Cooley's Anemia Foundation

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 111971539 ✦ New york, NY ✦ Designated as a 501(c)(3)

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Overview

What is Cooley's Anemia Foundation?

The Cooley's Anemia Foundation is a nonprofit organization, situated in New York, specifically at 330 SEVENTH AVENUE, NY 10001. Their primary mission is to enhance the lives of patients suffering from Cooley's Anemia, a fatal blood disease, by funding medical research. Their ultimate goal is to uncover effective treatment methods and eventually discover a permanent cure. Their team, comprising ten dedicated individuals, is dedicated to this pursuit. Through research grants, they aim to expand the existing body of knowledge and contribute to the advancement of treatments for this debilitating condition.


Official website here: www.thalassemia.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 97%

The Cooley's Anemia Foundation (CAF) has received a commendable Four-Star out of Four Star rating from Charity Navigator, highlighting its strong performance in accountability and finance. With a perfect score in several key areas, such as independent board governance and financial oversight, CAF demonstrates a commitment to transparency and responsible resource management. This rating reflects the organization’s effectiveness in using funds to support its mission, with a program expense ratio of 77.68% indicating that a significant portion of its budget is dedicated to direct support and services for those affected by thalassemia.

User reviews consistently praise CAF for its invaluable support and resources for families affected by thalassemia. Patients and their families highlight the organization’s role in providing critical information, advocacy, and a sense of community. Many testimonials point to the emotional and practical assistance offered, which helps families navigate the complexities of treatment options and access to healthcare. The annual conferences organized by CAF are particularly noted for fostering connections among patients, families, and medical professionals, enhancing the overall support network.

Despite these strengths, some feedback suggests the importance of continued fundraising efforts to sustain and expand CAF's initiatives. While the organization has made significant strides in patient advocacy and awareness, the ongoing need for resources to fund research and support services remains crucial. Overall, the Cooley's Anemia Foundation is recognized as an essential ally for individuals and families dealing with thalassemia, offering hope and comprehensive support.


This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.

Is Cooley's Anemia Foundation legitimate?

Cooley's Anemia Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Cooley's Anemia Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $707,186

For more financial information, click here


Official website here: www.thalassemia.org

What is the mission statement of Cooley's Anemia Foundation?

The Cooley's Anemia Foundation is devoted to enhancing the quality of life for individuals afflicted by this fatal blood disease. Their primary objective is to advance research towards finding a cure. To achieve this, they provide financial support for medical research, aiming to expand knowledge in treatment and ultimately, cure the disease. The foundation's mission is multifaceted, focusing not only on medical advancements but also on improving the lives of those affected.


Official website here: www.thalassemia.org

What is the revenue of Cooley's Anemia Foundation?

Cooley's Anemia Foundation's revenue in 2024 was $2,812,580.


Official website here: www.thalassemia.org

Who are the executives of Cooley's Anemia Foundation and what are their salaries?

The average compensation at Cooley's Anemia Foundation during 2024 was $70,719. There are 10 employees at Cooley's Anemia Foundation.

Here are 48 key members and their salaries:


Craig Butler (Executive Di)
  • Compensation: $165,142
  • Related: $0
  • Other: $0
Carmine Abruzzo (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tracy Antonelli (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Cammie Brandofino (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Shirley Cammilleri (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Amy Celento (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Julia Cenzaprano (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mary Ann Cervoni-Iaia (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Thomas Cheng (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jennie Rose Chieco (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Peter Chieco (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Michelle Chieco-Lenz (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dr Alan Cohen (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sarah Baqueri Connolly (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Terri Difillipo (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Anthony Ferrino (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Robert Ficarra (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Josephine Flood (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Antoni Foe (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Frank Fusaro (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Amnish Goel (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dean Hernan (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Christine Horton (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ben Li (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Cindy Morrison (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
William Pisano (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Laurie Pizzo (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Paul Polo (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Michael Pouchie (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Michael Presto (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Thomas Rotolo (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Phil Rutigliano (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Pranav Saha (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Radhika Sawh (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Joseph Sciame (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Frank Somma (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Frank Tidona (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Teresa Tomaino (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Joseph Di Trapani (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
James Ventola (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Anthony Viola (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tom Watral (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Joseph Zuraw (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Janice Cenzaprano (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ralph Colasanti (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Maria Hadjidemetriou (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dr Janet Kwiatkowski (Medical Adv)
  • Compensation: $0
  • Related: $0
  • Other: $0
Joseph Vigliotti (Vice Preside)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.thalassemia.org

Where can I find the form 990 for Cooley's Anemia Foundation?

Cooley's Anemia Foundation's most recent form 990 was submitted in 2024 and can be accessed here.


Official website here: www.thalassemia.org

Learn more at the official website: www.thalassemia.org

Mission Statement of Cooley's Anemia Foundation

The Cooley's Anemia Foundation is dedicated to improving the lives of patients affected by this fatal blood disease while relentlessly pursuing a cure. This nonprofit organization's mission is multifaceted, with a primary focus on enhancing patient care and quality of life. They achieve this by providing financial support in the form of research grants, contributing to medical research in the field of treatment and potential cures.

In essence, the Cooley's Anemia Foundation serves as a beacon of hope for those battling this condition. By funding medical research, they aim to expand the body of knowledge surrounding the disease, ultimately leading to breakthroughs in treatment and, ideally, a cure. This commitment to research is driven by their unwavering goal to improve the lives of those affected by Cooley's Anemia.

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Impact




July, 2024

Cooley's Anemia Foundation plays a crucial role in enhancing the quality of patients' lives while working towards finding a cure for this fatal blood disease. Through research grants and funding for medical research, the foundation aims to increase knowledge in treatment and eventually find a cure for this condition. Based in New York, the foundation's mission is centered around making a tangible impact in the lives of those affected by this disease and advancing research efforts to combat it. By providing support, resources, and funding for research, Cooley's Anemia Foundation is actively contributing to the fight against this devastating illness.




This information is meant to be a general summary of Cooley's Anemia Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$2,812,580 (2024)
Expenses
$2,224,356 (2024)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2024.

  • Investment Income: $239,526
  • Gross Receipts: $2,812,580

Assets and Liabilities:

  • Total Assets: $5,144,098
  • Total Liabilities: $216,473
  • Net Assets: $4,927,625

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Organization Details

Founding Year

1954

Principal Officer

Craig Butler

NTEE Category

Code: G20 - Disease

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