expand their genome research project. The foundation's work in the Biomarkers Consortium and the FNIH AMP aim research on biomarkers in autoimmune diseases continues.
The Sjogren's Foundation also collaborated closely with multiple pharmaceutical companies to prepare for and bring phase 2 and phase 3 clinical trials forward. They supported these programs by consulting with companies on designing successful trials and presenting information to patients about clinical trials and enrollment.
In summary, the Sjogren's Foundation Inc is dedicated to supporting patients with Sjogren's syndrome and their loved ones by providing education, resources, and advocating for research. They achieve this by awarding research grants, expanding research policies, and collaborating with pharmaceutical companies to facilitate clinical trials.
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Impact
July, 2024
Sjogren's Foundation Inc has made a significant impact in the field of autoimmune diseases, specifically Sjogren's syndrome. The foundation awarded research grants to university-affiliated researchers, including pilot awards and a high-impact award. They expanded their research policies to include a dynamic grant policy and supported a genome research project at the Oklahoma Medical Research Foundation.
Additionally, the foundation worked closely with pharmaceutical companies to advance phase 2 and phase 3 clinical trials for Sjogren's syndrome. They provided support in designing successful trials and educating patients about clinical trial opportunities.
Overall, Sjogren's Foundation Inc plays a crucial role in providing education and resources to Sjogren's patients and their loved ones, supporting healthcare professionals with credible information, advocating for Sjogren's patients, and leading and funding innovative research in the field.
This information is meant to be a general summary of Sjogren's Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $44,371
- Program Service Revenue: $489,669
- Gross Receipts: $3,912,670
Assets and Liabilities:
- Total Assets: $3,694,277
- Total Liabilities: $1,128,554
- Net Assets: $2,565,723
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
MEMBERSHIP DUES
Revenue
$268,230
CONFERENCE
Revenue
$203,722
ADVERTISING
Revenue
$14,500
NEWSLETTER
Revenue
$3,217
Organization Details
Founding Year
1983
Phone
(301) 530-4420Principal Officer
Janet Church
Main Address
10701 PARKRIDGE BLVD 170, RESTON, VA, 20191
Website
www.sjogrens.orgNTEE Category
Code: G40 - Disease
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